[LadyM]

Hi, my name is Michelle; I am new to this forum, and I guess I am just looking to share our story and maybe get some advice. My fiance hit his head at work about 4 months ago...then again about a month later. We were a bit worried that night (the 2nd time) about him falling asleep because he felt so weird, but all seemed fine the next day. He was working a lot of overtime & basically for the whole month of July...he overdid it, in my opinion. At the beginning of August, he started experiencing some major headaches, nausea, and muscle spasms...and over the next couple of weeks he started forgetting words, not being able to finish sentences, and forgetting things. His muscle spasms were so bad, at times he could barely walk. By the time we saw a neurologist, he basically had 24 hour headaches & nausea, using 2 canes to walk, and I was having to talk for him about 80% of the time.

As you can imagine, this has been very scary for both of us. He has been emotional...I have been extra emotional (I already am)...and stress has not helped either of us. The neurologist prescribed Vayacog to help with his mind. Though it took a few very scary days for his mind to adjust, this stuff is amazing. It is not FDA approved, so insurance won't cover it...and as frugal as I can be, it is worth every penny. His mind is back to full function in a matter of weeks. They tried to put him on Mirapex, but that made him very sick. He is on several medication, but I think we have finally found a good drug concoction for him.

About a month ago, he fell on the concrete outside of his job...ambulance, hospital....sprained hip joint. It seems like every time he starts feeling any better, something happens. Though that was the worst one, he has fallen about 5 times due to his lack of muscle control & coordination.

On Monday, we had a doc appointment & they gave him a shot of something for the pain...his hip & knees always hurt, but he was having additional shoulder pain. I have no idea what they gave him, but I will be finding out. For the first time in months, he is able to walk around for a bit without his cane. The pain is still there...it is just very dulled. I know its not a cure, but even some relief of pain is much appreciated.

The docs are saying he has dystonia...and that may be so, but I really believe these are all symptoms of Post-Concussion Syndrome based on my research.

Now, me. I love this man so very much...I will marry him, but I am so stressed beyond belief. Obviously watching my man struggle to live life has been difficult for me, but on top of that we are in the middle of moving. The medical stuff is so expensive & the money side of this is very hard on me...he has had to miss a lot of work. I think I have had a few small anxiety attacks & maybe even some depression. Over the last week, we have both been more irritable with each other. I am so scared our relationship is going to suffer before he gets better...or I am going to have a breakdown.

I know there are many of you loving wife, fiances, and girlfriends out there who have gone through at least some of this. Any helpful advice or encouraging words are much appreciated. Thanks for listening.