Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 02-07-2017, 06:14 PM #1
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
JBuckl JBuckl is offline
Member
 
Join Date: Dec 2013
Posts: 333
10 yr Member
Default Perilymph Fistula

Tomorrow I see an ENT doctor for vocal issues. However, I want to also bring up this head sensitivity problem that some on here seem to have.

I was talking with a lady on another forum, who also has the head sensitivity to movements and bumps. She was recently diagnosed with PF in both ears.

This one symptom is better than it has been in the past, but it still a major problem. Running, jumping, shaking my head "yes" and "no" leave me feeling dazed and light headed.
JBuckl is offline   Reply With QuoteReply With Quote

advertisement
Old 02-07-2017, 08:54 PM #2
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,416
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,416
15 yr Member
Default

Check out the past posts by RussiaRlz. I think he had PF treatment but was misdiagnosed and the ENT worked on the wrong ear at first.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
JBuckl (02-07-2017)
Old 02-07-2017, 10:06 PM #3
Living_Dazed's Avatar
Living_Dazed Living_Dazed is offline
Member
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
Member
Living_Dazed's Avatar
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Default

I am very sensitive to visual stimuli, movement, and sound. It drains my neuro energy. Besides the tbi I also have vestibular nerve damage. Not sure if it's the tbi or the nerve damage that causes mine.
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
Living_Dazed is offline   Reply With QuoteReply With Quote
Old 02-19-2017, 11:21 PM #4
russiarulez russiarulez is offline
Member
 
Join Date: Mar 2013
Posts: 173
10 yr Member
russiarulez russiarulez is offline
Member
 
Join Date: Mar 2013
Posts: 173
10 yr Member
Default

I'm the guy that Mark is referring to. You can find my other posts on the explanation of my surgery/outcome.
Long story short, the doctor talked me into doing a surgery even though the tests were inconclusive, he switched ears the day before the surgery, and I was desperate to do something. I felt worse for about three months even though the doc kept telling me it's normal (although his nurse told me that what was going on with me wasn't normal), and in the end was stuck with a $14K bill for a surgery that I didn't need.
__________________
12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
russiarulez is offline   Reply With QuoteReply With Quote
Reply

Tags
ears, feeling, head, sensitivity, symptom

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Perilymph Fistula, balance ear fullness MVTBI Traumatic Brain Injury and Post Concussion Syndrome 7 09-11-2016 11:33 PM
Perilymph Fistula russiarulez Traumatic Brain Injury and Post Concussion Syndrome 21 07-22-2016 02:33 PM
Test for Perilymph Fistula? martin82 Traumatic Brain Injury and Post Concussion Syndrome 3 09-30-2015 12:28 PM
Post-Concussion Syndrome and Perilymph Fistula gettingitback Traumatic Brain Injury and Post Concussion Syndrome 2 06-19-2013 10:55 PM
Looking for ear specialist - Perilymph Fistula imnotcrazy Traumatic Brain Injury and Post Concussion Syndrome 22 05-29-2013 07:28 PM


All times are GMT -5. The time now is 07:59 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.