Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-29-2015, 09:59 PM #1
injuredbutrecoverin injuredbutrecoverin is offline
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Default ghost in my brain rehab

is anyone thinking of trying out the rehab that clark elliott went through? specifically with those folks in IL?

i can't figure out if this is a scam or not... it almost looks too good to be true.
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Old 07-30-2015, 07:34 PM #2
Laupala Laupala is offline
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Quote:
Originally Posted by injuredbutrecoverin View Post
is anyone thinking of trying out the rehab that clark elliott went through? specifically with those folks in IL?

i can't figure out if this is a scam or not... it almost looks too good to be true.
If I lived in Illinois I'd definitely give them a call, I certainly don't think it's a scam. In principle Dr. Zelinsky should be similar to any other behavioral optometrist. Although, I've seen two of these specialists and neither came anywhere close to the level of detailed diagnostic tests that were described in the book. It sounds like Dr. Zelinsky is just an outstanding doctor whose attention to detail and skill set were just what Clark Elliot needed to jumpstart his recovery. I'm not sure everyone here would benefit as much as he did, it seems some things work for some and not for others.

As far as the brain puzzles he did, I'm not sure. She has a website http://www.designsforstrongminds.com/
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 07-30-2015, 09:48 PM #3
injuredbutrecoverin injuredbutrecoverin is offline
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it doesn't bother you that (other than this guy's account) there is no scientific evidence to back any of this up? i took a look at the web-site and the peer reviewed articles that are posted.. they have no results in them. i would imagine that if someone had actually developed a successful treatment for TBI then it would be run through real clinical trials and published in the top journals. seems odd that it would be relegated to some small clinic in IL.

maybe i'm completely wrong.
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Old 07-31-2015, 10:31 AM #4
Laupala Laupala is offline
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I don't know where you were looking, but this page https://nora.cc/member-resources/nor...es-on-nor.html has some 700 articles published in peer-reviewed journals. Obviously not all peer-reviewed articles are publishing results of actual experiments, but just searching a few of them (you need access to a university's credentials unfortunately to access most peer-reviewed literature, unless it's open-access) I found many that published actual results related to the subject matter.

Unfortunately large scale clinical trials like that take a lot of money, and there just hasn't been an emphasis on funding research on TBI treatment until relatively recently. I also doubt that every TBI patient that Dr. Zelinsky sees experiences the dramatic improvement that Clark Elliott did. Every concussion/TBI is different, as we hear so much on this site. Depending on the specifics of what's injured, some people probably respond really well to treatment by someone like Dr. Zelinsky, while the nature of others' injuries might be such that it isn't helpful. From a patients perspective, all we can do is try.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 07-31-2015, 11:55 AM #5
injuredbutrecoverin injuredbutrecoverin is offline
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interesting - thanks for the link, will take a look at these. i wonder why this hasn't come up with the myriad of doctors i have seen already. certainly sounds promising.

i wouldn't mind trying but the cost of the therapy would be something on the order of 10k.. not cheap for something which may not help (and they don't take insurance).
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