Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-08-2016, 09:04 AM #11
Scoots86 Scoots86 is offline
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Well that turned around fast. I'm starting to feel panicked that I'll never get better. There are some pretty awful stories on here about symptoms dragging on for a long time. I don't think I could handle that.

I'm a very anxious person and I tend to catastrophize things - I was doing a thought record earlier and I couldn't remember what CBT stood for (cognitive behavioural therapy) for about a minute and then I thought I was having memory loss. Anyway, I've been off all this week but having nothing but my thoughts has allowed me to work myself up a lot.

I'm supposed to go back to work on Monday and even though I still have symptoms the idea of being home alone with my thoughts freaks me out. Not to mention I'm out of sick time so I need to go back to work to get paid. But then the thought of going to work and potentially making things worse by doing computer work also makes me anxious. I feel so trapped in my anxiety and concussion symptoms. Does anyone have any words of encouragement right now?

Thanks
S
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Old 07-08-2016, 09:17 AM #12
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Mark,

Thanks for your question. I tripped over my dog's leash a month ago, fell about six feet to the concrete, then slammed the back of my head on a iron railing. I don't know how long I was out. A neighbor drove me to the ER. I was fairly lucid, so the Dr. sent me home with a one-page recovery sheet. I didn't realize - and no one told me - that concussion symptoms can last. So 14 days later, on vacation, I fell into a serious depression and began to word-swap (accidentally use the wrong noun). when I returned, I contacted my own physician, a psychiatrist about my depression, and a neurologist (who encouraged me to attend the TBI support group.) My brain only has so much daily life in it and I begin to tune out around 5pm. I've had zero attention span and a very major depression (unlike me). I also have zero impulse control and a short fuse - so I'm telling everyone off and alienating people left and right. My symptoms are all textbook so I'm just biding my time, trying to be good to myself. I wear sunglasses still and I'm not making decisions about anything right now. The depression is the worst symptom. It's been debilitating and frightening. But I think, with meds, I've got a handle on it right now and it was never a self-destructive depression, just a deep gloom. I am feeling better now. It was good to meet with a specialist and hear that nothing I'm going through is out of the ordinary.
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Old 07-08-2016, 09:22 AM #13
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I'm finding that over-thinking this situation is making it worse for me. I tend to be obsessive so I understand the impulse. I wrote a short list of the symptoms I need to focus on (brain tiredness, light sensitivity, depression, attention span, physical pain) and I've tried to not constantly assess every other part of my life. I'm lucky in that I don't have to work this summer. I can't imagine having to focus for my job right now. Sorry about that. I'd say, don't get sucked into thinking every sensation you're experiencing is about the concussion. you'll go nuts. But not ignoring the fact that you are healing is important. You do have limitation. Anyway, that's my take on it. As far as reading goes, I'm beginning to read, too, with no side effects. TV and computer time still give me a headache.
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Old 07-08-2016, 10:02 AM #14
Mark in Idaho Mark in Idaho is offline
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Henry,

You said "I wrote a short list of the symptoms I need to focus on (brain tiredness, light sensitivity, depression, attention span, physical pain) and I've tried to not constantly assess every other part of my life."

What do you mean by focus on these symptoms ?

It is better to not focus on symptoms but instead just accept that they will manifest from time to time. If you feel mentally tired, slow down and take a break. Move to a different environment to change the stimulation.
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Old 07-08-2016, 10:27 AM #15
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Mark,

I tend to plow forward and ignore what my body is telling me it needs. So by focus, I mean not ignore. Just be aware.

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Originally Posted by Mark in Idaho View Post
Henry,

You said "I wrote a short list of the symptoms I need to focus on (brain tiredness, light sensitivity, depression, attention span, physical pain) and I've tried to not constantly assess every other part of my life."

What do you mean by focus on these symptoms ?

It is better to not focus on symptoms but instead just accept that they will manifest from time to time. If you feel mentally tired, slow down and take a break. Move to a different environment to change the stimulation.
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Old 07-08-2016, 10:52 AM #16
Scoots86 Scoots86 is offline
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Mark,

How do you accept the symptoms you have and just move on with them. I feel like every time a symptom returns or feels a little worse I feel so beaten. I'm so worried as the symptoms continue that they are going to get worse and keep me from getting back to a healthy mind and body.

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Originally Posted by Mark in Idaho View Post
Henry,

You said "I wrote a short list of the symptoms I need to focus on (brain tiredness, light sensitivity, depression, attention span, physical pain) and I've tried to not constantly assess every other part of my life."

