Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-18-2016, 08:41 AM #11
hawaii13 hawaii13 is offline
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Quote:
Originally Posted by Anja 70 View Post
Hallo Oliver,

schreib mir doch bitte eine private Nachricht. Ich lebe jetzt seit zwei Jahren mit PCS und es ist nicht leicht in Deutschland überhaupt einen Arzt zu finden, der einen ernst nimmt und sich damit auskennt.
Lg
Anja
Hi Anja,

werden wir in Bälde tun. Werde noch Frau und Tochter von dir berichten. Vielen Dank!
Translation:
We gonna get in touch real soon. Got to tell my wife and daughter about you.
Many Thanks!

Oliver
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Old 04-18-2016, 12:47 PM #12
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Quote:
Originally Posted by Joannetb View Post
Hello! (gluten tag!)

How are you this Sunday? (Wie gehts dis Sontag?)

I speak very little German and understand even less. ( Ich spreche sehr wenig deutsch. und zu verstehen, noch weniger).

I hope you can make the Google translate for you. ( ich hoffe, dass Sie die Übersetzungsarbeit zu machen.). If not, and if she is feeling alone, she can message me and I can try to translate back and forth. (Sie kann mich in der deutschen E-Mail und ich kann versuchen zu übersetzen.) this condition can make you feel lonely, because it is very difficult to explain. (Dieser Zustand kann sehr einsam sein, weil es schwierig ist, anderen zu erklären.)

I have had post concussion syndrome or minor traumatic brain injury for almost 1 year now. I am from Canada. The doctors in Canada are varied in their knowledge. There are a few that really know what is going on and what the most updated and correct treatments are.

What I've learned from this so far from the professionals that seem to be able to help me is the following:
Do not push through a headache. (Nicht durch Kopfschmerzen drücken.)
Rest the mind with meditation, relaxation, etc. (Ruhe den Geist)
Once the symptoms reduce or disappear, only Then can you start to gradually add activities or computer work back into your life. As an example, it you can work on the computer for 10 minutes without getting dizzy or a headache, then reduce that to 5 minutes. Continue to do this for only 5 minutes at a time so that no symptoms appear. If she can do this many days in a row, then she could try increasing the time on the computer by a few minutes, and then remaining at that time period. What is important ( my neuropsychologist tells me) is that we consistently stay Below the time, and that will allow the gradual increase. The symptom Reduction phase comes First though, before she can add things back.
For me, stress or becoming sad to the point of tears, is very bad, and makes all of my symptoms come up very strong.
This next one I have not seen anyone else write, so not sure of it's accuracy, but I am told not to do any kind of exercise or activity that puts my head below my heart, as too much blood flowing to the head at one time is not good.

Sometimes certain things in life have to be put on hold. In order for her to recover, it is important that she understand that. Only until she can become well enough that she has learned to reduce her symptoms. Fight through symptoms to get things done is the wrong thing to do, and can make us worse for days at a time.

I speak from experience, in that I returned to wok too early and only lasted one and a half months before having a complete relapse.

Please tell her I wish her a fast recovery and that I am always here if she needs to email or message me. (Bitte sagen Sie ihr, dass ich ihr eine schnelle Genesung wünschen und sie können mich jederzeit durch private Nachricht oder E-Mail erreichen.)

Danke! And take care!


Sent from my iPhone using Tapatalk

Thanks Joanne ...

for your sympathy and good recommendations. Well, I got to communicate for my daughter, because she very hardly can read and write. I print the posts and read it out to her. How can you get a private mail. I've been told (by the admin) that I need to have 10 posts to send an emaiaddress.OK, I' am looking forward to you respond.

with best regards
Oliver
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Old 04-18-2016, 03:25 PM #13
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I think they are referring to messaging, which may be different.


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Old 07-09-2016, 01:37 PM #14
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Hi Mark again,
it's me Oliver. Well, what can I say. Got better but now is getting bad again my daughter said. She's having panic attacks. My question is: Is it dangerous to take tranquilizers to get her in a calm mood, so she can deal better with these circumstances and can it be that the "sickness" is a lot psychological and a treatment with Meds is appropriate? How long this will go on. My wife, our daughter and me are with our nerves on the braking point. Thank you for your notice.

With Best Regards
Oliver
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Old 07-09-2016, 02:33 PM #15
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I've used clonazepam (benzo) and propranolol (beta blocker) to resolve panic attacks. Which I use depends on the situation. If my blood pressure is spiking, I use the propranolol. If my mind is just racing out of control, I take a 1/2 clonazepam.

What circumstances are triggering her events ?

Sorry, Oliver. I remember your name but not any details. Duh, my brain is always struggling.
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Old 10-25-2016, 11:00 AM #16
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Default Post Concussion Syndrome HOPE!

