Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-06-2018, 08:35 PM #1
Mark in Idaho Mark in Idaho is offline
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That looks like a common multivitamin. I'd add a B-50 Complex (not B Complex). The dosages you are taking are minimal. Probably RDA based.

I'd also add 1000 to 2000 mcgs of B-12 methylcobalamin. Take it first thing in the AM on an empty stomach.

When you sleep on your side, your pillow should hold your head level.

The fact that you wake up with a headache suggests something is not as good as it should be.

I learned about my sleep being a big issue when I would fall asleep in my recliner and get good sleep. My wife would comment that I would have a peaceful expression vs a tense expression when sleeping in bed. She could tell when I was going to have a bad day by the look on my face first thing in the morning as she woke up.

I hope you can find the cause of your headaches.
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Old 06-07-2018, 12:28 PM #2
MicheleV MicheleV is offline
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Quote:
Originally Posted by Mark in Idaho View Post
That looks like a common multivitamin. I'd add a B-50 Complex (not B Complex). The dosages you are taking are minimal. Probably RDA based.

I'd also add 1000 to 2000 mcgs of B-12 methylcobalamin. Take it first thing in the AM on an empty stomach.

When you sleep on your side, your pillow should hold your head level.

The fact that you wake up with a headache suggests something is not as good as it should be.

I learned about my sleep being a big issue when I would fall asleep in my recliner and get good sleep. My wife would comment that I would have a peaceful expression vs a tense expression when sleeping in bed. She could tell when I was going to have a bad day by the look on my face first thing in the morning as she woke up.

I hope you can find the cause of your headaches.
Thanks. I'll add a good B 50 complex and more B 12. I did sleep a bit better last night! I tried very hard to sleep with my head in a straight line, not flexed like I prefer. I kept my pillow pretty flat also. I felt better this am! That's a START! Thanks so much for all your input! I'm still tossing around the idea of Cognitive FX. I talked to them and they couldn't get me in until August 20 anyways so I'm going to try UPMC Concussion clinic and see what they tell me June 18.
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Old 06-07-2018, 07:41 PM #3
Mark in Idaho Mark in Idaho is offline
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Most B-50 Complex supplements are the same dose. 50 mgs of most Bs and 50 mcgs of B-12 and another B.

B Complex or Super B Complex is a different product with usually a lower dose of the B vitamins but C and others things added.

I would consider UPMC before CogFX. UPMC is open about their research. Cog FX keeps most of their research hidden. Their 'successful' standard is subjective, not objective like I would like to see. $8000 to $10,000 is a lot to spend with a company that is not transparent about their process.
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Old 06-07-2018, 09:04 PM #4
MicheleV MicheleV is offline
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Thanks Mark. Do you know much about UPMC Concussion clinic?

Are there many on here with experience from UPMC?
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Old 06-08-2018, 12:10 AM #5
Mark in Idaho Mark in Idaho is offline
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UPMC is one of the first concussion research clinics beside Boston U and U Buffalo.

Some on NT have found help. And insurance usually covers their services.

Cog FX is a cash in advance program.
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Old 06-09-2018, 05:12 PM #6
MicheleV MicheleV is offline
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Quote:
Originally Posted by Mark in Idaho View Post
UPMC is one of the first concussion research clinics beside Boston U and U Buffalo.

Some on NT have found help. And insurance usually covers their services.

Cog FX is a cash in advance program.
Definitely will start with UPMC then! Thanks so very much! Got the B50 and B 12 today! I really appreciate all your input! Please let me know if you think of anything else!

I am trying to walk and keep y heart rate in the 80s. Some days I have trouble doing that. Today was one of those days. It kept jumping to 90s and above even walking so slowly or stopping for awhile. If I push on I get a headache, then nausea and then dizziness. If I don't stop it lasts the rest of the day! How do I ever advance form here! I try to walk 1-2 miles once or twice a day if I feel OK. I always walk at least 1.5 miles a day. I usually have to walk so slowly my pace it 35-40 minutes per mile to keep my heart rate in 80s.
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Old 06-09-2018, 05:49 PM #7
Mark in Idaho Mark in Idaho is offline
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I am amazed that just gentle walking can raise your heart beat so much.

Have you checked your blood pressure when you hit 90 bpm?

Do you take any aspirin or ibuprofen? Both are blood thinners and can make it so blood flows through the brain easier. Even low dose aspirin may be worthwhile. Enteric aspirin does not dissolve in the stomach so it is less upsetting.

I take 2 975 mg doses of enteric aspirin each day for arthritis (am and pm). It also keep my blood very thin.
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