I'm just sorta curious as to the experience of other PCS folks. Headaches have been the most salient of my symptoms, as I haven't not not had some form of a headache for the past 15 months (except for about an hour maybe 3 weeks post-concussion after I went on a 30 minute walk). They thankfully aren't usually debilitating headaches, but they're always there and are hard to ignore when they start to get worse for whatever reason.

They've developed in complexity over the past 15 months, usually associated with where I've subsequently bumped (or even at times think I've bumped) my head. I've tried advil, tylenol, amitryptiline (didn't stay on it long as it made me feel out of sorts) NUCCA, PT, acupuncture, HBOT, muscle relaxers per neurologist who specializes in cervinogenic headaches, prism glasses, vision therapy, neurofeedback (which might have been helping but I've had a recent setback from another dumb head bump). Nothing has really helped.

The most recent recommendation has been gabapentin, but I've heard conflicting things. As it was explained to me by a PT, my nervous system is on high alert, and is like a motion-sensitive light going off when a leaf moves when it is supposed to be tuned to people-sized objects. Others have said it's likely anxiety, but I've had long periods of time (weeks) where anxiety really hasn't been an issue, and yet I still always have a headache.

Is this something that all PCS sufferers deal with? From what I've read it seems a lot of PCS headaches are transitory, not constant like mine, but I figured I'd poll you all and see if anything has worked for you.