Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-14-2015, 02:45 PM #11
hermanator90 hermanator90 is offline
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Mark,

All of that makes sense. I just want to thank you for being so proactive and thorough in responding. For someone like myself who has spent the last few months just looking for someone to speak to who would understand what I'm going through, this forum is very very helpful.

Thanks!


Quote:
Originally Posted by Mark in Idaho View Post
hermanator90,

It is problematic to try to compare recovery processes and outcomes. There is a saying. If you have seen one brain injury, you have seen ONE brain injury.

It helps to try what others have tried but try without expecting the same result. It is more important to figure out how your brain is responding to various activities. If face to face talk is a struggle, email can be helpful at maintaining those connections.

It will help to find an activity you brain will tolerate. You need to stimulate good brain blood flow with causing brain chaos. Manual activities are often good. The struggling brain can usually handle manual activities because the hands can not work faster than the struggling brain can process. Craft projects, learning to do card tricks, playing solitaire with a real deck of cards, working in the yard/garden, etc. can give you a sense of moving forward and keep you from going boredom crazy.

Recovery is almost always a roller coaster ride. Some times, one can identify the triggers of the down cycles. Sometimes, they just happen. Sleep can make a big difference. Keeping good sleep hygiene with no excessive napping during the day that interrupts proper long sleep at night is good.

But, if an activity causes you to feel sleepy, a short nap can be helpful. I spent a lot of time in a recliner where I could nod off if I felt sleepy. I use a laptop and do online jigsaw puzzles and things like that. If my eyes feel tired, I just put my head back and doze off. My wife says she can tell when i am getting a good nap. After 20 minutes, I spontaneously wake and am back at it. I get some of my best sleep in my recliner because the sleep is demand oriented. By that I mean, I sleep when my brain says to sleep.

Early in my recovery, I would be able to do 10 to 20 minute activities. I had a rotation of things to do. If I was at my desk and started to struggle to read a line of text on the computer screen, I would stop and go downstairs to my recliner and watch some Discovery Channel. I'd might take the dogs for a walk and start the rotation over again.

So, try to find small tasks and activities to occupy your time with. The mild stimulation is good.
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Old 10-14-2015, 06:09 PM #12
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Quote:
Originally Posted by hermanator90 View Post
Nick,

Thanks for the note! Hope you are doing better now. I have a couple questions for you -

1. Did you experience day to day recovery after your symptoms returned? Because I used to experience day to day improvement before that last drink in July. Now things just seem stagnant, and that is what is really scary. They've been stagnant for the last two weeks.

2. When you were recovering from symptoms did you have a lot of setbacks? When I was initially getting better I would slowly get better but not slip back from a recovery standpoint barring additional stimulus (usually a long day of work or alcohol). About two weeks ago I felt clearer than I had felt in a long time but the moment I had a conversation with someone I felt myself slip out and exhaust into chaos again.

Hey,

I agree with Mark its tough to compare other people's recoveries to your own considering all of my friends and teammates (I played college soccer) would get concussions and then feel fine a few weeks later. Nothing about my recovery has ever been day to day. I find it useless to stress over why I am feeling good one day and why I am not feeling good another day. I have had good days where I had a stressful day at work and I got through it just fine and came home from work with plenty of energy and in a good mood. I have had other days where I got a lot of sleep didn't do anything stressful all day and felt pretty bad. So I have given up trying to fuss and analyze every last symptom or feeling that i have and figuring out where it came from or why its not going away. The key for me is just acceptance, keeping stress to a minimum, patience, and knowing that things will eventually get better!

Things have been stagnant for a while now since my setback and I am trying to be patient and take care of myself as best I can because thats all that is really in my control.

Hope that helps somehow.
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Old 10-21-2015, 08:29 PM #13
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I am sorry to keep belaboring about myself, but been resting for about 40 days now without any improvement at all. It's very difficult because I am completely unable to connect with people. Not just strangers, even friends and family.

Just to quell my anxiety, I am wondering if anyone in the past couple weeks has come across anything that might explain why I have been feeling this way. To reiterate, my concussion was made much much worse by repeated alcohol use. I literally felt all the clarity and improvement disappear the moment I completed my last alcoholic drink back in July now. And things just have not gotten better.

I began a vitamin regimen in early October, but other than that just taking a lot of rest. Would love to know any additional information on effect of alcohol on a brain recovering from concussion that might explain why the last few months have been so stagnant.

