Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-07-2016, 08:38 PM #1
Mark in Idaho Mark in Idaho is offline
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worriedmama,

1000 mgs of C and 400 iu of E is good. The B-50 does not have enough B-12. Be sure to add it. Curcumin has best potency if it is one of the concentrated forms, like C3 or another one I can't remember. Bioperine is important for curcumin absorption.

It is very important for him and even you to know that his good times are not license to try to return to normal activity levels. Recovery is best when those good times can be extended. The brain heals best when it is symptom free. Hopefully, you can help him learn to recognize when he is starting to push his good time limit. His eyes may look different. He may become irritable.

If he is reading, he may need to reread a line or if in a conversation, ask someone to repeat what they said. Basically, any time his focus or concentration has the slightest decline, stop and remove from the activity and stimulation. The more skilled he becomes at avoiding hitting his overload point, the faster he will recover.

A single event of over-doing it can undo weeks of improvement.

I don't want to scare you but my comment about the year time frame means it could easily take longer than a year. Nobody knows. But, statistics show a bell curve with a long gentle slope at time goes on. What is known is proper quiet rest and over-stimulation avoidance plays a big part in that time frame. Quiet rest means slowing down life, not sleep or napping. Proper sleep at proper times should be a goal. He should try to maintain the same wake-up time as he did during the school year.

His scout camp schedule sounds good. At least it gives you an opportunity to review him week to week.

I hope he has a good experience with those who are over-seeing him while he is away. It would be good to explain the over-stimulation observations I mentioned above to someone who will see him regularly. A simple conversation of asking how his day went and observing his ability to organize his thoughts could be a great barometer.

My best to you both.
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Old 06-06-2016, 08:20 PM #2
worriedmama worriedmama is offline
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*also, neuropsychologist appt is later this month. Took forever to get.

Son & husband read over everything and agreed with all that was posted.

I also ordered b50 and 1300mg curcumin. I read vitamin sticky and what dosage is recommended for C & E? We will do that too! Ready to throw kitchen sink +++ at this. Son is such a bright, happy soul almost back to normal on the few moments a day that he feels well, before he sinks under again. We know hes in there somewhere.
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Old 06-21-2019, 12:41 AM #3
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SAME problem with me. I'm old, 41, no past psychiatry issues. I experienced headaches, dizziness, confusion. Even went to my dr finally 3 weeks after my car accident. Psychosis snuck up on me as to I had no clue it even existed. Inpatient 2x, rispiradone kept the psychosis coming back (I even timed it). At night right after taking it and the next morning when I woke up. So I stopped taking it and the psychosis is gone. I have seen 2 neurologists, psychiatrist, dr after dr had no clue until I spoke to someone in behavioral health services. These people have seen this happen. I'm now waiting to see a neurologist who specializes in this because being diagnosed with a mental disorder is by far easier than to actually research this crap. I'm not sure how to contact people on here because I just signed up. I would really like to talk to people about this to make people aware that ANYONE can go into psychosis.
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Old 06-21-2019, 10:27 PM #4
Mark in Idaho Mark in Idaho is offline
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Rg77,

The private messaging feature is disabled until you have posted enough times.

Very few on here have experienced serious psychosis. Yes, it has happened and been a serious issue for some.

Depression and anxiety are the most common issues.

When you find a thread, look at the date in the upper left of the last post. Replying to the OP, original poster, is a challenge with the older threads.

You can see other posts by a poster and see if they are still active on NT by left clicking on their screen name. WorriedMama has not posted in 3 years.
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Old 06-22-2019, 12:07 AM #5
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Mark,

Yes, I saw that after I posted my reply. Anyways, it's still something that could happen to anyone, which I had no idea. Until now. I'm just glad to be out of it and will try hard to make sure this is something that's a concern.

Thx
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Old 07-03-2019, 03:19 AM #6
SilenceIsSacred SilenceIsSacred is offline
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Quote:
Originally Posted by worriedmama View Post
I found your site after months of googling...I'm hoping some light can be shed on this. My apologies if this is horribly long. It has been extremely complicated and we are at the end of our rope. We are in desperate need of help.

