Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-18-2016, 08:18 PM #1
Mokey Mokey is offline
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Default Dr Deborah Zelinsky in Chicago - Mind Eye (Ghost in my Brain)

Hi,
I have recently started going through the book 'A Ghost in my brain' by Clark Elliot (a few posts from last year when it came out, I think). I have listened to him being interviewed and have started ploughing through the book. SO many things are what I have and do experience on a daily basis.

I am so grateful he wrote that book - he describes what I find to be difficult to describe to people. Worth checking out - google to hear a radio interview.

He used a neuro-optometrist in the Chicago area - Dr. Zelinsky at the Mind-Eye Connection (or something like that). As others have written here, her tests seem to be much more advanced than other neuro-optometrists or neuro opthamologists. She seems to get the sensory interconnections - the auditory, visual, balance, etc. issues that have caused me and many others daily suffering.

I am going to try to go to see her and wanted to check to see if anyone else has tried her. The book author also consulted with a neuro-psychologist in the area - Donalee Markus - I am not planning to see her as it is too expensive and I want to see the results of working with Dr Zelinksy.

I have been wearing prisms in my three glasses (reading, computer and distance) for 3.5 years. Prisms have been getting reduced over time, which shows some level of healing. But she has a unique take on the prisms and I am curious (and desperate!!!!).

If anyone has any experience, I would love to hear from you.

For those in the USA, she does take some medicare or insurance things, which could help with payments. It doesn't apply to me but I would pay anything for improvement. Don't want to be scammed though!

I really recommend the book - and I really recommend that every health care person I (and all of you!) have seen for mtbi / concussion read it. He was like me (and millions of others) - dismissed by so many medical practitioners - including neurologists - no one really gets this injury, which is horrific. I call it the injury that keeps on giving!

healing thoughts to you all.
M
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 05-19-2016, 01:22 PM #2
todayistomorrow todayistomorrow is offline
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Yes, I am from Chicago and went to her clinic 1year after my TBI. I saw Dr. Wright who I liked a lot. They diagnosed me and gave me tinted glasses to start. It made a HUGE a difference to me. It helped headaches and helped me work on computer/read without eye strain.

It is definitely costly as are follow up visits. I didn't improvre really after a year of using the glasses but I still wear them for computer stuff. Probably mostly due to outside stressors.
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Old 06-09-2016, 03:00 PM #3
JBuckl JBuckl is offline
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Hi Mokey,

I also just read the book. When are you going to see Dr. Zelinsky?
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Old 04-11-2018, 10:14 AM #4
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Default Visit to Zelinsky?

Hello! I came across your post while looking into seeing Dr. Zelinsky. Wondering if you went, and if so how it went. Hope you are recovered by now. Thanks!

Quote:
Originally Posted by Mokey View Post
Hi,
I have recently started going through the book 'A Ghost in my brain' by Clark Elliot (a few posts from last year when it came out, I think). I have listened to him being interviewed and have started ploughing through the book. SO many things are what I have and do experience on a daily basis.

I am so grateful he wrote that book - he describes what I find to be difficult to describe to people. Worth checking out - google to hear a radio interview.

He used a neuro-optometrist in the Chicago area - Dr. Zelinsky at the Mind-Eye Connection (or something like that). As others have written here, her tests seem to be much more advanced than other neuro-optometrists or neuro opthamologists. She seems to get the sensory interconnections - the auditory, visual, balance, etc. issues that have caused me and many others daily suffering.

I am going to try to go to see her and wanted to check to see if anyone else has tried her. The book author also consulted with a neuro-psychologist in the area - Donalee Markus - I am not planning to see her as it is too expensive and I want to see the results of working with Dr Zelinksy.

I have been wearing prisms in my three glasses (reading, computer and distance) for 3.5 years. Prisms have been getting reduced over time, which shows some level of healing. But she has a unique take on the prisms and I am curious (and desperate!!!!).

If anyone has any experience, I would love to hear from you.

For those in the USA, she does take some medicare or insurance things, which could help with payments. It doesn't apply to me but I would pay anything for improvement. Don't want to be scammed though!

I really recommend the book - and I really recommend that every health care person I (and all of you!) have seen for mtbi / concussion read it. He was like me (and millions of others) - dismissed by so many medical practitioners - including neurologists - no one really gets this injury, which is horrific. I call it the injury that keeps on giving!

healing thoughts to you all.
M
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Old 04-11-2018, 12:27 PM #5
todayistomorrow todayistomorrow is offline
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Quote:
Originally Posted by Storms View Post
Hello! I came across your post while looking into seeing Dr. Zelinsky. Wondering if you went, and if so how it went. Hope you are recovered by now. Thanks!
Dr. Zelinsky is very good. I didn't respond to vision therapy so went back to her to get new lenses. My convergence had regressed so trying something new with my lenses which I just received a few days ago. Without my glasses, I can't read anything or do any work on the computer.
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Old 04-12-2018, 12:43 AM #6
russiarulez russiarulez is offline
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Quote:
Originally Posted by todayistomorrow View Post
Yes, I am from Chicago and went to her clinic 1year after my TBI. I saw Dr. Wright who I liked a lot. They diagnosed me and gave me tinted glasses to start. It made a HUGE a difference to me. It helped headaches and helped me work on computer/read without eye strain.
What type of tint for the glasses that you use? Is it FL-41?

One of my main issues is inability to look at computer screens and I've been trying to find anything that helps only if a little.
__________________
12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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Old 04-12-2018, 07:32 PM #7
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Quote:
Originally Posted by russiarulez View Post
What type of tint for the glasses that you use? Is it FL-41?

One of my main issues is inability to look at computer screens and I've been trying to find anything that helps only if a little.
It was a blue tint. In my recent test, she determined tint wasn’t helping and instead of using prism to draw eyes inward, was going to make it to bend the light outward. I don’t get the science of it but it really helps.
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Old 04-13-2018, 01:28 PM #8
ConcussedButHopeful ConcussedButHopeful is offline
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I just saw Dr. Zelinsky and have not received my prescription from her yet. After I do, I will post my results here. Also FYI for anyone who is more skeptical, I believe there is a double blind clinical trial happening currently to test her "method."
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Old 04-13-2018, 07:11 PM #9
johnsmith4000 johnsmith4000 is offline
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I have blue blocking sunglasses (orange). Are these the same thing?
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Old 04-13-2018, 10:03 PM #10
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Default Blogtalk

Understanding How the Eyes Are Affected After a Brain Injury w/ Dr. Zelinsky 2/16 by Faces of TBI | Health Podcasts

I liked the analogy of an orchestra . . .
I was tested by an eye specialist, nothing wrong with my eye sight because I could read the letters on the chart in front of me.
A neuropsychologist advised a visit to behavioural optometrist after listening to the list of impairments I suffered after my fall, none of which were present prior.
Prescribed glasses with prisms and coloured lens made a big difference.

You might get frustrated with the interruptions listening to this podcast but persevere . . . .maybe my tolerance levels aren't what they used to be!
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"Thanks for this!" says:
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