Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-10-2017, 02:16 AM #1
windseeker242 windseeker242 is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Many clinics focus on return to play and athletes and patients who are closer to the original injury date.

Have you checked with the Ontario Neurotrama Foundation ? They have affiliates that may be able to help.

I don't remember right now but there is a large concussion program at one of the Florida hospitals.

I seem to remember. You are in the Bahamas or Barbados or ? Aren't you.
The Bahamas - I was a pilot once - you PM'ed about Bonanzas' and GUMPS
Back then I believed 'It' would all go away in a few months. I now know I'll never be a pilot - or anything for that matter.

I'm hesitant to deal with Canadian Health Care - it's a bit too much of a circus that you can't simply pay your way through - government is too involved. The US is simpler - capitalist society....you get what you pay for and if you don't like it........leave and find another.

I've looked around at all sorts of treatments and most of them seem like snake oil....there's that one quack injecting steroids directly into people's brainstems. He patented it in an attempt to give it some legitimacy.

Someplace in Guelph that sticks magnets to your neck......seems quacky

The Buffalo Protocol seemed to hold some weight but alas, they only want to treat the few.

In year one I tried a chiropractor but he only got angry at me when I told him it wasn't helping me.

Recently
Somebody on reddit.com/r/TBI posted:

Quote:
I am one of the TBI survivors who have had great success with neurofeedback. I recommend that people with moderate or severe TBIs try to find a dr. (neurologist, psychologist, etc.) who does it because a practitioner does not have the knowledge to deal with a TBI; they are trained to work on a normal, healthy brain. Practitioners come from all backgrounds, including social work.
As for the wiki page, it is more positive than it used to be. Neurofeedback treatment is becoming widespread. Here's an article from the Washington Post.
Washington Post Article

This silly article gave me some hope that it might help me.

I thought I should ask others thought before jumping down the rabbit hole. I will only have one shot at this.

My old man is not going to pay for every little strange treatment that pops up. You shoulda heard the arguments "The Ghost In My Brain" caused.




Father: "HOW CAN FUNNY GLASSES HELP YOU!?!?!"

Me: "I don't know, but isn't it worth trying??? This endless attitude of "just work it off" is NOT WORKING!"

Father: "Whenever I'm not feeling well, I just accomplish something and I feel better"


If I survive long enough until his health starts to fail from age, I WILL MAKE HIM EAT THOSE WORDS.





I'll give this thread a few days - hopefully someone will chime back in with positive or negative experience with neurofeedback.
Otherwise, I'll ask you for a suggestion as to where to go.

Not that I'm hesitant to take your advice, it's just (and I know it's childish) part of me wants to believe that this might actually work.
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Old 02-10-2017, 02:34 AM #2
Mark in Idaho Mark in Idaho is offline
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The problem with neurofeedback is it is a broad term. There are many different types. Lots of snake oil and some worthwhile for specific symptoms. Dr Walker in Dallas TX has had some success but it takes weeks.

If you have $10,000 to risk, Cognitive FX | Premier Cognitive Imaging and Therapy may be worth a try. I am skeptical but...... They are in Utah by Salt Lake City.

Is the Guelph place http://www.mmtrphysiotherapy.ca/ ?
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Old 02-10-2017, 02:48 AM #3
windseeker242 windseeker242 is offline
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Quote:
Originally Posted by Mark in Idaho View Post
The problem with neurofeedback is it is a broad term. There are many different types. Lots of snake oil and some worthwhile for specific symptoms. Dr Walker in Dallas TX has had some success but it takes weeks.

If you have $10,000 to risk, Cognitive FX | Premier Cognitive Imaging and Therapy may be worth a try. I am skeptical but...... They are in Utah by Salt Lake City.

Is the Guelph place Research-Based Concussion Clinic in Guelph | MMTR Physiotherapy ?
Yeah - that's the one in Guelph. Just didn't make much sense to me.

Looking around the forum, I'm starting to see what you mean by "broad term"

Cognitive FX USA would be a tough sell.......
Why do you suggest them? Has anyone posted good results?
I get nervous when a group says "Results in 1 week!"
Do you know what their approach is in a sentence? It's very "marketing" style of text on their page.


This is all starting to feel hopeless again.....
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Old 02-10-2017, 11:00 AM #4
Mark in Idaho Mark in Idaho is offline
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There is Carrick. It has a hit or miss result. Some get a good result. Others get no benefit.

Cog FX would at least do some fMRI imaging to confirm a brain that is out of balance. But, they are full of marketing hype. I don't like that either.
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windseeker242 (02-15-2017)
Old 02-16-2017, 01:22 PM #5
Hains Hains is offline
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Quote:
Originally Posted by windseeker242 View Post
The Bahamas - I was a pilot once - you PM'ed about Bonanzas' and GUMPS
Back then I believed 'It' would all go away in a few months. I now know I'll never be a pilot - or anything for that matter.

I'm hesitant to deal with Canadian Health Care - it's a bit too much of a circus that you can't simply pay your way through - government is too involved. The US is simpler - capitalist society....you get what you pay for and if you don't like it........leave and find another.
Consider Catalyst Kinetics (Catalyst Kinetics Health Clinic & Sports Training 64.254.7687) in Burnaby, BC, Canada. Many professional athletes go to this place from around the world to treat concussions. It's private so there's no bureaucracy to navigate. The Canadian dollar is weak compared to the US dollar so there's big cost savings. Burnaby is also right beside Vancouver which has an international airport. This facility has Physios, Naturopaths, Chiros, personal trainers, and massage therapist that are all trained in concussion recovery, hence why many pro athletes go there.
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Old 02-17-2017, 09:06 PM #6
windseeker242 windseeker242 is offline
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Originally Posted by Hains View Post
Consider Catalyst Kinetics (Catalyst Kinetics Health Clinic & Sports Training 64.254.7687) in Burnaby, BC, Canada. Many professional athletes go to this place from around the world to treat concussions. It's private so there's no bureaucracy to navigate. The Canadian dollar is weak compared to the US dollar so there's big cost savings. Burnaby is also right beside Vancouver which has an international airport. This facility has Physios, Naturopaths, Chiros, personal trainers, and massage therapist that are all trained in concussion recovery, hence why many pro athletes go there.
Have you had any experience with this clinic?

What does their treatment entail?
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Old 02-17-2017, 09:46 PM #7
Mark in Idaho Mark in Idaho is offline
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I researched this clinic. They are focused on chiropractic, kinesiology (sports training), physical therapy and naturopathy. They do not mention any neurofeedback treatments. It looks like one of the chiros may have some Carrick training but they do not say anything but functional neurology. The physical therapist list some concussion training. They are all young and early in their careers.

In my opinion, it looks like they are trying to be a Carrick like clinic.

I would not bet money on them.
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