Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-11-2015, 08:07 PM #1
mammajody3 mammajody3 is offline
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mammajody3 mammajody3 is offline
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Hi. 15 months ago I had the lid of a large storage unit come crashing down on my head. At the time, I viewed it as a fairly minor injury - it hurt like hell at first, but once initial pain subsided I felt ok (aside from a rather large bruise on my head). Within 24 hours the head aches started and I have never felt the same. I live with constant headaches, tinnitus, concentration deficits, memory challenges, and generally feel like there is a gap between me and the rest of the world. The mood swings are the toughest thing for me to manage. I can go from high to low in a matter of moments, and it is never clear to me why things change so quickly.

So many aspects of my life have changed but the one I feel most is the loss of feeling a part of a community. In that one moment, I lost my work community, my gym community and I can no longer socialize with friends and family in the same way.

I thought I would joint his forum to hear other stories and remember that I am part of a community of people.
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Lara (05-11-2015)

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Old 05-11-2015, 10:29 PM #2
Lara Lara is offline
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Welcome to NeuroTalk, mammajody.

I'm sorry to read what has happened. Know you're not alone.
Check out some of the information posts at the top of the forum when you are able. There's a wealth of useful info. there.

Check out some of the posts by EsthersDoll regarding hormones and hypopituitarism following TBI. They may be helpful to you considering the mood changes you describe.

Edited to add: I just found a couple myself. I'll post them below. I think all the links are up to date except for one.

http://neurotalk.psychcentral.com/post1050379-63.html
More on using hormones to heal brain injury.

http://neurotalk.psychcentral.com/sh...22#post1102422
Free Webinar- hypothalamic-pituitary dysfunction with head injury

For more of EsthersDoll's helpful posts it's probably easier to use the forum search feature and use keywords such as
endocrine or hormones or pituitary etc.. You can also just click on her username and bring up past posts.

http://neurotalk.psychcentral.com/search.php
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Kitt (05-12-2015)
Old 05-12-2015, 02:34 AM #3
Galaxy1012 Galaxy1012 is offline
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Sorry to hear about your troubles. These problems are common and we all face them daily more or less after our accidents. I am myself 14 months into it and have all the symptoms that you mentioned .

its disheartening to realise that even one year is less for such type of injuries to see the real improvements. But life goes on. Hopefully we will see improvements as the time passes. Just give time some more time and keep positive, easy to say I know. Been there done that.

Meanwhile get your neck checked by a chiropractor. It can be the cause of some of your symptoms. Also try yoga and breathing exercises. I am sure you must already be taking vitamins . Get some help with the night's sleep so that you wake up feeling refreshed . I take ashwagandha herb and it helps a lot with sleep issues. There are some other herbs as well for sleep and anxiety. Good luck
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Old 05-12-2015, 04:40 AM #4
SuperElectric SuperElectric is offline
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Welcome to the group mammajody3, I'm sure you'll find the information and support here most useful. Concussion and PCS affect thousands of people every year, you are definitely not alone and the experiences and advice of members can make a big difference to understanding what you're experiencing.
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Concussion 28-02-2014 head butted a door edge.
.

Symptoms overcome: Nausea, head pressure, debilitating fatigue, jelly legs, raised pulse rate, night sweats, restlessness, depersonalisation, anxiety, neck ache, depression.
Symptoms left: Disturbed sleep, some residual tinnitus.
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Kitt (05-12-2015)
Old 05-12-2015, 08:54 AM #5
Kitt Kitt is offline
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Welcome mammajody3.
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"It is what it is."
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Old 05-12-2015, 09:05 AM #6
RidingRollerCoaster RidingRollerCoaster is offline
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Welcome

Have you searched for other communities to be a part of locally? In the US we have TBI support groups all over that you can join. I have found that to be helpful to me because a lot of my friends and family don't understand what this is like, but the folks in the TBI group do.

Just a suggestion.
I hope things get better for you.
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Injury: March 2014. Hit hard on top of head by heavy metal farm tool. LOC. MRIs and Cat Scans clear. PCS ever since. 33 year old female. Trying to stay positive!

Persisting Problems:
fatigue, dizziness, lightheadedness, vestibular balance and vision problems, vision static, tinnitus, hearing loss, slight sensitivity to noise, sometimes the insomnia comes back, sensitivity to stress, exercise intolerance, emotional problems - But I still have much to be thankful for.
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Old 05-12-2015, 07:19 PM #7
Bud Bud is offline
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Mamma,

Sorry you had to join but since you are here welcome. Been helpful to me to know I am not alone or making things up.

My mood and how I feel Can change rapidly too.

I think you learn new ways to engage with your friends and family all over again....be patient and pay attention to what you can and can't handle.

Best wishes to you.

Bud
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