Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 07-28-2016, 01:13 PM #1
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
Default Tinted Glasses, Syntonics, and Symptoms

I started doing syntonics about a week ago again. I "got smart" and figured I could use the colored filters and not use the light. Previously, I had used the light too frequently and have had eye pain, extra light sensitivity outdoors, and sensitivity to movements on screens since. I have noticed a significant improvement in those symptoms and other symptoms--mainly that I overstimulate far less often, and a small improvement in my head sensitivity to movements. Headaches are less too.

This is the portable light unit that I have. It can only be acquired through a Dr, which I was very fortunate to have nearby. https://www.hummingbirdhues.com/

I do not have the glasses, but I hope to get them, as I have found holding up the filters to my eyes helps me to de-stimulate when I overstimulate.

I have heard different things over the years. Some people seem to like green tint, some grey, amber, yellow, and/or red. I have found yellow and green are the most calming of the 6 colors I have. Blue seems to be helpful with light sensitivity the most and is also calming.

I saw these two articles, which I found to be very interesting.

Blue-Blocking Glasses May Help Treat Bipolar Disorder, Promote Sleep

Why Johnny Depp and I see the world through blue-tinted spectacles - Telegraph

Articles on Syntonics

http://www.oepf.org/sites/default/fi...iebWallace.pdf

http://www.international-light-assoc...S-Aug-2010.pdf
JBuckl is offline   Reply With QuoteReply With Quote

advertisement
Old 07-02-2022, 03:33 PM #2
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
Default This Sounds Exactly Like Me!

I started doing syntonics about 6 weeks ago and 2-3 weeks into it I all of a sudden out of nowhere began experiencing horrible light sensitivity. I can't watch TV anymore either even if I wear protective glasses as the motion on the TV now bothers me. My eyes also hurt and burn.

It looks like you may have found a solution by wearing the syntonics glasses but just not looking directly at a light source? Was curious how things played out for you after this post and if things fully resolved for you?

Thanks so much for any response you can provide me as this has been a pretty horrible experience and your post has given me hope.
snappydad is offline   Reply With QuoteReply With Quote
Old 07-03-2022, 08:57 PM #3
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
Default

Hi,

I suggest taking time off of syntonics. This happened to me. It was really bad initially like it sounds you are going through. Syntonics was very effective, and so I did it frequently, which lead to this intense pain and light sensitivity - after all you are staring into a light.

I do want you to know that my eyes recovered. If you happen to have fish oil, that may be helpful. I feel that it is especially helpful for my eyes and visual system.

What do you have for syntonics? A light box with the circular filters? The glasses? Or are you doing it at an office?
JBuckl is offline   Reply With QuoteReply With Quote
Old 07-03-2022, 09:03 PM #4
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
Default

I use the circular filters and look out a window - nothing exceptionally bright anymore. I am usually sitting away from the window close to ten feet.

The colored filters are only big enough for one eye, so I hold it over one eye and then cover the other one. After I feel my brain has had enough, I switch. I only do syntonics on occasion. And it's usually less than a minute on each eye. If I do it consecutive days, sometimes I feel I only need a few seconds, and sometimes I put it up and my visual system doesn't want any, so I stop.
JBuckl is offline   Reply With QuoteReply With Quote
Old 07-04-2022, 08:33 AM #5
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
Default

Quote:
Originally Posted by JBuckl View Post
Hi,

I suggest taking time off of syntonics. This happened to me. It was really bad initially like it sounds you are going through. Syntonics was very effective, and so I did it frequently, which lead to this intense pain and light sensitivity - after all you are staring into a light.

I do want you to know that my eyes recovered. If you happen to have fish oil, that may be helpful. I feel that it is especially helpful for my eyes and visual system.

What do you have for syntonics? A light box with the circular filters? The glasses? Or are you doing it at an office?

Thank you for your reply. I can't begin to tell you the hope you have given me as I've been worried I've messed myself up for life and will never be able to watch tv or be able to relax outside again.

So I started going to a vision therapy group about 6 weeks ago. The first week to week and a half I think I was doing syntonics wrong as I was just sitting on my back deck in the shade and looking at light beams that passed through the trees but didn't shine into my eyes. I asked the therapists if I was doing it correctly and they said no that you want to have the light shine directly into your eyes. So I would have the sun in my field of vision to where it created a shadow behind me but didn't look directly at it of course. Also had a 60 watt standard incandescant bulb that I sat maybe 3-4 feet from where I didn't look directly at it but had my eyes looking a little above it. I didn't realize it at the time but in hindsight after making the adjustment to have the beams hit my eyes it probably didn't take more than a few days for the major light sensitivity, eyes burning/hurting, and sensitivity to motions on screens to all come on.

