I were having those movements when I was on the EEG. No, the doctor seemed quick to get me out. I brought up that I was using an illicit substance to help quell the episodes (I think honesty is the best policy). She was not impressed and told me it should not and would not work. She kept saying that they weren't seizures and the ways I was moving (They video taped me) was not indicative of seizures, epilepsy, or brain damage. She didn't give me any information other than that and had me sent out.

Should I go about finding another neurologist?

Well, that's up to you. If they're not "seizures, epilepsy, or brain damage" yet you have all these other symptoms as well as the movements e.g. confusion, memory problems, double vision, going limp and losing strength in your hands, then I'd be looking for another opinion personally.

Please check your Private Messages. I just sent you one.

from the FAQ - about private messaging

I have sent you an e-mail with the link.


On the note of my Uncle, he was just epileptic. Grand mal Seizures. So I guess it being Dystonia from genetics may be off the table.

On the note of it being Tics though, my mom remembered for me that when I was a kid I had to stop taking Adderall because of Tics in my face that began to show up.

Could that mean I might be more susceptible to tics?

Yes, it is possible for people to have a genetic predisposition and the Adderall can either bring them out or exacerbate them. That is not uncommon.

Many little children have tics that are very mild as well and not noticed unless the viewer is accustomed to various tic manifestions.

I've been doing some reading on dystonia and tics. I'm trying to wrap my head around it. I think I've got this right but I'm not sure.

Tics are any kind of involuntary muscle spasm unrelated to seizures and epilepsy.

Dystonia are a group of tics that manifest in a specific way?

Or is it a separate disorder different than tics?

It's all very complicated, but Dystonia is different from tics although there are tics that are called dystonic tics too. Dystonic tics are slower and more contracted tics than simple motor tics.

Leckman and Martino talk about this in one of their books.

Distinguishing Tics from other types of Movements

Have to dash. Will post better info. later if I can.

The episodes haven't gone away with a nights rest. I've got a ride to get a second opinion. Gonna set an appointment in person. Feel's kind of slimy to go in person to try to get a faster booking. I suppose this isn't your typical cold though.



The movements are not worse when I lay down and sleep. They tend to get better. Though they do still happen.



-edit- Oh, hey, look at that. 10 posts.

Have a video. https://www.youtube.com/watch?v=gcni3gCLWVA

Went to the doc's to get an appointment and they sent me straight to the ER thinking I had a stroke. At the ER though the doctor confirmed it was dystonic tics. He thinks it was brought on by coffee I had the previous day.

Is it common for coffee induced episodes to start 6 hours after drinking it and to continue through to the next day?



Anyways I have prednisone and OTC benadryl. Seems to be helping a little bit but not that much.


-edit the benadryl has not helped at all I took a single 25mg dose

wow, so it sounds as if you've got a couple of different things going on at once. All very confusing.

Did the ER Doctor suggest that this was a reaction to coffee?

What about the episodes in July. Did they say dystonic tics, acute dystonic reaction or dystonia?

Maybe some of the other symptoms are unrelated then.

What was the Prednisone prescribed for in the ER? Did they say?

I was under the impression that Benedryl would work really fast if it was going to work. Hopefully you'll notice some difference over the day though.

https://www.dystonia-foundation.org/...n-drug-induced

If I was you I'd not drink any more coffee or any other substances that might possibly be the cause of this type of reaction.