I have an appt. on Monday at John Hopkins. I'm having a very hard time
articulating my symptoms that are lingering. One is a feeling of vibrations in my head when I'm walking or upright. The closest thing I can describe it to would be sort of like a car going over a
road that's having road work but not done. Not bumpy but more like those lanes in the road that are built so when you drive on them you won't fall asleep, there is something in the pavement that causes vibrations and noise?? Anyway, it's just sort of an even vibration feeling in my head. It often happens at the end of day but sometimes I awake with it.
I am constantly wrapping my hands around my head and pressing down as if this will keep it secure or like I a have a screw loose in my head and this somewhat makes it feel a bit more normal. Sometimes I wrap my fingers around my neck and hold them there and this seems to make it feel more secure and less vibration.

How am I going to describe these things at my appt. Monday? So far, my efforts to explain this symptom to my primary doctor and a concussion clinic went ignored. Maybe because my symptom is so unclear. Any thoughts?

Is it Tinnitus?

No it's not tinnitus. I have that as well but this is different. I hate having this concussion! If I can't find a good doc at John Hopkins I have no where else to go.So far, I feel like no one has given me any good advice or help w/symptoms. This feeling in my head is like a whirring sensation, very hard to describe.

I think a good dr would ask you questions to help narrow down what you are trying to describe to them..so they can understand it a bit..

Have you ever started off by saying it is very hard to describe the odd sensation you are feeling in your head? Then give a brief description?
So maybe they will take a cue and ask questions?

I'm assuming you already had some basic testing & CT and /or MRI imaging , to make sure no other issues are overlooked.