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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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Junior Member
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Hi all,
It's been close to a year since my first (major) injury, about 4 months since the last (smaller), and I'm grateful to have improved a lot in many ways. Of all my symptoms, my problem with sensory overwhelm is the one that has not budged. I suspect it is because it was a pre-existing problem for me - but now it is x20. I would say in a year, this has only improved 5-10%. Most of my cognitive issues have improved 75-80%. Specifically: noise and chaos tolerance. fast and excited conversation, loud and especially chaotic noise, multiple noise and action, cannot think/talk if any other sound or movement is occurring nearby. I shut down, I cry, I feel assaulted, I freeze or just walk out. I have to force myself to have a daily conversation with my husband (who I love and with whom I've always had great open communication) and I often have no desire to talk. after about 20 minutes I'm done. I'm always quieting the kids, leaving the room, yelling at them for whining, hiding in my room - if noise has to be managed my husband does it. Neurofeedback was suggested. Any thoughts? I am skeptical but could be open I suppose. But I"m not going to fork out money for something that doesn't work. Are there any therapies for this? I am doing the supplements. I definitely feel they have helped me sharpen up cognitively. I don't think they had any impact on this. I can/do tolerate the new me in many ways. This issue continues to be very hard and I am not seeing any movement forward. My relationship with my children, loving husband, friends, and the world is dramatically changed. I feel broken in this regard, even though my brain is working more normally in terms of thinking clearly. Thanks for any suggestions. Julie
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About me: Married 45yo mother of two girls. In July 2014, I hit my head on the side of the pool; since then I've had 3 lesser concussions, one of which was due to MVA. For the 5-10 years prior to that I’ve had what I now realize were possibly 20+ undiagnosed concussions or sub-concussions. Likely most of these result from Duane's Syndrome, for which I now have prism glasses. Have successfully done vestibular therapy and plan to start vision therapy. Current companions: Significant depression, anxiety, hyperacusis, difficulty with verbal expression (recall & word mixups), mild spacial/vestibular issues. Feelings of disconnect in relationships. |
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