NeuroTalk Support Groups - need reassuring

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- Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)

- - need reassuring (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/232036-reassuring.html)

21mom,

You need to demand an IEP, Individualized Education Plan or 504 plan.

Since this was a school injury, the team should get her to a Neuro Psychologist or Ed Psychologist who can assess her for these issues and set up an 'authorized' set of limitations and accommodations.

As Bud said, you should be screaming mad if you can do it without causing more trouble.

I had a similar problem 45 years ago. Neuro's report, school nurse told the teachers. The teachers gave me no slack. I crashed during tests.

She should have a number of accommodations. No tests or extended testing time. Right to walk from class to class before or after the crowds to avoid the noise and chaos. Note taking help. Tutors. Preferred seating in class (front of the class).

With proper accommodations, she should continue to recover.

My best to you both.

Quote:

Originally Posted by 21mom (Post 1206265)

... she has returned to school and is now regressing. I think it's MOSTLY stress the teachers are putting on her.

Anyone have advice for dealing with schools?
We have a doctors note from her neuro that specifically says she should be exempt from testing, although the teachers don't seem to understand this simple concept. She was "forced" to take a test today which resulted in a severe headache and having to go home at noon.

My daughter was 15 when she had her first concussion and developed PCS. We took our daughter out of school at the neurologist recommendation. We did complete brain rest no tv, phone, reading, thinking nothing that stimulated the brain at all. No physical activity either. She made it up and was in high. You can get homebound instruction and 504 for accommodations, my daughter now has an IEP. The school is not fourth coming about this things at least in my experience. My daughter had a migraine 2 days short of 6 months plus a bunch of other things. My daughter is almost 17 months post concussion and still recovering. The biggest problem I ran into was that because they don't physically see anything wrong with your daughter like a cast they seem to blow it off what they should do. My daughter was told no busy work when she returned to school only test. She had memory problems and is allowed to use open book and open notes. Since your daughter is not in high school I would seriously consider homebound instruction or no school at all. I wish you and your daughter the best.

Carrie