Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 02-22-2016, 05:16 AM #1
metmike07 metmike07 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 27
8 yr Member
metmike07 metmike07 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 27
8 yr Member
Default Lingering PCS and head sensitivity

Hello all, I've been lurking on and off for a while and have decided to post. I've had by my count 5 concussions in my life doing various things. PCS has gotten worse and worse, lasting longer with the last 3 concussions. The last one I hit my head in the shower (closed injury), and have had PCS for the past 6 months. It has been a slow recovery so far, generally slow improvement the whole time with some setbacks.

My problem is that my head is very sensitive to shaking, I've had 5 or 6 setbacks recently in the last couple months from simply shaking my head "no" out of reflex when someone asks me a question. It is normal to be this sensitive? It usually take 1-2 weeks to recover from a setback like this, which brings on the full range of PCS, weakness/fatigue, vision/focus trouble, sound/light sensitivity, headache. The other trigger I've found is vibration, running an orbital sander gave me symptoms, as did a massage device at the chiropractor.

If I'm not having these setbacks, PCS isn't ruling my life anymore. I'm still not ready to do anything really active yet, but it's very discouraging to be getting these symptoms from a head shake so small. My current neuro gave me an very unsatisfactory answer (tearing nerve tissue in my neck), which doesn't make sense with the vibration aspect, or that I got PCS from trying to gently shake water out of my ear. Does anyone else experience this? Are there other treatment options that I'm missing?
metmike07 is offline   Reply With QuoteReply With Quote

advertisement
Old 02-22-2016, 11:31 AM #2
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

metmike07,

Welcome to NeuroTalk.

Head sensitivity to quick movements is a common problem. As I was reading your post, I was thinking upper neck. Then, your neuro said the same. I'm not agreeing with the nerve tearing idea but can't say he is wrong. Either way, treating your upper neck with discipline may be helpful. I am concerned about upper neck inflammation. This can interrupt blood flow and nerve function.

Twist the head and pop the neck chiro work may be too aggressive. The mechanical massage may be too.

I suggest you work on maintaining good head and neck posture during sleep and resting. This can take a few months of discipline to get to a stable condition. Icing your upper neck may be helpful, especially when you have a headache.

You may need to learn to moderate head shaking movements. I have had to. No quick 'no' for me.

My best to you.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 02-22-2016, 12:03 PM #3
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Default

Try looking at what "Dan Higgs96" posted here few years ago (I can't post the link sorry, use search). Maybe you will find that your story sound familiar. He found that a weird diet that completely helped him to get rid of all sensitivity symptoms. And the doctor that advised it also mentioned it helped in a lot of similar situations (including mine).
Strafe1 is offline   Reply With QuoteReply With Quote
Old 02-22-2016, 12:59 PM #4
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

There are many diets that work, not because of what is in them, but because of what is not. Sometimes, they are just a reason to be disciplined about food. That discipline can make a difference. The diet mentioned has a very large list of foods to avoid. It almost requires an OCD personality to stay on a diet like that.

A diet worth considering is the anti-inflammatory diet. There are many web sites that discuss anti-inflammatory diets.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 02-22-2016, 01:12 PM #5
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
There are many diets that work, not because of what is in them, but because of what is not. Sometimes, they are just a reason to be disciplined about food. That discipline can make a difference. The diet mentioned has a very large list of foods to avoid. It almost requires an OCD personality to stay on a diet like that.

A diet worth considering is the anti-inflammatory diet. There are many web sites that discuss anti-inflammatory diets.
I based only on what I know. And I know that for me, and for this guy every other means failed to improve symptoms consistently. After all, it's just food, you eat to live not vice versa.
Strafe1 is offline   Reply With QuoteReply With Quote
Old 02-22-2016, 06:59 PM #6
metmike07 metmike07 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 27
8 yr Member
metmike07 metmike07 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 27
8 yr Member
Default

Thanks guys, I will look into an anti-inflammatory diet. I think I do pretty well already, but I could always improve.
metmike07 is offline   Reply With QuoteReply With Quote
Old 02-22-2016, 07:03 PM #7
metmike07 metmike07 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 27
8 yr Member
metmike07 metmike07 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 27
8 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
metmike07,

Welcome to NeuroTalk.