Thanks a lot!
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Old 10-21-2015, 09:03 PM #14
Mark in Idaho Mark in Idaho is offline
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It is a losing game to try to point to a reason for prolonged concussion symptoms. Every concussion is different. Every response to alcohol is different. Prior alcohol binges can create a brain that is very sensitive to alcohol.

It might help to engage in some low stress activities that encourage good brain blood flow. Light exercise that does not cause symptoms may help.
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Old 10-21-2015, 09:23 PM #15
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Thanks Mark. I guess I am most worried about the permanence of this. You said you haven't come across anything where alcohol use caused permanent damage after a concussion, correct?

I apologize for kinda having a panic attack all over this thread. It just gets overwhelming to be like this.

Quote:
Originally Posted by Mark in Idaho View Post
It is a losing game to try to point to a reason for prolonged concussion symptoms. Every concussion is different. Every response to alcohol is different. Prior alcohol binges can create a brain that is very sensitive to alcohol.

It might help to engage in some low stress activities that encourage good brain blood flow. Light exercise that does not cause symptoms may help.
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Old 10-21-2015, 10:32 PM #16
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Quote:
Originally Posted by hermanator90 View Post
Thanks Mark. I guess I am most worried about the permanence of this. You said you haven't come across anything where alcohol use caused permanent damage after a concussion, correct?

I apologize for kinda having a panic attack all over this thread. It just gets overwhelming to be like this.


One thing I've noticed is that there are different phases or stages of healing. Some happen quickly and some take a lot longer to get through. Thats why to some it may be described as moving through a plateau stage of healing and not seeing any improvement. Healing does not happen overnight and in day to day increments. One thing I can say for certain is that all of this worry and stress is not only going to make your symptoms worse but they will be magnified psychologically because of how strongly you are focusing and worrying about them. It's a hard thing to accept that recovery may take a long time for sure. Try writing a concussion journal. You can keep track of your headache score, screen usage, how you slept, and write down all of your frustrations and worries. The act of doing this can actually clarify things for you and sort out stresses and worries.

Otherwise all you can do is take care of yourself. Avoid the obvious activities, make sure you're getting enough sleep, vitamins/supplements, low stress, and hydrate hydrate hydrate. Otherwise you could maybe look into seeing a cranial sacral therapist. That's one thing that has helped me.
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Old 10-21-2015, 10:57 PM #17
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Alcohol can and does cause permanent damage. I just have not seen anything that says alcohol makes concussion damage permanent. I was told by my neuro at 16 years old to stay away from alcohol because its effect would be much worse with a concussion injury. Alcohol is a neurotoxin. It will likely delay your recovery.

I've heard it stated that getting blotto drunk has a similar effect on your brain as getting a concussion.

But, what ever you did, you cannot change it. You can only effect your future behavior. Learn from your mistakes and move forward with your life. Anxiety will only make you symptoms worse.
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Old 10-21-2015, 11:15 PM #18
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Thanks a lot Nick and Mark. Really really appreciate your responses.

Mark, to your point I did mean if alcohol makes concussion damage permanent. So thanks for the clarification.

Nick, I plan on beginning a journal. Definitely think that's solid advice.
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Old 10-22-2015, 10:06 PM #19
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Nick- What symptoms did the cranial sacral therapist help with? How did you go about finding one.

And, it's strange literally my only symptom is the inability to think and interact like my usual self. It absolutely occurred immediately after drinking repeatedly while concussed. Everything else is just as before i.e. no additional light/sound sensitivity, nausea etc. Should I still try to avoid using the screen for a long time?? I don't feel any fatigue from using the screen or watching tv.

(That's why I am curious because this almost seems different than a lot of other people's injuries. Its as if what made me myself, that thinking, it is shredded and blocked. Every time I try to think I just feel like the head blocks it off and I am in a dreamy fog and unable to concentrate enough to think.)
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Old 10-22-2015, 11:10 PM #20
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Most cranial sacral therapy is done by an osteopath or Doctor of Osteopathy. Some massage therapists say they practice CST.

But, CST has two parts. Cranial therapy and spinal therapy. Spinal manipulation/therapy by a CST can be useful. CST's claim to be able to read and adjust/move the cranial plates. But, there is no evidence that cranial work has any medical basis. When studied with multiple patients diagnosed by multiple CST's, there was no common diagnosis. Some on NT have tried it and ended up with headaches.
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