Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-31-2015, 06:37 PM #1
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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$500 deposit is just a small part of the fee. Don't let them force you into a financial corner. Medical expenses are the leading cause of bankruptcies in the US.
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Old 10-31-2015, 08:43 PM #2
hermanator90 hermanator90 is offline
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I definitely understand that Mark. They are booked up for two months, and the $500 fee is to hold a spot for the eventual treatment that will cost $7900. If i do go forward with the treatment, the $500 fee can be used as part of the $7900 total cost. If two months later I were to realize that I am actually improving and don't need the treatment I would lose that $500.

I definitely understand the high cost of this. I am going to wait and try to see if there is any improvement doing this by myself.

Since October 1st like I said earlier I have had absolutely zero improvement. I am going to wait till November to see if I even want to place that $500 deposit for a treatment. I feel if after two months there is no improvement (while in the past in my recovery there had been improvements and relapses at least every month), then I have to try other treatments.

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$500 deposit is just a small part of the fee. Don't let them force you into a financial corner. Medical expenses are the leading cause of bankruptcies in the US.
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Old 10-31-2015, 09:21 PM #3
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Wow, they have a two month waiting list but still charge a $500 non-refundable fee to get on the list. I bet they keep a lot of those $500 fees.

Personally, I'd would be very hesitant to do business with a company with a fee structure like that. I'm sure they fill every spot that becomes available when a client cancels so they do not lose any revenue.

What symptoms are you still struggling with ?

Have you sought help from a NeuroPsychologist ? They can assess your thinking skills. They are often covered by insurance so the financial risk is much less that Cog RX.

Did most of your symptoms start to manifest just as school finished ? Your timeline sounds like that may be the case.
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Old 11-01-2015, 09:36 AM #4
hermanator90 hermanator90 is offline
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The only symptom I continue to struggle with is my inability to connect with people. My emotional connection with people is completely lost, as is my ability to generate emotionally connected thoughts.

The best way I can explain this is my inability to maintain or make genuine eye contact with anyone, not just strangers, even my mom, my sister, my best friend. I feel intense pressure in my head and headaches if I try to think and use the normal thinking I would have used in the past to connect. In essence, when I sitting alone, I still cannot think and therefore make eye contact with myself in the mirror.

In the moments that I have felt clarity since my initial injury, this pressure and blockage in my head would completely disappear, while I would continue to feel fatigued. All my symptoms came about when I drank alcohol. I am 24, was still working when I last drank, which was Friday July 17, 2015.

The next week when I returned to work, I couldn't interact with colleagues I had become close friends with over the last 5 months.

My other cognitive skills like analytical thinking, visual processing are not hurt. I do think memory is poor because I am forgetting names a lot. But, that I am not as sure of.

Quote:
Originally Posted by Mark in Idaho View Post
Wow, they have a two month waiting list but still charge a $500 non-refundable fee to get on the list. I bet they keep a lot of those $500 fees.

Personally, I'd would be very hesitant to do business with a company with a fee structure like that. I'm sure they fill every spot that becomes available when a client cancels so they do not lose any revenue.

What symptoms are you still struggling with ?

Have you sought help from a NeuroPsychologist ? They can assess your thinking skills. They are often covered by insurance so the financial risk is much less that Cog RX.

Did most of your symptoms start to manifest just as school finished ? Your timeline sounds like that may be the case.
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Old 11-01-2015, 10:36 AM #5
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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What you are describing sounds like 'flat affect.' I think a Neuro Psych Assessment would be worthwhile. It will be able to differentiate cognitive symptoms from emotional/psychological symptoms. I still think you have a high likelihood of depression. You sound like me when I had my depressive episode 32 years ago. I felt like a zombie trying to connect with others.
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Old 11-01-2015, 10:13 PM #6
hermanator90 hermanator90 is offline
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I had an appointment with a neuropsychiatrist today. The doc does not think this is depression, and referred me to Dr. Cantu's concussion program at Boston University. I will be looking to see if I can get treatment there.

I am a 100% certain this is not depression or anxiety. The excruciating headaches I experience when trying to unsuccessfully think are proof of that. Furthermore, the doctor also had an explanation for the feeling of fogginess I felt that sets in on the very few days that I do feel clear. I explained how speaking and thinking was exhausting on those days even though I felt capable of it, and he noted that it's because I need the blood to flow through the brain faster than it is capable of. I will have to listen to my brain and body and not over-exert on those days. But, since such a recovery day hasn't appeared since October 1st, I need to get looked at professionally.

I will keep people posted on updates here. Thanks again for your help so far everyone, and especially Mark.

Quote:
Originally Posted by Mark in Idaho View Post
What you are describing sounds like 'flat affect.' I think a Neuro Psych Assessment would be worthwhile. It will be able to differentiate cognitive symptoms from emotional/psychological symptoms. I still think you have a high likelihood of depression. You sound like me when I had my depressive episode 32 years ago. I felt like a zombie trying to connect with others.
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Old 11-01-2015, 10:45 PM #7
Mark in Idaho Mark in Idaho is offline
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I have great respect for Dr Robert Cantu. He has been speaking about concussion for 30 years with nobody listening until 10 years ago. I have his book on my shelf. His office in Concord only take sports concussion patients from the last I heard. Hopefully, the Boston University clinic is open to others.

How much activity are you taking on each day ? What kind of work are you doing ?

What are you trying to do when you 'unsuccessfully think' ?
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