Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-01-2015, 12:39 AM #21
Lara Lara is offline
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BTW, I also have migraines. That complicates the issue as a fairly large percentage of people with migraines will have head motion intolerance and episodic vertigo. There are many different types of migraines. Some even come without the actual headache that most people think of when they hear the word migraine.
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Old 03-01-2015, 12:45 AM #22
injuredbutrecoverin injuredbutrecoverin is offline
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interesting: what are the ones without a headache?
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Old 03-01-2015, 01:07 AM #23
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Lots of links and reading sorry.
Just thought a few of them may be helpful for you as you sort out your situation post concussion.

http://en.wikipedia.org/wiki/Acephalgic_migraine
Acephalgic (or silent) Migraine

http://www.braininjuries.org/
Vision Problems Associated with brain injuries.

https://nora.cc/
Neuro-Optometric Rehabilitation Association
Links down the bottom

http://vestibular.org/node/2
Causes of Dizziness, vertigo and disequilibrium

http://vestibular.org/migraine-associated-vertigo-mav
Vestibular Migraine (a.k.a. Migraine Associated Vertigo or MAV)

Vestibular Migraine
http://www.hopkinsmedicine.org/neuro..._migraine.html


UB Researchers find overlap between concussions and neck injury
University of Buffalo - concussions and neck injuries
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Old 03-01-2015, 01:48 AM #24
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ibr,

Have you ever heard of a system called GyroStim ? It has been used for a variety is symptoms related to vestibular issues. Mayo in Scottsdale did some work with one.

There was also a system when they looked at the subjects eyes while moving him into different positions. The idea is it points to the neurological deficit. I wish I could find my reference to the protocol.

I googled and found 'rotary chair testing.' It is also used in videonystagmography or electronystagmography.
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Old 03-01-2015, 01:53 AM #25
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There are migraines that cause visual disturbances without the head ache.
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Old 03-01-2015, 02:02 PM #26
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Mark: I haven't heard of that system though I just googled it now. They did BPPV (sp?) testing on me and I didn't have it. But they haven't done any other type of tests. I still have no clue whether my dizziness symptoms are visual in nature or caused by neck or maybe more serious defect in the inner ear. I really need to find a facility that has the technology to do this. Maybe the VNG system that you mentioned is the right thing for me.

Lara: thanks for the links, good info!
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Old 03-01-2015, 02:15 PM #27
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Mark,

You say that getting 100% better is impossible?! Really? I have not been told this before and have made to believe that I will get 100% better?!
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Old 03-01-2015, 02:59 PM #28
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Quote:
Originally Posted by injuredbutrecoverin View Post
Interesting. What would you suggest as the method to really dig into the problem? Multiple doctors? If so what kinds would you suggest? I found that most just do a cursory look at my neck, maybe feel for range of motion but that's it. Multiple vestibular therapists? Maybe see an ENT?
If there is a possibility of whiplash or neck muscle injury, I would ask about some expert PT before going thru a lot of extra testing. Perhaps upper cervical chiropractic, or an expert multi skilled chiropractor.

Is your neck , shoulders, upper back sore, do you have tight or rock hard muscles or trigger points?
Any of these can cause quite a mix of symptoms and referred pain /headaches.

Highly skilled therapists, chiros should be able to assess & treat , and you may find many sx resolving.

A trigger point info thread -
http://neurotalk.psychcentral.com/thread125577.html
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Old 03-01-2015, 05:02 PM #29
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Dizzy,

Every concussion will leave some residual problems. For the vast majority, these problems WILL NOT interfere with everyday life until there are stressors or another trauma. The concussed brain will be more sensitive to impact after each new trauma. The concussed brain will be more sensitive to chemical stress, alcohol, caffeine, MSG, artificial sweeteners and anything that can upset the delicate chemical balance of the brain. Some think this is due to injury to the blood brain barrier that never quite heals 100% leaving more opportunity for the brain to be chemically stressed.

For those of us with PCS, it suggests the brain is struggling to regain its delicate chemical balance. The vitamin regimen is supposed to help the blood brain barrier strengthen so this balance can be restored.

It is not uncommon for someone who could tolerate a large volume of alcohol to become very sensitive to alcohol after a brain trauma. In many, this sensitivity never goes away.
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Old 03-02-2015, 10:33 PM #30
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Quote:
Originally Posted by injuredbutrecoverin View Post
... when should i stop thinking that things will improve and attempt to create a new life for myself? how long should i be recovering? those two paths seem to be pretty different.
A wise man once told me don't borrow trouble before it gets here. It's a day at a time thing for me. Today I accept I have a lot of PCS stuff going on, and I just keep putting one foot in front of the other.

Really, today is all any of us have, the moment right in front of us.

I have got to keep it simple or I create confusion, anxiety, and more depression than I already have.
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