Oliver,
I COMPLETELY understand the frustration you are feeling. I know it has been several months but I just saw your post today. How is she feeling now? My daughter suffered the same injury nearly 2 years ago. She slipped on the ice and hit the back of her head. She had many symptoms including severe migraines lasting a week or longer, lack of concentration, completely flat personality, suicidal thoughts, etc.
We live in a city (Minneapolis) that is on the cutting edge of medicine, we have excellent doctors and we even have a major traumatic brain injury clinic here. We went to the best of the best and had the same result you did.
Her Neurologist told us flat out that her can't fix her brain. All he could do was try to help with the symptoms.
At that point I started researching alternative therapy options and we tried them all! We also had her start using CBD oil (no THC) and that had a small but measurable effect. I also started reading everything I could about healing the brain. One of the books was called The Brain's Way of Healing by Dr. Norman Doidge. (FABULOUS BOOK!) In the appendix at the end, I found a short reference to a therapy called Matrix Repatterning Therapy. Dr. Doidge said "if you don't do anything else, do this!"
I googled it and found there are only 7 people in the USA who perform this treatment and 1 of them is in my city!! He became our angel! My daughter went to him 9 times and is now 95% better. She still has some weakness in her eye muscles but that is a different therapy.
This story is MUCH longer and there are other treatments that will help move her in the right direction but Matrix Repatterning is by far the most important. Canada is the best place (Toronto) to find practitioners. Most concussions can be treated in 4-7 sessions. They don't have to be spread apart either. She could be done in about 2 weeks if you decide to pursue it.
Let me know if you have have any other questions but in the mean time DON'T GIVE UP!!! My daughter went from being basically bedridden/ house bound to a college student living in a dorm and studying biology/ pre-med!!!
YOU just have to keep pushing and don't rely on the medical system to give you answers.
Jen

Quote:
Originally Posted by hawaii13 View Post
Hello everyone. My name is Oliver. First, I ‘am trying to do my very best in English because I’ am from Germany. So sorry if I produce some faults.

Our daughter (24yr) had been diagnosed with post concussion syndrome, about seven month ago. She had an accident. She have been fallen on the backside of her head. The doctor recommended to stay in bed for two weeks, but it didn't get better. Then she was about six weeks in bed and it got slowly better. Then she hit her head a little bit by getting in her car and her state became as it was at the beginning. Then after several weeks it was getting again a little better. Two months ago it was almost gone, but suddenly it became worse again. We’ve been to all kind of doctors and all had different recommendations. Some said absolutely silence, others said get up and walk around. Our daughter broke up now her study, close to becoming a Master. She is close to a mental breakdown and we are quiet desperate. Let me tell you about her symptoms: She cannot watch TV. That makes her very dizzy and she gets headache. Same with the computer. She always have the feeling to be in a boat that moves. Her own movements appear to her time lag. She cannot focus longer than a few minutes on something. As a result of all these things and circumstances she is losing weight too. We are total helpless. Can anybody help us with suggestions or recommendations?

A post concussion syndrome in Germany becomes a treatment like a cold in November. That’s my opinion. So if you have any ideas, please let us know. Thank you!
With kind regards.
Oliver
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Old 10-25-2016, 01:04 PM #17
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jenichan,

What parts of your daughter's body did the Matrix Repatterning therapist work on ?

It sounds like it has a lot of overlap with Myofascial Release, maybe even Myoworx, too.
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Old 10-25-2016, 01:24 PM #18
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Default Matrix Repatterning

The therapy works on impact injuries of all kinds. For my daughter he spent time on the back of her head/ neck, inside her mouth on her jaw/joint, and the right side of her head between her forehead and temple. (When she was 2 she fell at the playground and hit her head hard in that same spot so it was interesting that he ended up focusing attention on that spot without knowing about that old injury.)
I am no expert but I don't think it's at all related to myofascial release. It treats the densest tissue- bones and fluid filled organs. There are a bunch of videos on youtube. They will help a bit but I still don't completely understand it. We have a close friend of ours (college kid) who was injured her senior year of high school. She struggled for a couple years before trying Matrix Repatterning with the same doctor. She only had 4 sessions and she was so transformed that she completely changed her major and is determined to become an MR therapist too. Like I said- its like watching a slow motion miracle...

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Originally Posted by Mark in Idaho View Post
jenichan,

What parts of your daughter's body did the Matrix Repatterning therapist work on ?

It sounds like it has a lot of overlap with Myofascial Release, maybe even Myoworx, too.
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Old 10-25-2016, 02:57 PM #19
Mark in Idaho Mark in Idaho is offline
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My myofacial release therapist did the same locations except not the temple. She did my jaw, inside and outside my mouth. My upper neck down to T-4 and the related muscles.

She worked my gut and other areas that had been dysfunctional due to the upper neck trauma.

Her bio lists many protocols/disciplines.

All to say, keep looking. There are people who have skills to do things that others can't.

Unfortunately, not every therapist with the same credentials and training has the same skills. This is very evident with Carrick Institute trained chiros.
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Old 10-26-2016, 01:45 PM #20
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Default Functional Neurology/ Matrix Repatterning/ Myofascial Release

We saw a functional neurologist who also worked the same areas but it was definitely very different treatment with very different results. Myofascial release works with the fascia. Matrix Repatterning corrects the impact injury to the bones and dense tissue. They may seem similar because of the area the therapist works on but the focus and method are completely different. I encourage you to research it.
Impact injuries such as a TBI can cause damage to more than one system so more than one treatment may be needed to see complete healing. The trick is finding the right combination for each person.


Quote:
Originally Posted by Mark in Idaho View Post
My myofacial release therapist did the same locations except not the temple. She did my jaw, inside and outside my mouth. My upper neck down to T-4 and the related muscles.

She worked my gut and other areas that had been dysfunctional due to the upper neck trauma.

Her bio lists many protocols/disciplines.

All to say, keep looking. There are people who have skills to do things that others can't.

Unfortunately, not every therapist with the same credentials and training has the same skills. This is very evident with Carrick Institute trained chiros.
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