Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-12-2017, 05:27 PM #1
nickd nickd is offline
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Default Can't understand why i seem to have gone backwards

Apologies for another thread. I'm just so nervous and frustrated

My ability to exercise, which I've been working on at PT, has been dramatically reduced. I felt decent today after a chiropractic adjustment, but Walking 10-15 minutes dramaticlwly increased my symptoms and now I feel horrid. Symptoms ramped up badly. Just a week or two ago I would have been able to do this just fine.

I was beginning to have times where I could tolerate a little bit of socialization, but now within minutes of being with friends I start to feel horrid again.

I'm now sensitive to bumpy roads and head jostles. I wasn't before.

I get headaches much more frequently, which haven't been one of my biggest issue up to this point.

Can't handle more than 5 or so minutes of TV. Used to be able to go 20-30 minutes a month ago.

And (although this isn't new), my inability to speak eloquently is drive me crazy. I used to get complimented on my confident and concise public speaking. I can't believe I've lost that. I want it back so badly.

Is this normal to suddenly have worseneing symptoms? Maybe I hit my head on the headboard/wall in my sleep or something? Sometimes I hit my head in my dreams. Could this be based in reality? I just can't figure out why I'm feeling so much worse lately other than possibly having hit my head again. and that thought scares me to no end. God, I can't afford another concussion

I'm so upset

Last edited by nickd; 04-12-2017 at 06:02 PM.
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Old 04-12-2017, 06:41 PM #2
Mark in Idaho Mark in Idaho is offline
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Stop tracking or measuring your symptoms.
A single chiro adjustment will not make a difference unless you have a locked up back. The idea that you tracked how you felt after a chiro adjustment suggests you are too focused on tracking symptoms.

When you say 'socialize with friends,' what does that mean ? Going to a club ? Large groups with lots of voices ? Noisy environments ? Have you tried wearing foam ear plugs in environments with lots of voices ? You can still hear nearby voices with them.

What do you mean by exercise ? Are you doing cardio with a targeted heart rate ?

Can you watch a Crackle (free) or Netflix or Hulu or YouTube program on a computer with ear buds ?

Are there some types of TV programs that you tolerate better than others ?

My concern is that you have over-sensitized yourself to the slightest appearance of a symptom. Once you notice it, anxiety kicks in and magnifies it 10 fold. Many of us live with PCS symptoms at a 2 or 3 level. If we let them frustrate us, that frustration anxiety will quickly push those symptoms to an 8 or 9 intensity.
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KimberlyDorsett (05-20-2017)
Old 04-12-2017, 06:52 PM #3
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Quote:
Originally Posted by Mark in Idaho View Post
Stop tracking or measuring your symptoms.
A single chiro adjustment will not make a difference unless you have a locked up back. The idea that you tracked how you felt after a chiro adjustment suggests you are too focused on tracking symptoms.

When you say 'socialize with friends,' what does that mean ? Going to a club ? Large groups with lots of voices ? Noisy environments ? Have you tried wearing foam ear plugs in environments with lots of voices ? You can still hear nearby voices with them.

What do you mean by exercise ? Are you doing cardio with a targeted heart rate ?

Can you watch a Crackle (free) or Netflix or Hulu or YouTube program on a computer with ear buds ?

Are there some types of TV programs that you tolerate better than others ?

My concern is that you have over-sensitized yourself to the slightest appearance of a symptom. Once you notice it, anxiety kicks in and magnifies it 10 fold. Many of us live with PCS symptoms at a 2 or 3 level. If we let them frustrate us, that frustration anxiety will quickly push those symptoms to an 8 or 9 intensity.
By socializing with friends, I mean anything from sitting around a quiet room with a few friends or going to restaraunt. Can't handle any of it.

Can't really handle computers too well. I seem to tolerate the smart phone better than my lap top. Maybe because I don't have to move my eyes as much

As for TV, early on in the recovery I could handle football games somewhat decently. But just the other day I couldn't even tolerate watching the Masters (probably as low stimulation tv as you can get) for more than a few minutes. That's part of when my fear of a new unrealized injury really began to increase. I know it's probably irrational but I just don't understand it

As for exercise, Im just attempting to walk down the street and back. The goal is to get to 20. I still have yet to get there though.

Finally, yeah I believe the anxiety is a big part of it. I just have a really really hard time eliminating it. Hopefully once I get medication I can see a difference here



Also, if what you say about chiro results not being possible in one visit, then perhaps my issues are more neck/crrvical than brain? That would be nice. Maybe I'm just grasping at straws.