My son, 16, was pushed backwards by a friend in March while horsing around. He fell through some bushes and his his head on a very low (1.5ft'?) brick retaining wall. This happened on a Friday night. He did not let us know he had hit his head until Monday afternoon. Over that weekend, he did not complain of anything unusual except for headaches, which we attributed to seasonal allergies. Monday afternoon, after complaining of dizziness, confusion, nausea and headache, he told me what had happened and I took him to the ER. A PA looked him over and said he was fine. (She looked in his eyes w lights on, felt he was being overly dramatic, and offered no scans.)

Tues, headaches got worse, light & sound sensitivity, difficulty communicating...took him to pediatrician Wednesday who immediately referred us to concussion specialist & CT scan.

Thurs, concussion specialist felt concussion symptoms were unusually strong for 6 days post and upon learning my migraine history, sent us to the ER to have what specialist thought was migraine "broken" with a migraine cocktail (which includes everything from benadryl to thorazine). Son seemed to heal upon completion of cocktail, had MRI and (repeat) CT scan and sent home.

Went to beach for a week. Son still had headaches, confusion, nausea, dizziness but was getting better. Following week, began amitriptyline for insomnia and started back to school on staggered schedule...needy girlfriend broke up with him bc he was "different." STRESS.

Week after that, saw concussion spec again (Fri). Confusion had increased, and son failed 2nd ImPACT test, worse than first time. Son came out of testing room agitated and miserable, unable to make eye contact. Took him to school to meet w team and he was not himself at ALL. Stopped amitrityline, began trazodone after dr saw imPACT test results.

Sat, lost all memory of seeing friends for hours and movie. Behaved strangely, standing in odd places, just not himself. Sunday, my son lost all memory of who we were, who he was, and where we lived. I called CS and talked w after-hours nurse who said get him to ER. ER treated him w another migraine cocktail (after first checking for stroke), and undefined mental condition; post concussion syndrome. They send us home.

That week, we saw Hell. Son became tortured, paranoid, hearing voices and suicidal. My husband had to sleep in sons room with the door barricaded to ensure son wouldn't run away in the middle of the night (son was terrified he would run away to kill himself or kill us). Not knowing what was going on, or what was happening, this continued for a week. On that Sunday night, 7 days after psychosis(?) began, we took son to the ER to be admitted for inpatient psychiatric treatment.

Son was in inpatient for 7 days. Psychiatrists put him on Risperdone/Risperdal (3mg) and son has gotten better since. (Inpatient was now 5 wks ago) Son is now in outpatient psychiatric treatment, still with occasional migraines that amplify symptoms, daily auditory hallucinations (just random words over & over in pattern, nothing malicious he claims), and worsening depression.

Son is/was extremely bright, friendly, social, cross country runner, on his way to Eagle Scout, active in school events, etc. and we are terrified he will never be the same again. No prior neurological or psychiatric issues.

Psychiatrists have given us VERY little information about what or how this has happened, or how unusual it is. (Concussion specialist has since washed his hands of the case - assuming liability concerns, I'm sure.) Every day brings worry for us, and waiting for another shoe to drop.

Son is now currently on 3mg Risperdal, Buspar (anxiety med), fish oil & vitamin D and in the evening gets 5mg melatonin, combo melatonin/magnesium/triptophan OTC sleep aig, 1tsp Natural Calm magnesium and 3-4g glycine. Nightmares are out of control, he claims. He is able to roll over and go back to sleep however. We are considering putting him on a ketosis diet.

HAS ANYONE HAD THIS HAPPEN? Anyone heard of anything like this? Any support? Research? Insight? Advice? Please help us. Please.

- worriedmama
As always, the best thing to do is hyperbaric oxygen. Get him into a chamber ASAP. Do not wait. Go online and read about it.

Hyperbaric Oxygen Therapy in Traumatic Brain Injury (TBI) BIALA 213 - YouTube

As to the drugs, I wish he wasn't on so many neurotoxic ones right after a brain injury. Amitryptaline and benedryl are anticholinergic. Risperdal and thorazine cause permanent brain damage over time. As you can tell, doctors don't know much when it comes to this stuff so they just throw drugs at you.

Psychosis after TBI seems pretty rare. I feel for your situation. Had you gotten him into a hyperbaric chamber right away most of these symptoms could have been prevented.
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Old 07-04-2019, 12:23 AM #7
Mark in Idaho Mark in Idaho is offline
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SIS, Do you realize that WorriedMomma posted this 3 years ago and has not been on NT since?

There is NO definitive evidence the HBOT would provide the immediate benefit you claim.

I wish HBOT would do the miracles many claim.
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