Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-02-2015, 05:23 PM #1
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Default Better now

I just wanted to say 2 years and 4 months after my injury I am completely better.

I am off all medications now which helped me greatly through the suffering of PCS, but they have served their purpose. I have no symptoms whatsoever.

Like many here, I wondered if I would ever get better, but eventually for the vast majority you do - it just takes a long time for some, so be kind to yourself, rest, and try to be patient.

Take care and I hope you get better soon.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-02-2015, 06:00 PM #2
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Congrats Mouse!
Very happy to hear you are doing so well.
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Old 04-02-2015, 06:14 PM #3
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Thanks for the update.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 04-03-2015, 09:14 AM #4
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Quote:
Originally Posted by mouse1 View Post
I just wanted to say 2 years and 4 months after my injury I am completely better.

I am off all medications now which helped me greatly through the suffering of PCS, but they have served their purpose. I have no symptoms whatsoever.

Like many here, I wondered if I would ever get better, but eventually for the vast majority you do - it just takes a long time for some, so be kind to yourself, rest, and try to be patient.

Take care and I hope you get better soon.

So awesome to hear this .. I had a real time machine day yesterday where I felt like I went backwards 6 months.. I was losing hope and giving into the feel sorry
For myself bs... I try not to think about stuff I Used to do.. But maybe one day it will come together
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PCS since 07/14 Symptoms: Vision(double,tracking, contrasts) Headache, Motion sensitivity, Psych issues, low stress tolerance, minor tinitus, sensitivity to noise and light, sleep issues.
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Old 04-03-2015, 04:04 PM #5
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Yup, I made it back too. I am really close to baseline now (maybe 90-95%…a lot of the time I don't even think about concussions or PCS symptoms). It has taken almost four years to get this far. For some, that might seem a depressingly long time, but for me? I feel extremely grateful. I can honestly say that life is as good as it was before - in some ways it's better.

Thanks for sharing your excellent news.
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Old 04-03-2015, 08:22 PM #6
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Good to hear. I wish you the best .
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Old 04-03-2015, 11:53 PM #7
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Did you guys have tinnitus as well? Has it gotten any better ?
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Old 04-04-2015, 10:30 PM #8
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Wonderful news!!!!! Thanks for sharing. Everyone needs hope. Enjoy your new lease on life and live well and fully!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-05-2015, 08:43 AM #9
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Quote:
Originally Posted by Galaxy1012 View Post
Did you guys have tinnitus as well? Has it gotten any better ?
I had tinnitus (moderate) and yes it did get better. Mostly it just resolved after a year and half or so - maybe a bit longer. I probably still have a bit of residual tinnitus but I rarely notice it.
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Old 04-05-2015, 08:50 AM #10
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Congratulations and thanks for letting us know!

I'm curious, did you ever think you had practically recovered only to relapse a couple of weeks later? (Something I'm going through right now (8 months)).
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