I honestly didn't even realize it was the syntonics that was doing it initially as it didn't happen directly during or after a syntonics session but just woke up one morning feeling that way. So I continued doing syntonics for a good 2 weeks after these symptoms came on and then one day after I finished doing a session in the sun I got extra light sensitive and finally made the connection.

I expressed concern to the vision therapy group and they said that it's normal for people to have reactions to syntonics (though admitted mine was a little extreme) and that my body is just getting used to changes and needs to build up a tolerance for it. I ended up taking 4-5 days off of syntonics but the symptoms didn't really subside. They then had me try just doing 12 minutes per session instead of the 20 I had been doing to see if that helped. I did the 12 minutes once and felt so overstimulated that it felt like I was rage cleaning my house that night and of course the symptoms were all real bad the next day. I called them and they said okay let's back it down to just 5 minutes with the green filter. I did that and after 5 minutes I felt nauseous and have been for the past week. I was getting a lot of pressure on my forehead as well so it's like it was just putting too much pressure on my head or something.

They mostly had me doing a blue/green filter combination, which concerns me as that should I think be not as stimulating of colors. It would be one thing if I was doing the red and then got overstimulated as I think the natural fix for that would be to just shift to a blue/purple/green and that may do the trick but I have been worried there's no way out for me since the colors that are supposed to be the most calming were overstimulating me.

Seeing you say that you wear the filters and don't look directly at the light source makes sense though and sounds like it worked well for you. I'm afraid to try even that but if you can give me some specifics on what filters worked to help get your eyes back to normal after these bad reactions and how long your wore them for then that would be a tremendous help.

How long did it take for your eyes to recover during these bad reactions you experienced? Not that I would hope you were in longer amounts of pain but I've been concerned that things didn't revert back to normal after 3-5 days off for me so I'm hoping you say it took 3-4 weeks or something or that it was just a matter of wearing the filters for a week without looking at the light directly as you mentioned in your original post and that did the trick.

Sorry for the novel but I wanted to go ahead and get this all down for you to see your thoughts. Thank you so much for your response and any additional information and help you can provide me with!
snappydad is offline   Reply With QuoteReply With Quote
Old 07-06-2022, 01:38 PM #6
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
Default

I'd suggest absolutely no syntonics until your eyes are free of symptoms. Then wait a few days to a week, then try just the filter, in low light. Try a short period - maybe 10-30 seconds and make sure your brain and eyes don't feel worse. Build up from there.

I'd cut out using the sun and light source altogether. There's plenty of non direct light in a room and the colored light still has effects on the brain without extra light.

If I recall, it was a week or two before things settled down and normalized for me.

You are your own doctor. Listen to your body. I have found that many medical professionals get stuck in protocols and have trouble thinking outside the box of what they've been taught.

I've read many people's stories with syntonics. Each person responds uniquely. Purple might make some people's nervous system relaxed while some get nauseous.

I personally do well with yellow. Sometimes I'll do green. Sometimes I'll mix the two.

Once again, less is more. I've heard of Dr. Zelinsky, who some people have good results with for brain eye problems recommending, 15 seconds at a time.
JBuckl is offline   Reply With QuoteReply With Quote
Old 07-06-2022, 04:59 PM #7
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
Default

Quote:
Originally Posted by JBuckl View Post
I'd suggest absolutely no syntonics until your eyes are free of symptoms. Then wait a few days to a week, then try just the filter, in low light. Try a short period - maybe 10-30 seconds and make sure your brain and eyes don't feel worse. Build up from there.

I'd cut out using the sun and light source altogether. There's plenty of non direct light in a room and the colored light still has effects on the brain without extra light.

If I recall, it was a week or two before things settled down and normalized for me.

You are your own doctor. Listen to your body. I have found that many medical professionals get stuck in protocols and have trouble thinking outside the box of what they've been taught.

I've read many people's stories with syntonics. Each person responds uniquely. Purple might make some people's nervous system relaxed while some get nauseous.

I personally do well with yellow. Sometimes I'll do green. Sometimes I'll mix the two.

Once again, less is more. I've heard of Dr. Zelinsky, who some people have good results with for brain eye problems recommending, 15 seconds at a time.

Yeah I've been hoping taking time off will do the trick but so far it just hasn't. I took 5 days off, then gave syntonics one last shot for 2 days, and now have been off again for 8 days so have done it just twice in last 15 days. The more time that passes the more concerned I get that things aren't going to calm down but I'm still holding out some hope.

If things don't resolve soon then at some point I'm just wondering if the fix is ultimately somewhere in line with the problem and that there's some different way of doing syntonics to hopefully pull my brain back down from this overstimulated state it's in that I can't seem to shake. If syntonics pushed my brain one direction maybe there's a way it can push it back. Your way of doing it for very brief periods and not looking at the light source is hopefully an example of something that could help if taking a break won't get things to calm down.

