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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-24-2016, 06:06 PM | #1 | ||
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Junior Member
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Hello All,
After years of near perfection, I've finally lost it. Have any of you had trouble sleeping? (It's staggering how many Americans--not just PCS people--have difficulty sleeping.) What are your experiences like? What do you do about it? Many thanks. |
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02-24-2016, 06:48 PM | #2 | ||
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I don't sleep well at all I'm lucky if I get 2-4 hours. I go to bed, so exhausted, but them, bam. Eyes wide open. Pain keeps me up.
Sent from my SCH-I545PP using Tapatalk |
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02-24-2016, 06:54 PM | #3 | ||
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Oh. I have tried sleeping pills, they don't work normal on me. My brain is all wired goofy now. So I do nothing. Dr's have wanted me to try different approaches and goofy herbal crap. I will not take that stuff. Not tested. I don't feel safe.
Watch caffeine, trying to cut it out; really. Kids really exhaust me, but still. It's the physical pain. Let me know what you do Sent from my SCH-I545PP using Tapatalk |
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"Thanks for this!" says: | brownehn (02-27-2016) |
02-25-2016, 12:59 PM | #4 | ||
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I have trouble with sleep disturbances after head injury. I went to see a sleep doctor/pulmonologist and did an overnight and a daytime sleep study. I was diagnosed with mild insomnia and sleep apnea and narcolepsy without cataplexy or excessive daytime sleepiness. I have been treated for the most part with a stimulant and Provigil. It was helpful for a while. I would suggest that you get a referral or see a sleep specialist/neurologist and pursue an overnight and daytime sleep study. do you have names of sleep specialist/neurologist in your area?
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"Thanks for this!" says: | brownehn (02-27-2016) |
02-26-2016, 06:09 PM | #5 | ||
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Thanks, you guys.
I seem to be in a period of instability. I tend to crash naturally when sleep has been deficient so I actually got enough W. and Th. night (last night), but I had this awful episode last night just after good sleep that ended midnight with all these self-destructive, senseless, obsessive thoughts haunting me, losing my ability to enjoy the companionship of my kitty cats and compelling me to get up and walk around the house mumbling, an unprecedented event . . but then settled down and got some more before my rise time of 3 am!(?) Then today I had a lovely nap in the middle of the day but it made me a little disoriented and depressed. Many sources including Mark warn of over-sleeping. I seem to be swinging from one extreme to another. So my situation may differ from yours. But I just got some hydroxyzine. It works well on anxiety with virtually no side-effect except drowsiness and maybe dry mouth. I'm against using drugs . . For starters I just want to have something ready for crisis situations . . |
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02-27-2016, 01:27 AM | #6 | ||
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I went through a terrible period of sleep disturbance.
For the most part I sleep ok now but I still have those nights where I wake often from a very active mind and strange dreams. Bud |
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"Thanks for this!" says: | brownehn (02-27-2016) |
02-27-2016, 08:14 AM | #7 | ||
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Bud,
Is your journey posted in more detail somewhere that I can read it? Yours sounds rich and interesting. I've found several online books on neuroscience that I'm currently gobbling . . |
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02-27-2016, 09:09 AM | #8 | ||
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I'm approaching two years and my sleep is still not back to normal. I can't stay asleep for more than about 41/2 hours then have a hard time getting back off again. I think it's central sleep apnea but haven't had it officially confirmed. Sometimes when I wake my pulse is faster than it should be (lack of oxygen?) but mostly I just wake for no apparent reason. I've started taking 5-HTP again to see if it helps as the sleep symptoms are like depression although I feel fine otherwise.
Good news is my mind is better than it was, I seem to be able to clear it and relax deeper, I can day dream again, but I often feel tired in the day which is a bummer. This has coincided with a lessening of my tinnitus which seems to suggest more calming of the brain is needed.
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Concussion 28-02-2014 head butted a door edge. . Symptoms overcome: Nausea, head pressure, debilitating fatigue, jelly legs, raised pulse rate, night sweats, restlessness, depersonalisation, anxiety, neck ache, depression. Symptoms left: Disturbed sleep, some residual tinnitus. |
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02-28-2016, 07:34 PM | #9 | ||
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Junior Member
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I'm finally managing to get 6 to 6 1/2 hours of sleep these days (2 1/2 yrs post). Initially, I was lucky to get 2-3 hours.
I'm taking 400mg magnesium & 5-HTP (200 mg 2x/day). Over the months, it has had a positive influence on my sleeping. I've never had a problem falling asleep, it's staying asleep that is the issue. Unfortunately, my headaches are worse again the past 2 weeks and my depression increasing as every time I push myself to do something social, the noise is too stimulating for me & my head is ready to explode. Just found out about some nasal injections used for headache & hope my concussion doc will do this for me on Wednesday. Any one tried this yet? Sent from my iPhone using Tapatalk |
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"Thanks for this!" says: | brownehn (03-03-2016) |
03-03-2016, 04:36 PM | #10 | ||
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Junior Member
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Mark, so actually blood flow WITHIN the brain IS disrupted. I think I read somewhere that this lasts about 4 weeks. I believe they refer to this valve-like control as autoregulation. Good area for further research . .
I'll bet there isn't anything definite, but have there been any studies on sleep of PCS people? I would guess they vary all over the map. |
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