Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-09-2016, 09:28 AM #1
okrad okrad is offline
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okrad okrad is offline
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Default "You're Overreacting"

I went to the Dr who did test and said I have PCS. I made the mistake of telling my roommate. He kind of sneered and said, "Phhh. I wouldn't worry about that." and went on to say that everyone has them.

I was a bit taken aback if I had not already known he was an #$(#($.

So, do you guys have support or people telling you to stop whining and stop being dramatic and overreactive? Just curious how people respond when you tell them. I am not telling anyone else.

So if i said TBI it would be different?
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Old 09-09-2016, 11:55 PM #2
Bud Bud is offline
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Okrad,

Sympathy comes from a naturally sympathetic person or a person with experience in your suffrage is my guess.

I gained a great deal of compassion for athletes with head injuries after my accident, I thought they were fakers...it was just a concussion.

I try to mostly keep things to myself. I found no one can understand the dark symptoms of pcs, how can they when we can't even really describe them accurately half the time.

My wife listens but this place was a real Gosend for me,finally people who knew I wasn't faking or whining!

Bud
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"Thanks for this!" says:
thorx89 (09-12-2016)
Old 09-10-2016, 04:38 AM #3
okrad okrad is offline
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okrad okrad is offline
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Originally Posted by Bud View Post
Okrad,

Sympathy comes from a naturally sympathetic person or a person with experience in your suffrage is my guess.

I gained a great deal of compassion for athletes with head injuries after my accident, I thought they were fakers...it was just a concussion.

I try to mostly keep things to myself. I found no one can understand the dark symptoms of pcs, how can they when we can't even really describe them accurately half the time.

My wife listens but this place was a real Gosend for me,finally people who knew I wasn't faking or whining!

Bud
I am finding this a safe place, too. That is why I am posting a lot right now. I have two friends who had serious brain injuries. Both were on bikes about 20 years ago and both were hit by cars, both in coma for long times! I know them both because they are friends with each other. They are the nicest people I know but they do not have mTBI, they have serious damage.

They are both the nicest people you will ever meet. Never mad at anyone and both very very smart. One is still a biologist! The other was a gifted musician but cannot anymore.

I told the one but not the other. The one (musician) is so empathetic and kind that he does support me even thought I "just have Mtbi or concussion". The other would but I agree.....keep it to myself is best in most cases.

Of course, I do know other people with brain injuries who have not come around like these two. So it is just scary all around because you just don't know . And till they finish brain mapping project, they won't know. If fact, that may not even help because each brain is different.

THanks for the reply and support.
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Old 01-20-2018, 04:19 AM #4
anne12 anne12 is offline
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Originally Posted by okrad View Post
I am finding this a safe place, too. That is why I am posting a lot right now. I have two friends who had serious brain injuries. Both were on bikes about 20 years ago and both were hit by cars, both in coma for long times! I know them both because they are friends with each other. They are the nicest people I know but they do not have mTBI, they have serious damage.

They are both the nicest people you will ever meet. Never mad at anyone and both very very smart. One is still a biologist! The other was a gifted musician but cannot anymore.

I told the one but not the other. The one (musician) is so empathetic and kind that he does support me even thought I "just have Mtbi or concussion". The other would but I agree.....keep it to myself is best in most cases.

Of course, I do know other people with brain injuries who have not come around like these two. So it is just scary all around because you just don't know . And till they finish brain mapping project, they won't know. If fact, that may not even help because each brain is different.

THanks for the reply and support.
^ I've known a couple people w/ TBI, one who isn't w/ us anymore. [not cause of that by the way] and the other I don't have big deep conversations w/ so. I don't fully relate to that part.

But. For me. on FB anyway when I go through something difficult [which I do a lot. I have depression so] um. and I post something like 'i need your help' usually not many people actually.comment on that. And that's why I'm hesitant to hit up any friend of mine and tell them about.this. So for me. yeah other then on here and in my blog I'm keeping it to myself for now.
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