Occupational Therapy is sort of like Physical Therapy except it focuses on the ability to do tasks, like getting up from a chair or the balance issues like you mention. Some PT's do a bit of OT work.

Spaulding Rehab Hospital appears to have all the services you need. They have facilities in various areas of the North Shore. Here is a link to Spaulding : http://spauldingrehab.org/conditions...rehabilitation

It sounds like you also need somebody to help you with anxiety. This is a common struggle for people with balance issues. The claustrophobia feeling may be an anxiety like reaction.

The North Shore is a beautiful area. I used to go fishing on the Merrimack out of Newburyport as a kid.

Thank you for responding.
Yes, the North Shore is very beautiful. I've been to Newburyport a few times, when I was a musician (before concussions and POTS) and played at the Firehouse center.
Yes, I've heard of Spaulding. I guess the main hurdles would be getting to and from the clinic a few times a week, and trying not to be afraid of lots of people moving with heavy equipment in a small space. I suppose that can't be helped. it's funny to think that, if I was able to get to therapy, then I wouldn't need it in the first place

I wonder if you could get approved for a few days of inpatient so you can be fully assessed. Either way, it sounds like you need a serious assessment to differentiate PCS from POTS.

You could call Spaulding and ask to speak to a case manager. A case manager can often help you figure out many of the ancillary issues like transportation.

Do you have good health insurance ? I know Mass requires quite a minimal level of coverage. Would it allow a short inpatient stay ?

I do have MassHealth this year, so that's good.
Tomorrow I start Florinef, a blood volume steroid.
I went to a neurologist in December after my 2nd concussion, and he cleared me for light exercise/PT. He seemed to think POTS was bigger than my concussions. I have a referral for an autonomic specialist in Boston, should I need it, but they mostly just do tests (and some are really scary/uncomfortable, with not much feedback...tilt table, sweat room). There's not much they do for POTS besides florinef/midodrine and lifestyle adjustments.

I suggested vestibular therapy because you asked about proprioception and how to improve your ability to move around in your environment. Proprioception is one of the areas a vestibular therapist can help in. I have no idea how this may or many not affect / be affected by the POTS. I am just giving a suggestion based on what worked for me and helped me stop running into doorways.

That is a good suggestion; thank you.