What do you mean by focus on these symptoms ?

It is better to not focus on symptoms but instead just accept that they will manifest from time to time. If you feel mentally tired, slow down and take a break. Move to a different environment to change the stimulation.
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Old 07-08-2016, 12:09 PM #17
Mark in Idaho Mark in Idaho is offline
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Henry,

That's good. Being aware of when these symptoms manifest so you can slow down or doing something else to no exacerbate them is good. Some people get stuck tracking these symptoms so their focus is "How am I responding to light ?" "Am I feeling tired" etc. and even track them in a journal/smart phone app. This can make symptoms appear worse.

So, stay the course and just be aware of the need to make small changes when symptoms start or increase. It is sometimes as simple as, "Symptom X is manifesting mildly and I can tolerate that level of Symptom X. I don't need to do anything about it except it may not be a time to take on extra work or stress. "

For me, these are 'No driving' days or 'No groups with lots of voices' days or maybe 'No TV news drama' days or evenings.

We don't need to climb into a hole. Just simple moderation can make our days go much better. For some, this lowered stress level is found to be an improvement to life and they choose to live a less stressful life regardless of PCS.

So, good for you. Sounds like you are making good choices.

My best to you.
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Old 07-08-2016, 12:22 PM #18
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Scoots, It sounds like your struggle is more than just PCS. Your anxiety can be a big contributor to your ups and downs. It sounds like you are trying some therapy. Brain nutrition helps the brain tolerate stress. Check out the Vitamins sticky at the top. Many of us find benefit to at least the basics, B-12, a B-50 Complex, D-3, Omega 3 fish oil, the anti-oxidants (C and E).

The anxious brain often needs more nutritional support. Caffeine can be a problem. MSG, added sugar, and such can be detrimental.

Good sleep is of paramount importance. If you go to bed anxious, you will not likely get good sleep. Finding a way to settle your mind before bed is helpful. I write down anything I need to do the next day so I don't obsess over it as I try to go to sleep. The act of writing down these tasks/issues is like setting them into a memory for tomorrow and helps many people let go of the thought.

The Serenity prayer has good logic and can help by just dividing the different issues, The things I can change, The things I can't, and wisdom to know the difference.

Your morning stiffness and other sensations suggest a neck issue. You may be able to resolve it by changing your sleep posture. Most people sleep with too much neck elevation. You should be trying to sleep with your head supported with your spine straight.
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Old 07-10-2016, 08:29 AM #19
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Hey there,
First I have to say thank you for all the kind words and support during this tough time. It's great to know there are good people out there with nothing but the best interests in mind.

So as I've mentioned I'm an anxious guy. I had something new happen to me the last few nights that has me worrying (go figure haha). I would love some feedback if anyone else has had this.

When I go to bed I generally feel ok - ready to sleep, concussion symptoms arent as bad for me at night. But the last few nights any time I start to drift off to sleep it's like my body is hit with a course of adrenaline or a shock. Sometimes it jolts me awake, most times it's just annoying enough to keep me from falling asleep.

If I am asleep I can be woken up suddenly by similar jolts in my head or body that basically send me into panic attack mode - even though I didn't feel panicked when I went to bed.

Has anyone else suffered from something like this? I assume it's my anxiety - am I right?

Thanks for the help,
S
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Old 07-10-2016, 01:30 PM #20
Mark in Idaho Mark in Idaho is offline
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Scoots,

Yes, those jolts are common. They are a sleep disorder type of thing. Just as the brain and body start to make that transition to sleep, something misfires. I used to do it all the time such that it disturbed my wife. We changed so she goes to bed and gets asleep before I get in bed so she does not feel my jolts. But, I don't have them anymore.

I think they may be tied to neck inflammation that interferes with nerve signal transmission from the body. That nerve signal gets out of sync and the brain struggles to make sense. Like having the sound out of sync with the TV picture.

I take gabapentin before bed and it helps my nerve signals settle down. But, I am an extreme case.

Your anxiety issues make this more prevalent as the anxiety chemistry needs to settle to sleep.

What did you mean by 'doing a thought record' ?

When you feared amnesia trying to remember CBT, that is not amnesia. It is called Word Finding or aphasia. It is very common with PCS and usually most prevalent when we push our memory. When it only happens occasionally, some call it temporary stress aphasia. I just call it 'word finding difficulties' because I can usually overcome it by relaxing my mind. True aphasia do not respond to relaxing though.

My word finding was very bad in the beginning. Now, it is rare and tied to stressing my mind.
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