Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-11-2014, 12:50 PM #1
SFhelp SFhelp is offline
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Default Need help finding PCS help in San Francisco

Hi all, I've been suffering from PCS for 3 months now. I am (was) an extremely active 32 year old male. Prior to my injury I was already eating a diet of no gluten, no dairy, no preservatives and have continued that diet. About 3 months ago I was assaulted and my head (left side) slammed against a door jam by an unknown person. My general dr is of no help, the neurologist I've seen have been no help and trying to get into the ucsf (my insurance is blue shield) has been impossible. I recently flew back to Ohio (where I'm from) to see a concussion specialist there. Even though I told the Dr I do not like taking meds, she prescribed me amantadine. Reluctantly, I have been taking 2 100mgs pills a day. While this has helped with concentration and brain fog, I think it has caused side effects including anxiety, insomnia, and depression. I should also mention that prior and during the meds I have been taking supplements, B vit complex, D3, fish oil, curcumin, ubiquinol w reservatol, cell salts, arnica (occasionally), and creatine. I also eat extremely healthy and have been meditating and seeing a acupuncturist bi-monthly.

After doing lots and lots of research, I have found that I would like to see a vision therapist (VPN)?, chiropractic neurologist, and neuro psychologist, and any other recommendations you guys have.

Does anyone know of any in the Bay Area which are accepting new patients and not on a 4 month wait? I have completely hit a brick wall here. I'm emotionally and physically drained. I know I'll get better, I have to, I just need help finding a path towards that.

Apologies for the long post. Hopefully it makes sense and someone out there can help.

Zack
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Old 12-11-2014, 01:24 PM #2
russiarulez russiarulez is offline
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Can't really help you to find specific docs in SF area since I'm not from there, but I do have blue cross insurance and so far they've been worthless in covering any kind of a specialist even if that's the only one in the state (Alaska), so I've been paying mostly out of pocket so far.

Anxiety/depression/insomnia could be side effects of the drug you're taking, but could also have developed on their own. Mine didn't start developing until about 3-4 weeks after the injury.

What other symptoms do you have?
__________________
12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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Old 12-11-2014, 01:31 PM #3
Mark in Idaho Mark in Idaho is offline
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The Bay Area Concussion and Brain Injury Program at UCSF appears to be the place to go. Maybe you need to get a doctor to refer you there.

There are lots of chiro neuros in SF. Google will list them.
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Old 12-11-2014, 02:48 PM #4
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Thank you all for the replies.

My symptoms are: brain fog, cannot multi task, overwhelmed/sensory overload, fatigue, loss of appetite, insomnia, difficulty concentrating (causes headaches), mood changes (feeling ok then depressed), can't exercise.

I tried to get into UCSF concussion clinic but it has been difficult and my insurance won't cover as it's at SF General (navigating the ins and outs of insurance has been a nightmare). I never paid attention to my insurance because to be honest, I've never really been injured and I don't really ever get sick.

I'm still hoping there is someone in the Bay Area that can help me with a recommendation on someone they've seen.

Thanks again
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Old 12-11-2014, 03:00 PM #5
lyndianne lyndianne is offline
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Dr. Christopher DeMartini was my chiro neurologist. His wife works with him and does acupuncture. He is in Redwood City. Dr. Sergio Azzolino is also a chiro neurologist in the city.

He is very smart and has all the bells and whistles, but I found him arrogant. Personally I would drive the extra miles to see Dr. DeMartini, but that's me.
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Concussion and whiplash from getting hit by a semi truck. After partial recovery was on the receiving end of 3 concussions in a year. Two were within six weeks of each other. Master's degree teacher now on disability with limited lifestyle, trying to count my blessings
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Eugene, Oregon
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Old 12-11-2014, 03:05 PM #6
lyndianne lyndianne is offline
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Oh I forgot. My Neuro psych was Ashley Cohen in Palo Alto. She was amazing.
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Concussion and whiplash from getting hit by a semi truck. After partial recovery was on the receiving end of 3 concussions in a year. Two were within six weeks of each other. Master's degree teacher now on disability with limited lifestyle, trying to count my blessings
.

Eugene, Oregon
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Old 12-11-2014, 03:15 PM #7
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Thank you so much. I just left a message for the redwood city chiro neurologist. May I ask you if this helped with your PCS? Any other recommendations or people to see around the Bay Area?

Thanks again,

Zack

Quote:
Originally Posted by lyndianne View Post
Oh I forgot. My Neuro psych was Ashley Cohen in Palo Alto. She was amazing.
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Old 12-11-2014, 04:44 PM #8
Mark in Idaho Mark in Idaho is offline
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SFhelp,

Don't expect Blue Cross to pay for the chiro neuro work up. They usually only pay for chiro manipulations.

Will Blue Cross cover the UCSF Concussion clinic as an "out of network" with higher co-pays and deductibles ?

Most of your symptoms just need time and low stress. Pushing through symptoms with a normal work schedule can be a problem.

Check out this post to see if we have missed anything.
http://neurotalk.psychcentral.com/thread181974-11.html
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Old 12-11-2014, 05:01 PM #9
russiarulez russiarulez is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Don't expect Blue Cross to pay for the chiro neuro work up. They usually only pay for chiro manipulations.
I have BC and they don't cover chiropractors, had to pay out of pocket for mine this year.
But I think that depends on the plan your employer participates in.
So far Blue Cross has been the worst insurance I've had.

I had Aetna before and they covered my chiro.
__________________
12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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Old 12-11-2014, 10:03 PM #10
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Quote:
Originally Posted by SFhelp View Post
Hi all, I've been suffering from PCS for 3 months now. I am (was) an extremely active 32 year old male. Prior to my injury I was already eating a diet of no gluten, no dairy, no preservatives and have continued that diet. About 3 months ago I was assaulted and my head (left side) slammed against a door jam by an unknown person. My general dr is of no help, the neurologist I've seen have been no help and trying to get into the ucsf (my insurance is blue shield) has been impossible. I recently flew back to Ohio (where I'm from) to see a concussion specialist there. Even though I told the Dr I do not like taking meds, she prescribed me amantadine. Reluctantly, I have been taking 2 100mgs pills a day. While this has helped with concentration and brain fog, I think it has caused side effects including anxiety, insomnia, and depression. I should also mention that prior and during the meds I have been taking supplements, B vit complex, D3, fish oil, curcumin, ubiquinol w reservatol, cell salts, arnica (occasionally), and creatine. I also eat extremely healthy and have been meditating and seeing a acupuncturist bi-monthly.

After doing lots and lots of research, I have found that I would like to see a vision therapist (VPN)?, chiropractic neurologist, and neuro psychologist, and any other recommendations you guys have.

Does anyone know of any in the Bay Area which are accepting new patients and not on a 4 month wait? I have completely hit a brick wall here. I'm emotionally and physically drained. I know I'll get better, I have to, I just need help finding a path towards that.

Apologies for the long post. Hopefully it makes sense and someone out there can help.

Zack

What are your symptoms besides concentration and brain fog. How long have they been join going on? And have you seen any improvement during this time.
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