Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-02-2016, 07:15 AM #1
NooNooHead NooNooHead is offline
Newly Joined
 
Join Date: Dec 2016
Posts: 3
5 yr Member
NooNooHead NooNooHead is offline
Newly Joined
 
Join Date: Dec 2016
Posts: 3
5 yr Member
Frown Struggling with post concussion syndrome, and drug induced movement disorder TD

I'm cutting a v long story short here, and will be as brief as I can.

Last year, I had a mild traumatic brain injury, post concussion syndrome and an awful mental breakdown. I was helped by my very kind GP who prescribed various psychotropic meds to help with insomnia and severe anxiety. One of these was a typical antipsychotic that she gave me in desperation after other meds didn't work (antidepressants and benzodiazepines / sleeping pills).

Unfortunately the side effect of the antipsychotic was a rare movement disorder called tardive dyskinesia which is both disfiguring and socially embarrassing... Lucky me got this and I am living with involuntary movements (facial tics like grimacing and lip smacking, odd involuntary limb movements and other strange tics), alongside the awful mind blanks, acquired dyslexia and cognitive / memory issues that come with post concussion syndrome.

Fortunately I work part time from home as a self employed freelance copywriter and am lucky I don't have to encounter too many people during my everyday existence. I still do all the usual socialising / play dates and school runs etc for my daughter, albeit with an awfully heightened social anxiety despite my husband telling me no one is bothered by my odd movements etc.

I live life as fully as I can despite all my issues, but have been trying not to fall into the pit of depression that my movement disorder may not go away, or my head injury symptoms might not improve much more. Am I being unreasonable to want to sue the GP who prescribed these pills with the best intention, not knowing they could ever have the effect they did? I only took them for a week and she even told me not to look up the side effects, as she knew that I had was very sensitive to medications and had been worried about all the other drugs I'd been prescribed. But surely not to tell someone about a side effect, no matter how rare, is negligent?

Am I being unreasonable when I also worry about any future jobs or career being affected by my odd movements and my self consciousness about how I believe others may perceive me? I can't ever picture myself working in an office or public again as having to control my movements is a bit like someone with Tourette's... Semi-suppressible but not completely...

I cry often in quiet despair that my life has become what it is. I know others will say count your blessings, and there are others out there with much worse, which of course I appreciate - I guess I am worried about my future and how I would have to cope with the potential changes. 😔
NooNooHead is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Skeezyks (12-02-2016)
 

Tags
disorder, effect, movements, odd, prescribed


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Struggling with Post Concussion Syndrome PCSJourney42 Traumatic Brain Injury and Post Concussion Syndrome 19 09-13-2014 04:08 PM
Help! Post Concussion Syndrome advice/vestibular concussion? Hoping4thebest84 Traumatic Brain Injury and Post Concussion Syndrome 9 01-05-2014 10:05 AM
A Case of a Methadone-Induced Movement Disorder Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 1 01-11-2008 10:03 AM


All times are GMT -5. The time now is 06:12 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.