randomguy,
We have some what similar symptoms : lunch time dizziness, meetings overwhelming me etc.,

I went to about 3 or 4 ENT specialists in Washington DC area and their tests didnt prove I need therapy or any complex surgery like Perilymph fistula (though I still suspect on that line and it is an explorative surgery and no tests to prove it).

Even one specialist agree and another one completely say No to surgery and scares me

One thing helps me sometimes is ear plugs (still, unbelievable). Go ahead and try the vestibular therapy. You can always stop it any time.

I am still trying things. I take a break from therapies. Recent one I tried is dry needling on neck and head for headaches. I doubt it helped any.

I just got out of a coffee meeting and man, oh man. Was on the verge of passing out the entire time...Just sick of this...I get so lightheaded and faint I think I'm going to fall over at any moment. My vision then completely gets messed up. If I haven't had been to a ton of docs and tests I would honestly be going to the hospital in suspicion of a stroke or something. It just feels terrible.

I have tried the needling too. Did nothing for me. My neck is a problem too. I have what feels like chronic inflammation in the area due to serious whiplash from my accident and triggers easily. I have found Curcumin to be most helpful keeping it at bay, however still a daily struggle and the dizziness/vision issues are always there in restaurant scenarios, regardless of the neck acting up or not.

Really just lost at this point.

RandomGuy
I experience these symptoms as well. I have been doing vestibular therapy for 9 months and it has been helping me. Dizziness and lightheadedness have slowly decreased. They helped me do an exercise threshold test and I've been able to slowly increase my heart rate threshold. I have also been doing acupuncture and getting my neck treated by a PT at the same time. I believe all have helped.

That said, I still have low level lightheaded, dizziness and more intense episodes if I over do it. I am not sure what will ever make it go away completely. I get the lightheaded/can't breath feeling when I am in meetings. I know it is not anxiety, but once it starts, getting anxious about it and not breathing correctly makes it work. I had to learn to "make myself breath" into my stomach rather than chest. I know, it's ridiculous that we have to also think about breathing, but I guess that's the way it is. I think we get this feeling in meeting because of visual stimulation but also because of concentrating on people talking and moving eyes/neck a lot to follow conversations. That's just my theory.

One thing that also helped with lightheadedness and reaction to stress - I got my adrenal hormone levels checked by an integrative doctor. They were all out of whack and he prescribed some herbs and supplements that really helped.

My neurologist wants me to try amitriptyline because she thinks some of this may be migraine/headache related. Have you tried any of the headache meds? I am apprehensive but thinking about doing it.

Thanks.

RidingRollerCoaster : I tried amitriptyline for a year and did nothing for me. But some had good success I heard. It makes you sleepy at first and when you get up you feel very dizzy. Then it subsided.

You can start with minimum dosage (10 mg) and see how you feel. I tried few other SSRIs too. SNRIs made my condition worse. I stay away from Narcotics and I doubt any doctor will prescribe that for you. No doctor ever mentioned Narcotics to me. Only once I got Dialudid in ER and ofcourse my headache and all other symptoms gone for a day and then it came back with full force. It was scary.

randomguy : I feel you. Think I get better to some extent I move on to next step when it comes to life but this new normal doesn't help to move forward. I am also lost at this point.

That's just it. I try so hard to be normal and to work and make a living, but it's almost impossible. I am effective maybe 2 hours a day at my job and the rest of it I am out of touch with reality and just sick...Really starting to question what to do. I will give vestibular rehabilitation another go for long term and see how I respond. Something has to give...as mentioned in another post I always feel a bit better in the summer due to warm weather and better circulation. Nice that's just around the corner for some temporary relief.

About work I am on the same boat like you. If I focus and work more than 3 or 4 hours then later on it becomes a hellish day. But luckily I had a good job and understanding manager but the contract ended so no more I can have that luxury. Ofcourse I always complete the job with full satisfaction and I work in IT field.

Finding a job is the easy thing for me but thinking and looking at the computer all day and some times becomes very challenging when solving issues not helping for sure.

I worked in Calgary and stayed in Saskatoon too many years ago. I know that cold. This year looks like going to be good warm weather there because of El Nino?

Have you looked into complex things like Perilymph Fistula etc.,? As you know if we have any of those things nothing can help and only exploratory surgery is an option and will be a hit or miss. How sad is that ?