NeuroTalk Support Groups - TBI, lingering PCS, and diet

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)

- - TBI, lingering PCS, and diet (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/233623-tbi-lingering-pcs-diet.html)

I share this sensitivity to head movement and was curious what symptoms are brought on by the movements for you?

Quote:

Originally Posted by Laupala (Post 1204012)

Has adjusting to the diet been difficult? I'm considering trying this, as I don't see the harm, other than giving up my love of carbohydrates and fruits... no oatmeal or kiwis or pears!

Found this article which does a good job explaining the evidence out there as of 3 years ago.

I've only just started looking into this, would this be a life-long sort of thing for a PCS sufferer, if it did seem to help? Or after a certain period could one reap the healing benefits and then resume a normal diet?

It definitely was a big adjustment at first, both physically and mentally. I have to prepare most foods at home as anything processed generally has carbs/sugar. After a couple weeks I've gotten more used to it, but I remain convinced that the diet change made my PCS much better. I don't know if you can attribute it to the lack of carbohydrates or the increase in fats/proteins. Either way, something has helped immensely. I'm not completely better but my head sensitivity has improved quite a bit since I've started.

My new neurologist wanted to put me on an preventative migraine medicine (topamax I think). I have the pills but I haven't tried it yet since the diet made such a marked change in how I was feeling. My plan at the beginning was to try it and see how I felt. I plan on staying with it for now, but I am open to working some complex carbs back into the mix at some point.

Search ruled.me , it has all the information you need on a ketogenic diet

Give it a try, it really helped with my sensitivity! I noticed a difference in a few days (even while feeling the "keto-flu")

Non-neuro related...there is plenty of evidence that suggests carbs and the resultant insulin resistance is the cause of modern obesity. I'd post links but I can't yet...

Quote:

Originally Posted by eanh9212 (Post 1204241)

I share this sensitivity to head movement and was curious what symptoms are brought on by the movements for you?

I got the full range of PCS. The worst was sound sensitivity and overall weakness/fatigue, light sensitivity to a lesser extent. Headache, trouble focusing my vision, and difficulty concentrating were others. Once this happened, the 24 hours were pretty crappy, but would slowly get better after that. All in all it would take 1-2 weeks to get back to where I was before the setback.

Quote:

Originally Posted by Mark in Idaho (Post 1204006)

What about the B vitamins ? They are the most important.

I've been doing a B-12 the past few days, hopefully that helps things along. Thanks for the advice!

I want to reiterate about the diet. While I'm not fully healed, after the change in diet, I feel the best I have in the last 7 months since my injury! It's amazing!