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Old 09-18-2015, 11:21 PM #1
Mark in Idaho Mark in Idaho is offline
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With the frequency you have them on your bad days, I would be bet that a good EEG protocol, possibly sleep deprived, would show what is going on. Hopefully, the neuro will get some good diagnostics ordered.
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Old 09-19-2015, 12:14 AM #2
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Originally Posted by Mark in Idaho View Post
With the frequency you have them on your bad days, I would be bet that a good EEG protocol, possibly sleep deprived, would show what is going on. Hopefully, the neuro will get some good diagnostics ordered.
Yes, definitely. Given the frequency of your seizures, I can't imagine how you're managing. I hope you get a diagnosis and a treatment plan that helps get things under control.
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Old 09-19-2015, 06:13 PM #3
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The seizures, for me are usually a fraction of a second. I have learned some great coping skills. I am great at catching back up in conversations. When I was younger, I didn't talk much unless it was people who knew me.

Most of my seizures go unnoticed by me and those who don't know me very well. It is the longer ones that are noticeable unless you know what to look for.
Most tired days, I just didn't go much of anywhere and didn't go far. They also didn't happen when I was driving. My licence has not been taken away from me because I caught it before it became an issue. What brought to light my problems was starting school after having my life fall apart. The program I am in is high stress and the head of the department had me taking an insane workload. I was taking the 3 hardest classes all at the same time. I talked to other professors and they were amazed that I was getting the grades that I was getting because it would have been impossible for most students.
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Old 09-19-2015, 07:39 PM #4
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I'm confused. If they last for less than a second, how much can be missed ? I wonder if you are instead having momentary lapses of memory where you are not having an absence seizure but rather, losing track of what was happening from a memory perspective. I have memory struggles and can easily not know what just happened.

What do other people observe when these events happen ?

If you memory is not storing information properly (as is my problem), it can appear to be a loss of awareness.

I do very little driving due to this. I can easily lose track of vehicles around me. If I am driving a vehicle with lots of feedback, it helps to keep my attention to the task. As I have said to some, I can forget I am driving.

The fact you can succeed in school is a tribute to your abilities and determination.
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Old 09-20-2015, 01:41 AM #5
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It is amazing how much can be missed. Especially, if I am having a series of them. I do have longer ones where I can miss quite a bit of what is being said. I think that my mind is just doing a normal wandering thing but I miss everything and if I am thinking of anything, my mind goes there, while my body is still in the middle of the conversation (or car).

As for the diagnostics, I have had an initial assessment by my neurologist. I have one diagnosis of ADD. I have also had a sleep deprivation test, which I will get the results of on Friday. A week from Monday, the 28th, I am having an MRI.

My family has always thought that I was flaky but they are now realizing that I am quite intelligent and my issues have been holding me back. It wasn't understood when I was going to school to be both gifted and special ed. They didn't know what to do with me so it was remedial classes for me. I was beyond bored.
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Old 09-20-2015, 09:38 AM #6
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You can also have a mind that is easily distracted. It is similar to ADD but not the same. The injured brain can struggle to filter out background issues/stimulation. This can cause the mind to quickly get off on a tangent. One word in a conversation can redirect the mind or a visual stimuli can do the same. One can be in the middle of a conversation and see something across the room and start focusing on that and lose track of the conversation.

My neuro said it was different from ADD in how the brain processes thought.

Your description sure sounds like what I experience.

Was the sleep deprivation test an EEG with a sleep cycle that you had to stay awake all the night before ? Or is it in a sleep lab for a sleeping disorder ?
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Old 09-20-2015, 04:17 PM #7
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I had the one where you stay up all night, they attach wires to your head, flash lights, ask questions, and have you rest for 20 minutes.
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Old 09-21-2015, 11:57 AM #8
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Quote:
Originally Posted by Mark in Idaho View Post
You can also have a mind that is easily distracted. It is similar to ADD but not the same. The injured brain can struggle to filter out background issues/stimulation. This can cause the mind to quickly get off on a tangent. One word in a conversation can redirect the mind or a visual stimuli can do the same. One can be in the middle of a conversation and see something across the room and start focusing on that and lose track of the conversation.

My neuro said it was different from ADD in how the brain processes thought.

Your description sure sounds like what I experience.

Was the sleep deprivation test an EEG with a sleep cycle that you had to stay awake all the night before ? Or is it in a sleep lab for a sleeping disorder ?
Yes, that describes me, to a tee, after my TBI. If a fly buzzed by, for instance, I'd, unknowingly, insert "fly" into my sentence. Attention Processing Training (APT) really helped me regain some capacity to focus.
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