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I hear you.
The things that helps along the way: (1) prayers/blessings to heal from spiritual leaders and community (2) attitude - manage your anxiety (3) friends and family (4) medications (from a psychiatrist) (5) therapy (from a social worker/psychologist) (6) vitamins, manuka honey, VSL#3 (probiotics), healthy diet Stay strong! Hang in there! |
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Look around, most TBI members have very few posts. The vast majority are "members" or "junior members." "Senior members" are rare. Designations above that, almost unheard of. When I look at the big picture, I think it's actually quite encouraging. I do wish more people would check back in and report their success stories. When you recover, I hope you will do that. However, I do understand that, for those returned to health, NT has served its purpose and they have gotten back to their lives. Yeah! Those of us with staying power are the exceptions because we've had exceptional injuries. Some have suffered multiple impacts and/or severe head trauma. Others got their TBI in MVAs, sustaining several other injuries (spinal cord damage, lost limbs, etc...) that have left them with chronic issues with mobility, pain and emotional trauma. |
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Yeah, I am still disabled and, barring a medical miracle, always will be. However, when I compare my initial prognosis to where I am now, I think, "WOW!" If I can do it, anybody can. |
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Why do you think all brain injuries are permanent? What about people that say they feel they have recovered fully from PCS? And why couldn't the brain heal fully if you take supplements, sleep well and exercise? |
The brain is not like an injured muscle. It does not regrow and replace cells like the rest of the body does. It can't because it needs to keep those cells because they have information stored in them. So, those cells need to heal. Some do but some don't. Slowly, some new cells grow but not to replace the injured cells. Unfortunately, the axons and myelin sheath between cells do not heal very well. They can function is a weakened state but not at the same level. This leaves the brain in a weakened state and more susceptible to dysfunction with the next concussion. This is why lowering stress is important.
But, permanent injury does not mean permanent symptoms or dysfunction. The brain is very good at adapting to injury and finding new pathways to make up for weakened pathways. It takes effort and many repetitions to help the brain establish these new pathways. It takes discipline to help the brain recover. |
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When I was injured, I beat the odds, just to survive. Then, the neurologist told my husband I was a write-off. We just refused to accept that and went looking for therapists willing to help me. I had to work my butt off, but I have come a long, long way. We all can!:grouphug: |
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"Patient shows significant difficulties with visuospatial learning and recall, as well as mental flexibility and multitasking. He displays weaknesses in aspects of executive system functioning (retrieval of learned information, mental flexibility, abstract reasoning, problem solving, and verbal fluency).” After three additional months of outpatient therapy, a second NPA said in part: “On examination, the patient demonstrated intact cognition in all domains assessed including learning and memory, attention, processing speed, language skills and executive functions. He has shown an excellent recovery from his severe injury only five months ago. From a cognitive standpoint there are no concerns with respect to the patient returning to work full time or returning to driving” Healing can and does happen. |
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Can you please share with us the things you did in order to recover so well from your injury? Did it just happen spontaneously, or you got a certain treatment that helped you recover more efficiently? |
ProAgonist,
I bet that if you were assessed with an NPA, you would show to be as capable as Lightrail. The therapies he underwent were to get him from a seriously dysfunctional state to a highly functional state. You were never in a seriously dysfunctional state. You were mildly effected by your concussion. Your OCD, anxiety and such causes you to overstate these minor struggles. Lightrail is not back to 100% of what he was prior to his injury. But, that does not matter. He is able to return to a full and functional life. The little setbacks he may have from time to time don't reduce his ability to live his life because he does not let them. |
I've have overcome what felt like insurmountable PCS. You, too, will recover. You are not cognitively limited forever. The brain is complex and far from being comprehensively understood; making assumptions about its regenerative capabilities are, at this time, sorely ungrounded and subjective. All this to say, keep a positive mindset. Regression to PCS does happen occasionally, but one day, you will awaken to a clear mind. Take care. Don't lose hope.
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