I will definitely keep in mind your words of caution on people with protocols. I did reach out to Dr. Julie Steinhauer's office in Illinois and I have a call scheduled with her on Monday. She's all over YouTube talking about how great syntonics is and to her credit she does at least have one video saying that there can at times be some downsides if you don't know what you're doing. Hopefully that means she's run into cases like ours a lot and has some ideas on correcting the course. I feel like it could go either way to where she may just want me to follow her protocol to try and fix things or she may just hopefully be real knowledgeable and have a lot of experience with bad reactions and know how to help calm things down based on my specific situation.

I'll keep you posted and let me know if you have any last final words of wisdom. Thank you again for your replies and suggestions!
snappydad is offline   Reply With QuoteReply With Quote
Old 07-11-2022, 04:28 PM #8
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
Default

Words of wisdom:

Take it one day at a time.

There is great value in the things you will learn only available during hardship. Seeing your challenges as opportunities for growth, can pacify the "why me?" thoughts? This means that time you feel that you "could or should be" doing other things is now available for that realm of contemplation, introspection, and such.

I have heard spiritual philosophies stating that physical ailments are catalysts for spiritual growth and that the physical ailment is brought about b/c that is the only way that one will search for greater understanding. From my own experiences, I will confirm that line of thought.

And if you are needing help or advice, feel free to reach out on here. There are many here to help.
JBuckl is offline   Reply With QuoteReply With Quote
Old 07-11-2022, 06:30 PM #9
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
Default

Quote:
Originally Posted by JBuckl View Post
Words of wisdom:

Take it one day at a time.

There is great value in the things you will learn only available during hardship. Seeing your challenges as opportunities for growth, can pacify the "why me?" thoughts? This means that time you feel that you "could or should be" doing other things is now available for that realm of contemplation, introspection, and such.

I have heard spiritual philosophies stating that physical ailments are catalysts for spiritual growth and that the physical ailment is brought about b/c that is the only way that one will search for greater understanding. From my own experiences, I will confirm that line of thought.

And if you are needing help or advice, feel free to reach out on here. There are many here to help.

Well I had the call with the person this evening. They were in your camp with a lot of thoughts. They thought the 20 minutes I was doing was way too much and said the most they'd ever suggest for anyone would be like 7 minutes and that's if their brain was in pretty good shape. For me they were thinking anywhere from like 30 seconds to 2 minutes and said that even if indirect light felt too stimulating that it's even effective if you close your eyes while wearing the filters as your brain will still receive what it needs to.

I want to have them help me as a guide but they have a program and it's super expensive. I've taken time off and things haven't calmed down for me so I feel like syntonics pushed me in to this state and syntonics is the only thing that can pull me out. Think I'll probably just take the plunge and have this person work with me because I don't know what I'm doing when it comes to filters or what to expect.
snappydad is offline   Reply With QuoteReply With Quote
Old 07-15-2022, 09:39 AM #10
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
snappydad snappydad is offline
Junior Member
 
Join Date: Jul 2022
Posts: 30
2 yr Member
Default

Just wanted to update you I'm supposed to be receiving my new syntonics filters from this group sometime today. I'll likely be starting getting back to things today or tomorrow so wish me luck.

Things have still unfortunately not calmed down for me by taking a break from syntonics so it feels like this intense light sensitivity and pain and no watching tv is here to stay unless I try something. Hopefully a week or two with the filters with indirect light and short time periods will slowly allow things to settle down and allow me to function better without my visual system making me feel so horrible.

I'll let you know what filters they're recommending initially just for your reference and in case anyone else stumbles along this thread down the road and hopefully sees my journey that will end in a success story.
snappydad is offline   Reply With QuoteReply With Quote
Reply

Tags
found, improvement, light, movements, sensitivity


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
syntonics for peripheral vision loss rjbillsfan2013 Traumatic Brain Injury and Post Concussion Syndrome 0 11-08-2013 06:55 PM
Experience with Visual Stress/Irlen Syndrome/Tinted Lenses Soccergal Traumatic Brain Injury and Post Concussion Syndrome 7 02-15-2013 10:23 PM
Eye Glasses comeback_kid_11 Traumatic Brain Injury and Post Concussion Syndrome 4 01-19-2013 12:20 AM
Blue tinted glasses madamlash Parkinson's Disease 5 08-30-2012 05:49 AM
Syntonics~Light Therapy & other alternatives for TBi pono Traumatic Brain Injury and Post Concussion Syndrome 4 11-06-2008 08:43 AM


All times are GMT -5. The time now is 06:57 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.