Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-16-2015, 09:31 PM #1
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Brainstemmed Brainstemmed is offline
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Join Date: Nov 2013
Posts: 39
10 yr Member
Brainstemmed Brainstemmed is offline
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Brainstemmed's Avatar
 
Join Date: Nov 2013
Posts: 39
10 yr Member
Default colectomy surgery soon and petrified

i am petrified.

i am scheduled to have a colectomy mid-October.

i had a VERY BAD reaction to anesthesia last summer, and that was anesthesia-lite...the kind you would use for a colonoscopy which most people can tolerate quite well...

this is full blown, general anesthesia...

as if that is not enough, this major surgery is excruciating with a long recovery for healthy people.

my head has not stopped hurting in 2+ years since i was hurt, and the anesthesia given to me made me worse overall and i am not even close to feeling the same since.

i have no choice. i have been hospitalized twice with severe complicated diverticulitis and i am lucky to have avoided emergency surgery...at least i get two months to worry about it...

has anyone else had a major surgery after mild traumatic brain injury with serious migraine problems?

i cannot imagine what my dysfunctional brain will be like when this is done.

2 neuropsych tests shows >1% percentile in cognitive processing speed and in memory deficits...

i have bilateral occiputal neuralgia and worsening trigeminal nerve pain...nerve ablations have helped recently, but they wear off eventually...

my eyes hurt when i move them and each day i wake up with a headache that only gets worse...

on top of that, i may need yet another surgery to decompress nerves or for a rhyzotomy or four...

there is even more to it all than just this...what a mess...

how am i going to make it through this?

oh God, help me please.
__________________
Background:

52 year old with 25+ years of problems associated with Fibromyalgia...

What happened:

while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.

Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...

unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.

i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...


Current Meds:


10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..

legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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