Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-08-2017, 07:44 PM #11
Mark in Idaho Mark in Idaho is offline
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auntkathleen,

Welcome to NeuroTalk.

How can we help you?

Please feel free to start your own thread at
https://www.neurotalk.org/newthread....newthread&f=92
so you can tell us about yourself and your struggles.

My best to you.
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Mark in Idaho

"Be still and know that I am God" Psalm 46:10
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Old 02-09-2017, 07:51 PM #12
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Thank you for that information! I will definitely look into that. I think it could have a huge affect on my symptoms.

Quote:
Originally Posted by JBuckl View Post
I can only speak from my experiences. I had terrible visual and auditory processing. It's gotten much better, especially in this last month from vision therapy and syntonics (syntonic phototherapy). I see a behavorial optometrist trained in neuro-optometric rehab. About two months ago I was reading 15 minutes maximum at a time. I could probably do a 90-100 now. I've read lots of people have great success with vision therapy for both visual and auditory processing problems.

Here's the site. There may be a physician near you. Neuro-Optometric Rehabilitation Association

Good luck!
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.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 02-09-2017, 07:55 PM #13
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aunt kathleen, you are not alone. I just spoke with a doctor that had to give up his career because of a TBI from a car crash. It's a double edged sword talking to him. It's comforting to not be alone, but when he tells his story it's like he is talking about me. I am hearing my issues. That is hard to face. It is hard to understand why were are sitting the bench. He's a doctor, I'm a teacher...we were serving the public. We still have so much to give.

Quote:
Originally Posted by auntkathleen View Post
hi i can't believe there are people out there just like me. reading the post made me cry for everyone. im truely sorry we are all alike. not sure why we all had to change. its sad. thank ya'll for posting information, im not sure how it all helps but im glad im not crazy. thank you all.
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*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 05-17-2017, 09:06 PM #14
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Yes to all you said. Same feelings. Improvements but....sigh.

I went to Dr Zelinksy in Northbrook, Il. Near Chicago. She helped a lot with my visual processing. I get new glasses next week. Is she close to you? Have you read or listened ti the book "The Ghost in my Brain?". So important. May give you the hope you need.

I am getting tired of this. I understand your pain.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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