Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-13-2016, 09:48 PM #41
Mark in Idaho Mark in Idaho is offline
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A reaction to the shock of an injection may appear like a concussion but it isn't. Her body appears to have strong reactions to even slight insults. Getting free of the stress of the migraines should be a priority. I can't imagine how much stress her migraines are compared to the minor stress of an injection.
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Old 09-14-2016, 04:07 AM #42
okrad okrad is offline
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Quote:
Originally Posted by JudyAnn View Post
My daughter is now saying she is not willing to get Botox injections for her migraines because it would be injected into her temples, which are already swollen. She is afraid that having this injection would cause a concussion, because one happened to her before when an ER doctor jabbed her in the temple.

I am hoping that she will get the Botox injections because I hope it will help her migraines - this is almost her last hope to get rid of her migraines and eventually resume a normal life. Does anyone feel she is being overcautious, or I am not being cautious enough? I would appreciate your advice on this.

Thank you.
Not everyone here will agree with me, but my Dr told me that exercise is one of the best things we can do. He is at a very large and well known hospital with a special wing just for pcs and mtbi etc.......so I really trust him. He diagnosed me right off the bat and said meds will not help me much based on his work.

SO I do what he says and I have to say I feel SO MUCH BETTER when I exercise. I have the dizziness and the head feels like it will explode and bending over it hurts, etc.......but after I come back from the gym, it is less. AND the problem I was having not recognizing faces is a lot better after a good work out.

I would be cleared by a dr first, of course. But it just seems to make me feel better and sharper.

So a bit of how things are now:

1. Reading......I still cannot read really great. I can do about 3 pages opposed to a good 20 plus before because I was studying before the accident. Now it's really hard.

2. The Depression---it is a bit better, I guess. I think that has to do with a lot of things. Because my memory seems to just cut off, I really sometimes cannot remember why I was POed one minute ago.

3. Memory.....it seems to be great sometimes and then just "cuts off" other times. I think if I am tired or exhausted, it is worse.

4. Social Stuff---- THE PITS. Basically, I do not want to be around anyone but familiy because I am so up and down. The inconsistency of my behaviour makes me want to stay away because it's WILD inconsistency. One day I stop talking, the next I am mad, the next i am happy and engaged.......exhausting for me alone let alone anyone else. It hurts so much when people think I am mentally ill and I can tell they do. They walk away or give that fake smile.

5. Food stuff. I still feel nauseated when I eat most of the time.

6. Getting Lost and Facial Recognition-----I am still getting lost all the time and feeling like I am about to get lost, or that I am in the wrong place, etc....But the faces are getting better.

7. Dizziness, etc.......still dizzy all the time and head feeling like it will explode or is full of water. Still wear earplugs all the time and feel razzed to the point of panic if I am out too long.
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Old 08-30-2018, 08:34 PM #43
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Originally Posted by JudyAnn View Post
My daughter has been suffering from post-concussion syndrome for 18 months now and it keeps getting worse. It started with an assault that left her unable to read or look at computer screens without triggering an instant migraine. Eight months after the assault she suffered an extremely minor bump to the head and found shortly after that she was getting migraines from listening to audiobooks. Every couple of months since then, there have been other minor incidents, such as hitting her head slightly or being in a vehicle that stopped too suddenly, which has left her with new migraine triggers.

Now she is worse than she has ever been before, she is no longer able to read, write, look at computer screens, look at streetlights, listen to music or even talk to us without getting a migraine. She has developed an extreme sound sensitivity, and finds that migraines are even triggered by sounds made by her own body such as cracking joints or even just swallowing. Earplugs do nothing to block these sounds, so for the last month, she has had an uninterrupted migraine that no medication seems to be able to treat. She has tried Propanalol, Sumatriptan, Topamax and Gabapentin. None of these seem to help. The Topamax actually made her migraines worse. She is so disabled now that she can do almost nothing other than lie in bed all day with her eyes closed and her earplugs in. If she even says one sentence to us it causes a migraine now. We are starting to lose hope because things keep getting worse, and there seems to be no way to stop the cycle that she is in.

I am posting this looking for any advice or any reason to feel that this will ever get better. Has anyone experienced anything like this? How do we end the cycle that she is in so that after 18 long months she can finally begin to recover? Her main migraine symptoms are a persistent throbbing, dizziness and extreme pressure in her head. Please let me know if there is anything we can do. If anyone has had these types of symptoms and gotten better, please let me know so we can have some hope. Thank you.
Hi JudyAnn,

It looks like almost 2 years since you last posted, so I'm hoping your daughter is doing much better. I stumbled upon this thread while looking into the drug Topomax that was recommended by neurologists for treating migranes associated with a TBI.

In any case, your very first paragraph describes very much what my girlfriend has been going through following a car accident in February 2017 roughly about 18 months ago. She has hypersensitivity to noise and often has headaches similar to what your daughter was describing ie pressure, temples, nerves on forehead etc even her jaw.

Last summer she was better off, maybe even improving but once feeling a bit better she would push herself too hard and then would get much much worse. There was also a lack of good advise from GP, friends in understanding what had happened. Lying in bed and listening to audiobooks is an everyday thing here too as little else can be done.

If you get this message I would love to hear how your daughter is doing and what treatments and/or medications helped her along the way. I hope to hear from you.

All the best,

Jeremy
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