Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-19-2015, 11:14 AM #1
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Default It's been awhile. Almost back to my former self.

Boy, has it been one hell of a ride.

It's been quite some time since I posted on here. For the people who don't know me, I'm Nick and I suffered a complicated mild traumatic brain injury in 2011. The result left me with a bleeding and bruised brain, and a myriad of debilitating and unexplained symptoms.

The first two and a half years of my "recovery" weren't much of a ....well, recovery. I seemed to decline more and more everyday, no matter how much I rested, or followed the advice of my piers. Any form of stimulation would completely shut my brain down which left me with not much of a social life. I would lock myself in the house for days at a time because the slightest bit of sound or visual stimuli would destroy me, and I would only leave if I absolutely had to (doctor appointments, visits with my kids, etc).

It got to the point where I gave up trying to recover and started trying to actually live my life. It wasn't until then that I started recovering.

People kept telling me to push through - which at the time I thought was horrible advice. But, I did it. I slowly but surely resumed a semi-normal life and 4 years later I got it back. My girlfriend of 5 years and I are getting married, we have 4 beautiful children (2 of which are biologically mine), I taught myself how to program games and apps for Android and iPhone and now own a business which I am CEO and Lead Game/App Developer. 2 years ago (even one year ago), drinking any amount of alcohol would completely destroy me for days. I have absolutely no problem drinking any amount of alcohol now. Going to a club, crowded grocery store, theme park etc. was something I never thought I'd be able to do again. But now it no longer causes me any problems. 4 years ago I wouldn't be able to predict my life would be this way today.

I've got my life back!

I won't say it's perfect (then again who's life is perfect). And like Mark in Idaho has said before, people don't ever 100 percent recover from a brain injury and he's right. I still have residual symptoms left over but I'm okay with that. Because I can actually live now.

Thanks to everyone on this forum for the support over the years; especially to Mark in Idaho who stuck by my side through the whole ordeal. I'll never forget the 911 private messages I would send him in the middle of the night when I thought I was falling apart and just wanted to give up.

Never give up, people. You might not ever fully recover but you can live a semi normal and enjoyable life. You just have to want it. Find work arounds, find what works for you no matter how long it takes to find. Keep searching and keep pushing for normalcy!

God speed on your recoveries!

Nick

P.S. Just to show what I've accomplished post-brain injury, here's the link to one of the Android mobile games I developed on my own(which is free to download/play). Hopefully this will provide you with motivation to follow your dreams, whatever they may be:

Panic Rabbit!
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.

Last edited by SpaceCadet; 06-19-2015 at 02:19 PM. Reason: Added link to one of my post-brain injury accomplishments.
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Aelfaba (06-20-2015), Anja 70 (06-20-2015), Chemar (06-19-2015), Living_Dazed (01-20-2016), MicroMan (09-19-2015), Mystical (09-20-2015), nickd (04-08-2017), NormaW (06-23-2015), seth8a (09-20-2015), SuperElectric (09-25-2015), thorx89 (06-20-2015)

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Old 06-19-2015, 12:00 PM #2
Laupala Laupala is offline
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This is so great to hear. I've seen some of your posts since I've been on here and have thought to myself what a terrible situation. Truly inspiring to hear you've come so far. Thank you for sharing.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 06-19-2015, 02:06 PM #3
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Congrats Nick! What helped you with your recovery?
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Old 06-20-2015, 07:27 AM #4
thorx89 thorx89 is offline
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Thanks a lot, SpaceCadet.

I absolutely needed to hear this.

I've been writing programs too, and I also want to make a business out of it. I've long felt like I was the only one trying to do something like that after an mtbi so I really appreciate you showing up!

Best regards,
Petr
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Old 06-20-2015, 10:35 AM #5
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This post is very timely for me, as I've been struggling for the past few months with increasing difficulty. Thanks a lot for updating us on how you're doing. I've read some of your older posts and it's refreshing to hear that you are recovering.

It gives the hopeless hope. Thanks again for the kindness to come back and share with us your experience.
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Old 06-20-2015, 03:13 PM #6
Galaxy1012 Galaxy1012 is offline
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That's a great post. Thank you for updating us it means a lot. So are you able to drive cars and ride bikes outside now ?
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Old 09-19-2015, 06:52 AM #7
HeadAcheJake HeadAcheJake is offline
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Default In San Diego, Please Help

Hey SpaceCadet, I'm 23 years old and have been living with post concussive symptoms for the last six years. When I am showing improvement, I will hit my head again and will take a turn for the worse. I read that you had contact info of someone in San Diego who was doing the LENS research. I would really appreciate it if you could pass that onto me as I do not know where else to turn.
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Old 09-19-2015, 09:46 AM #8
Mark in Idaho Mark in Idaho is offline
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HeadacheJake,

Welcome to NeuroTalk.

Spacecadet (Nick) is busy with his life and does not follow this forum. He just popped in to give an update. From what I remember, Nick did not notice a real benefit from LENS. Others have tried it and some were actually harmed by it.

Please feel free to introduce yourself and tell us about the symptoms you are struggling with.

Feel free to start your own thread with the New Thread button at the upper left of the main TBI/PCS page.
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