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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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09-18-2015, 12:19 AM | #1 | ||
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Legendary
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Are you a victim of or a victor over PCS ?
Hopefully, people can be inspired to see how others have been victors over the PCS symptoms that are impacting us. This not a thread about recovering from symptoms but rather how people have been able to move forward despite ongoing symptoms. Maybe how people have learned work-arounds, or to moderate their daily activities, etc. |
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"Thanks for this!" says: |
09-18-2015, 03:40 AM | #2 | ||
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Junior Member
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I had a lot of problems cycling, because I could not tolerate the bumps on the road.
I found out that it is possible to buy a shock absorbing bicycle rod and a seat with extra absorption, which made it much more tolerable to cycle. Maybe some of you can use this. |
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"Thanks for this!" says: | Anja 70 (09-18-2015) |
09-19-2015, 05:25 AM | #3 | ||
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It's absolutely to move forward in life despite ongoing symptoms. Even though it's been extraordinarily difficult for me at times, in the past year I've managed to get over a major breakup, build a support system of people who care about me and understand what I'm going through, and apply for (and win) a prestigious scholarship to go abroad. Of course there are setbacks but each time they come around I feel more prepared to accept them and cope with them. Each time things take a turn for the worse is an opportunity to learn about yourself and modify your life in a positive way.
Some modifications that have helped me are: -turning down electronic screen brightness on all devices -taking frequent breaks when reading -meditation, yoga and cognitive behavioral therapy for anxiety (radical acceptance has been particularly helpful) -switching to low-impact exercise -eliminating alcohol -spending less time in loud and/or stressful spaces -getting a planner and writing things down immediately (otherwise I will definitely forget them) -most importantly, being patient and forgiving of myself and my symptoms |
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"Thanks for this!" says: | Estreetfan (09-20-2015), Mark in Idaho (09-20-2015) |
09-19-2015, 05:39 AM | #4 | ||
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I'm a survivor
I could not follow conversation or questions, could not tolerate noise and visual stimulus, my memory was very badly affected and I struggled following processes like making a cup of tea. Fast forward ten + years I'm working part time. I still get fatigue and do not no my limits. I can do phone calls and watch TV and go out for a meal bug I know I need to factor in a rest period. My memory is still affected but I manage it more effectively and use reminders, calendars and planners. Forward planning still needs work, but I recognise this now. I don't identify myself by rushing in saying I used to be...... I have accepted my TBI and I work with what I have on each day. I learn to say no. I can accept help now instead of insisting I do everything to prove I can still do it. I can bang my head on balls, furniture, toys etc by accident and not panic! I think after the initial anger and frustration which lasted years, I am now more relaxed but if something annoys me or someone says something I can't hold back and what ever is on my mind falls out of my mouth! I can come on this site and offer support |
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09-19-2015, 11:50 AM | #5 | ||
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I pray a lot more than before which really helps me recognize anxious thoughts and think of other people who have it worse than me.
I am learning to sit still. How to ask for help when needed. I keep working at finding ways to stay active for exercise. If an activity proves to be to much I wait awhile but try again. These have been a huge part of me starting life over. Bud |
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"Thanks for this!" says: | Mark in Idaho (09-20-2015), pugmug (09-21-2015) |
09-20-2015, 09:43 AM | #6 | ||
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I am determined to live the best life I can within my current limitations (mostlly fatigue, vision and balance issues and sensory overload) I have more ear protectors and earplugs than I do earrings and I read with my ears now via podcasts and audiobooks.
I conquered my anxiety by refusing to just lie there and let it get the best of me. When I was anxious I dusted, decluttered (alot of my old clothes furniture and books are currently residing in other peoples homes) Also spent as much time outside as I could manage - frequent very short walks til I was strong enough to get back to yoga and the pool and from there I have been working towards increasing my physical fitness ever since. I find mindfulness meditation very restorative and also just being with my pets, found a good therapist too and she has taught me to see how changes in my dog's behavior are an early warning sign of anxiety sneaking up on me. I feel as if in the last 3 years I have adapted my home enviornment and my lifestyle pretty well and moving forward I am going to work on my social life. Started by tackling air travel so I can get home to see my family more and after that who knows what the future will bring. |
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"Thanks for this!" says: | Mark in Idaho (09-20-2015) |
09-29-2015, 12:38 PM | #7 | ||
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Legendary
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Just a note to top post this thread. There are some good comments about getting on with life here.
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