Head sensitivity to quick movements is a common problem. As I was reading your post, I was thinking upper neck. Then, your neuro said the same. I'm not agreeing with the nerve tearing idea but can't say he is wrong. Either way, treating your upper neck with discipline may be helpful. I am concerned about upper neck inflammation. This can interrupt blood flow and nerve function.

Twist the head and pop the neck chiro work may be too aggressive. The mechanical massage may be too.

I suggest you work on maintaining good head and neck posture during sleep and resting. This can take a few months of discipline to get to a stable condition. Icing your upper neck may be helpful, especially when you have a headache.

You may need to learn to moderate head shaking movements. I have had to. No quick 'no' for me.

My best to you.
Thanks Mark,

I sleep on a contoured neck pillow from Tempurpedic, and have for years. I think I'm good in that departement.

One "symptom" concerning the upper neck that I've noticed is many times I can feel the blood pulsing through my upper neck into the back of my head. It's something I know I couldn't feel before the injury. Consuming alcohol makes this very noticeable, which I've completely stopped these days.
metmike07 is offline   Reply With QuoteReply With Quote
Old 02-22-2016, 08:37 PM #8
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Default

Quote:
Originally Posted by metmike07 View Post
Thanks Mark,

I sleep on a contoured neck pillow from Tempurpedic, and have for years. I think I'm good in that departement.

One "symptom" concerning the upper neck that I've noticed is many times I can feel the blood pulsing through my upper neck into the back of my head. It's something I know I couldn't feel before the injury. Consuming alcohol makes this very noticeable, which I've completely stopped these days.
It took me two weeks to feel that diet thing is working. But it was the most strict one. Just a time scale for you to know.
Strafe1 is offline   Reply With QuoteReply With Quote
Old 02-23-2016, 03:21 PM #9
todayistomorrow todayistomorrow is offline
Member
 
Join Date: Dec 2011
Posts: 201
10 yr Member
todayistomorrow todayistomorrow is offline
Member
 
Join Date: Dec 2011
Posts: 201
10 yr Member
Default

Can you please share your diet? What symptoms have you noticed improvement with?
todayistomorrow is offline   Reply With QuoteReply With Quote
Old 02-23-2016, 05:26 PM #10
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Strafe1 Strafe1 is offline
Junior Member
 
Join Date: Feb 2016
Posts: 13
8 yr Member
Default

Quote:
Originally Posted by todayistomorrow View Post
Can you please share your diet? What symptoms have you noticed improvement with?
Of course, I can post links now:
Here is his thread. You should read it and check if your symptoms sound familiar.
Here is his solution. This was his diet.
I recently contacted him and found that he recovered completely, told me that when he had last hit in the head he didn't even noticed anything, he's living a normal life now.
Strafe1 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Extreme Head Sensitivity Dan Higgs96 Traumatic Brain Injury and Post Concussion Syndrome 48 06-01-2018 01:06 AM
Anyone have sensitivity with touching your head? nightnurse30 Traumatic Brain Injury and Post Concussion Syndrome 10 01-26-2015 07:09 PM
Head sensitivity recovery james-uk Traumatic Brain Injury and Post Concussion Syndrome 11 09-30-2014 04:13 PM
Extreme head sensitivity GirlFromNorway Traumatic Brain Injury and Post Concussion Syndrome 5 07-29-2014 01:48 PM
Head sensitivity explanatio milanchz Traumatic Brain Injury and Post Concussion Syndrome 3 09-28-2013 02:13 PM


All times are GMT -5. The time now is 07:57 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.