I am also from Alberta, and this winter has been very difficult for me as well. It's been a very mild winter so I worry if I'm not better by next winter it may be even more difficult. Head aches, ear pain, depression and anxiety...they all were at their worst in December. I'm 10 months in and looking very forward to summer. Today is not a very good day for my head.


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Joanne,

I was very glad to see last spring arrive and be able to warm my bones....this winter has not been as debilitating to me.

Hang in there!

Bud

I feel for you both (Joannetb and rg). Temperature change also severely affect my symptoms. Extreme cold to hot to cold etc., To be honest rg, just keep pushing myself (especially in front of computer), stress, business challenges etc., what may have delayed/delaying my recovery. I tried lot of therapies and if I did nothing and just focused on therapies may be I would have been better.

I should have applied for disability and sit back (but I wouldn't have gone to all expensive therapies). But I was too confused, depressed and doctors didn't give me good advice on applying for disability and instead encouraged me to go to work. Also the financial situation.

You are into 3 years too. If you think being in the beach helps, then take few months off and go to beach and see how it works. About flight I thought it is going to be bad but turns out to be best (for me). Not saying you will be same but you never know.

Now I am taking a long break again after a year of work and spending all the savings which normal people think is a bad idea but I have to do for health reasons and I don't explain to people who cannot understand.

Joannetb : In Saskatchewan and Alberta I found summer always very short :) Hope this year you have extended summer because of El Nino effect.

You might try the study in NOLA under Dr Harch. My daughter's headaches greatly improved as well as her cognitive level. She did airbnb while there and loved New Orleans. Lots of free music. She is going on 5 yrs and did it last summer.

My best to you,

hopefulmom:

Is it hyperic oxygen therapy? Did the insurance cover those therapies?

If out of pocket how much does it cost? I did about 15 sessions in DC. Each session cost me around $100. I didn't see any improvement.

New Orleans sure I can try. Never been there and weather probably warm all year around.

Yes this is HBOT. The study was 40 sessions. If you are admitted into the study then the sessions are free but you pay for your lodging. Once we knew she was there for 2 months (after a few day of testing), then we negotiated a great rate in mid-town. She rode the bus, trolley or walked.

Yes it is hot there.

NOTE: Dr Harch has been studying HBOT for a long time. You have to be very careful to not get too much HBOT or it can cause more damage.

Thanks. Spending money for lodging is not an issue for me since I move around always.

As long the treatment is free of charge I can try it out. I didn't know too much HBOT can cause damage. That is news for me. :)

If Bangkok makes you feel better and airplanes make you feel better, you might want to try a place like Southern CA. I suffered almost daily with PCS for 8 years in WI and WA. I moved to San Diego area last fall, and have hardly had an issue and it has been about 6 months! It is amazing for me to go back to a normal life that I hardly dreamed possible anymore! If you want to read the details, look up some of my former posts on this forum.

Steve

A few years ago, a NT participant tracked his symptoms in various areas of the US and I think he found the southwest to be easiest on his symptoms.
Maybe somebody can find that thread.

Thanks for the information Steve and Mark. Interestingly, I have been also thinking about San Diego since my uncle (who is a doctor) and cousin live in Bay Area and always praise about California :) Why airplanes makes me feel better is still a mystery.

Bangkok is temporary escape and I don't see myself living here at least for now. This place can be overwhelming at times. Especially communication is a big issue and most of them speak only little English. But provide good service.

I am sure places like San Diego or even Phoenix can help. Time to move out of Washington DC this time for sure. Each time I think and someone offer me a good job in that area and I was not able to refuse. I am relatively good at what I do and can be productive if work environment is amicable.