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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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11-27-2015, 03:24 PM
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What do you do when light sensitivity is so bad you can't look at her phone without sunglasses? Or you can't be under the softest lights commercially available are you supposed to just sit in a dark room and wait? I don't know of any activities that I can do to pass the time and I'm just sitting in the depression. Seems like I should stay away from any light because it hurts my eyes.
I haven't been able to watch TV since my last concussion. Do people use sunglasses to use their phone? Is this healthy I don't feel like it could be? How about sunglasses for other activities like reading? What are people's experiences with this or are people using sunglasses to view this website? |
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11-27-2015, 04:20 PM
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I'm really sorry to hear these issues are as intense as ever for you Danny. Do you use Flux on your computer? There's a setting within it called "darkroom" (it's under "color effects") that makes the screen all black and red, perhaps that might help. Also, I've made my iphone black and white, and if I'm particularly sensitive I'll "invert colors" (both are in settings under accessibility), which makes any apps that have white backgrounds much easier to look at (but some apps it makes worse).
I do sometimes use sunglasses for reading, but usually only if I'm in a sunny room. I forget, have you seen a behavioral optometrist? I wonder if syntonics might be helpful, which is a sort of color therapy that some behavioral optometrists do. I just started trying it again, after a probably too brief of stint just before coming back to school off of medical leave. The "guru" of syntonics happens to be in my smallish upstate NY town, so I'm giving it a go. It's supposed to help with visual overstimulation.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better. May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches. June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump. December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self. Trying, but struggling, to believe that I'll get back to my old self, or at least get close. |
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11-27-2015, 04:58 PM
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Legendary
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Danny,
Have you been tested for proper pupilary response ? It should be one of the first tests a doctor does to check for brain injury. I have worn photosensitive glasses since 1971. The newer versions respond very fast. Google "tinted contacts for light sensitive eyes" and you will find lots of help. People use them for migraines and a variety of light sensitive conditions. |
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Light Sensitivity Questions
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