As always, thank you. From the bottom of my heart
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Old 04-12-2017, 07:11 PM #4
Mark in Idaho Mark in Idaho is offline
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You don't have an unrealized injury. First, you need to get that out of your head.

Have you been assessed by a behavioral optometrist ? NORA has a referral system. Health Care Locator Custom

Do you have different resolution TVs to experiment with ? I had a problem with hi def TVs early on. I did much better with the old tube TVs. HiDef has 2 to 8 times as many pixels for the brain to process and much more brightness. http://removeandreplace.com/wp-conte...1080-4K-8K.jpg

"As for exercise, Im just attempting to walk down the street and back. The goal is to get to 20. I still have yet to get there though."
Get to 20 what ?

"By socializing with friends, I mean anything from sitting around a quiet room with a few friends or going to restaurant. " I can understand the restaurant but quiet time with friends should not be an issue. It sure sounds like something else is at play, like anxiety.

What medication are you looking forward to ?
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Old 04-12-2017, 07:20 PM #5
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Quote:
Originally Posted by Mark in Idaho View Post
You don't have an unrealized injury. First, you need to get that out of your head.

Have you been assessed by a behavioral optometrist ? NORA has a referral system. Health Care Locator Custom

Do you have different resolution TVs to experiment with ? I had a problem with hi def TVs early on. I did much better with the old tube TVs. HiDef has 2 to 8 times as many pixels for the brain to process and much more brightness. http://removeandreplace.com/wp-conte...1080-4K-8K.jpg

"As for exercise, Im just attempting to walk down the street and back. The goal is to get to 20. I still have yet to get there though."
Get to 20 what ?

"By socializing with friends, I mean anything from sitting around a quiet room with a few friends or going to restaurant. " I can understand the restaurant but quiet time with friends should not be an issue. It sure sounds like something else is at play, like anxiety.

What medication are you looking forward to ?
I can't do the quiet room with my friends because of my speaking. Conversation is very difficult. My brain becomes fatigued and overloaded.

Interesting point on the TVs. Only have HDs in the house but maybe I can turn down the resolution?

Apologies for not clarifying on the 20. 20 minutes is the current goal. I want to do 20 minutes every day but I can barely do half of that, and still feel a symptom increase

Looking forward to getting an SSRI. I have an appt with my psychiatrist next week. I was debating whether I wanted to get it up till now, and was putting off that appointment. Now I'm ready.
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Old 04-12-2017, 09:03 PM #6
trevorh92626 trevorh92626 is offline
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Quote:
Originally Posted by nickd View Post
I can't do the quiet room with my friends because of my speaking. Conversation is very difficult. My brain becomes fatigued and overloaded.

Interesting point on the TVs. Only have HDs in the house but maybe I can turn down the resolution?

Apologies for not clarifying on the 20. 20 minutes is the current goal. I want to do 20 minutes every day but I can barely do half of that, and still feel a symptom increase

Looking forward to getting an SSRI. I have an appt with my psychiatrist next week. I was debating whether I wanted to get it up till now, and was putting off that appointment. Now I'm ready.
Hey Nick, sorry to hear about all of your symptoms brother, you and I have very similar cases and we seem to be near the same age (I'm 20). Got a skull fracture/TBI (no coma) when I was 13, seemed like I fully recovered In a couple months. Then in December 2015 I got completely knocked out on the asphalt by a few guys and pounded for a good amount of time after I was out cold (woke up in ER next morning barely recognizable) . What worries me now is what seems to be an increasing sensitivity to movement. I have to monitor how my feet touch the ground, can't move my head to fast or I will DEFINITELY feel it, cars bumps are jarring, but with my 220lb frame it seems like my feet touching the ground gives my head the biggest jolt. I am trying everything and will absolutely not give up, if I keep going on this way it won't be much of a life at all. Just paid for 40 visits at a hyperbaric place near my house (I'll keep u
Posted) on that, I am doing extensive research on the stem cells (hopefully that will help with the over sensitive head, luckily parents will pay for treatment) . I am trying to get a lot of rest, head movement excrsizes, powerful DHA fish oil, magnesium, d3, lots of fresh Turmeric and curcumin supplements, literally devoting my life to trying to heal. I think we should keep in touch we can use the support of each other. I think it's pretty rare two guys who aren't even old enough to drink yet can't even move their head swiftly without getting jarred, sad stuff but I feel like not giving up is the key. Can't wait to hear back from you man, God bless

Sincerely, Trevor
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