Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-15-2016, 02:10 PM #1
KnockedOutMom KnockedOutMom is offline
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Unhappy My worst nightmare

For those that don't know me I suffered a mTBI in 2013. I am married with 2 small kids. I have suffered from PCS since, am on disability and rely on my husband to do 80% of the daily tasks.

Well last week my worst nightmare just came true... my husband was just diagnosed with lung cancer and it looks like it has already metastasized to his liver, spine and brain.

I am terrified about the prospect of losing him, and being alone, and having to raise our kids alone, and take care of everything on my own. But most important, I am terrified of not being able to take care of him through this battle.
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Old 06-15-2016, 02:47 PM #2
Mark in Idaho Mark in Idaho is offline
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KOM,

I am so sorry to hear about your hubby's diagnosis. I know the struggles you are having. The anxiety is doubly hard with PCS. It will be helpful to learn to not feel guilty when asking for help. People want to help.

Try to put together an organizational chart of the various needs your family has. Some of those tasks you may think you can do yourself but if someone else does them, they free you up for other needs. Then, if somebody asks, "What can I do to help ?" You can respond with a specific task. "I haven't had a chance to clean the bathrooms in too long, Could you just do that for me ?" Or, picking up groceries or doing some ironing. You will hopefully be surprised with the 'almost strangers' who offer to help. By having specific tasks rather than vague needs, people can be very effective. A closed Facebook page can be useful. Your friends can help you build a network of allowed Facebook friends that you approve. You don't need or want everybody knowing about your needs.

If you can get a large number of people, each doing a small task, you can keep this moving forward. Being prepared for the extra strain when your hubby has chemo or other treatments by having help at the ready will be good.

I wish you the best as you struggle through this. My heart goes out to you and your family.
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"Be still and know that I am God" Psalm 46:10
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Old 06-15-2016, 09:31 PM #3
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KOM,

Deep sympathies...I will be praying for you all.

Bud
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Old 06-16-2016, 06:33 AM #4
Joannetb Joannetb is offline
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I am so sorry to hear your sad news. I wish there was something I could say or do. I'm thinking of you and you family and praying lots for your husband and your recovery.


Sent from my iPhone using Tapatalk
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Old 06-16-2016, 09:46 AM #5
DannyT DannyT is offline
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I'm truly sorry and wish you the best. Please take care.
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Old 06-16-2016, 02:05 PM #6
KnockedOutMom KnockedOutMom is offline
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Thank you very much everyone, I'm just so numb and fighting to take it one day at a time.
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Old 06-16-2016, 02:25 PM #7
Mark in Idaho Mark in Idaho is offline
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Some times, we can only make it hour by hour. But, hour by hour works. Living with a 'What needs to get done this hour ? goal' without focusing on the next hour may be all you can do. That is OK. Prayer helps, too.
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"Thanks for this!" says:
poetrymom (06-16-2016)
Old 06-16-2016, 04:44 PM #8
DannyT DannyT is offline
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Mark is quite right. Sometimes I even go 10 minutes at a time. But one day at a time seems to be the winner in the long term.
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Old 06-16-2016, 05:17 PM #9
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I am so sorry for your sad news. I think Mark has the best suggestion. People you know, friends, family will all want to help you and not know how. Ask.
It will help them by you allowing them to help you.
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Old 06-16-2016, 11:07 PM #10
Mokey Mokey is offline
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I am so sorry to read your news. Sending prayers and wishing you all much courage. Hour by hour. And love each other every minute. Strength to you.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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