Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-14-2017, 02:40 PM #31
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Quote:
Originally Posted by brandnewconcussion View Post
When I saw the optimism in your first post, saying that you might be as good as new after a moderately severe concussion I knew you were setting yourself up for disappointment. Unfortunately, you will never be as good as new.
Yeah, well, that's just, like, your opinion, man.
I will be the judge of that. Time will tell.
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Old 09-14-2017, 04:04 PM #32
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Originally Posted by temporary View Post
Yeah, well, that's just, like, your opinion, man.
I will be the judge of that. Time will tell.
Well, its clear you have an optimistic outlook, judging from your username too. Going unconscious for such an extended period is terrible and reflects rather significant brain damage though, you should be undergoing therapy at a hospital. Smutsik, who gave you advice, hit his head on a metal beam and felt no symptoms for days, making his a "mild concussion", and is still suffering badly from the symptoms. Your injury seems to be several orders of magnitude more severe.
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Old 09-14-2017, 04:17 PM #33
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Something to remember is every person & every injury is different.

Nobody can predict future outcomes, just too many variables..

The goal here is to share helpful information & be supportive to fellow members.
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Old 09-15-2017, 08:37 AM #34
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Originally Posted by brandnewconcussion View Post
Well, its clear you have an optimistic outlook, judging from your username too. Going unconscious for such an extended period is terrible and reflects rather significant brain damage though, you should be undergoing therapy at a hospital. Smutsik, who gave you advice, hit his head on a metal beam and felt no symptoms for days, making his a "mild concussion", and is still suffering badly from the symptoms. Your injury seems to be several orders of magnitude more severe.
Time will tell.
I will try walking every day, and let time heal me. I don't need hospital therapy. Thanks anyways. And i don't know how severe or not severe mine is compared to other peoples. Everyone heals different and everyone is different.
I was unconscious for 5 min, was up a bit, then and fell asleep for a while. But i did not throw up, and that might been a good sign. There are people who have shitted themselves and throwing up after a bad hit.. Like snowboarding, etc. And some of them have even recovered fully!
So everyone is different. I'm going to try and stay positive. But might take a break from this thread and try to heal for a while. (Try to limit the computer.) But i appreciate the answers/advice/knowledge on here.

Last edited by temporary; 09-15-2017 at 11:36 AM.
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Old 09-16-2017, 12:32 PM #35
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Quote:
Originally Posted by brandnewconcussion View Post
Well, its clear you have an optimistic outlook, judging from your username too. Going unconscious for such an extended period is terrible and reflects rather significant brain damage though, you should be undergoing therapy at a hospital. Smutsik, who gave you advice, hit his head on a metal beam and felt no symptoms for days, making his a "mild concussion", and is still suffering badly from the symptoms. Your injury seems to be several orders of magnitude more severe.
I'm not sure about which impact of mine that you are referring to as the first concussion I sustained 1,5 years ago was against a window sill and the more recent one against a ceiling, but in both cases I felt substantial symptoms immediately. Maybe you have me confused with someone else?

I can only speak for myself, but I'm hoping for a complete recovery. I still have trouble with noisy environments and being around people but I'm currently managing studying sociology at university at full speed. It might take years before I'm fully (or as good as fully) recovered but I can't be sure that my healing has stagnated until I'm in the grave. I feel like the mentality regarding one's recovery has to be one's own.
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Old 09-20-2017, 02:46 AM #36
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Quote:
Originally Posted by smutsik View Post
I'm not sure about which impact of mine that you are referring to as the first concussion I sustained 1,5 years ago was against a window sill and the more recent one against a ceiling, but in both cases I felt substantial symptoms immediately. Maybe you have me confused with someone else?

I can only speak for myself, but I'm hoping for a complete recovery. I still have trouble with noisy environments and being around people but I'm currently managing studying sociology at university at full speed. It might take years before I'm fully (or as good as fully) recovered but I can't be sure that my healing has stagnated until I'm in the grave. I feel like the mentality regarding one's recovery has to be one's own.
Oh my bad, i thought you were the person who hit his head on a metal beam had no immediate symptoms then symptosm developed over the next few days.
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Old 02-18-2018, 04:34 PM #37
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Hi. I'm tired when writing this.. But i have had ups and downs. Still recovering, though. I have had days when i have felt quite fine (almost no symptoms at all.), and days when i felt a bit dizzy.
I feel like allot has recovered, but not fully recovered. Been 7 months now! That is a long time! I have not been to any doctor yet, but might go because i am wondering about the twitching i have before falling asleep, or resting from time to time. Might got epilepsy after that hit.. But i am conscious, or half awake.. My head twitches.. And sometimes my body. More like glitches.
It's mostly annoying. It started the first night after i hit my head. Then i was shaking in my sleep i think. (yeah, i woke up from that the first nights at home.) Now i just sleep deep and never wake up until after 8 hours, or how the night is.
I might go and see a doctor about this and just ask about why my head is shaking or twitching before i fall asleep, etc. Or when i'm resting sometimes.. Not sure if it's necessary.
Guess my nerve system got a big hit and my brain is trying to recover when i sometimes twitch. Or if it's "epilepsy" i don't know. Have not checked it out yet, but will or might..

Have anyone of you got epilepsy or twitching after hitting your head hard? Did it go away? But not unconscious epilepsy or twitching. I think, and i hope it will go away eventually. This might take time!
Thanks!


Edit: Found this
Involuntary Muscle Jerks Shakes Twitches - YouTube
Why Do We Twitch Before Falling Asleep? - YouTube

Almost like the dude resting, but sometimes a bit more "violent" and sometimes not.. My head moves to the side of the pillow and it feels like it's my nerves mostly. I can like throw up a leg sometimes, etc.
Wery wierd hehe. But apart from that i feel quite fine actually. Almost back to normal. Not fully, but almost. Will wait out a year more. This will go away eventually. Might not be epilepsy, and Involuntary Muscle Jerks.. When resting or fallin asleep.

Read this in one comment under the video:
"This is perfectly normal. It's simply energy adjusting and harmonizing itself thorough the organism via the nervous system."

Or

"For me it is pretty obvious that the twitches are related to stress and anxiety but how can you decrease stress and anxiety?"

I don't have any footage on my twitches though. Apart from that i feel fine most of the time.

I can also really really recommend LIONS MANE for you dudes, or girls. Research about it. I have taken it one month and things have improved! Seems like a miracle mushroom i stumbled across a while back. (NGF Nerve growth factor and neurogenesis.) Peace

Last edited by temporary; 02-18-2018 at 05:05 PM.
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Old 02-18-2018, 04:59 PM #38
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The twitching is not epilepsy. I had it bad in the beginning. My doctor first treated it with clonazepam (a benzo) before bed. It made me sleepy the next day. He switched me to gabapentin and it worked great.

I never got a full explanation from my neuro but the gist is that it is just a benign event that is sort of a nerve restlessness as the motor nerves and proprioception nerves let go as one transitions from awake to sleep.

For me, there appeared to be a neck inflammation component. Once I learned how to mitigate my upper neck inflammation, the twitching all but ended. I get it on rare occasions now but they are few and far between. I still take 300 mgs of gabapentin before bed because my nervous system seems to want to stay on alert status if I don't.

Some of my sleep disturbance issues are due to sleep apnea. I can stop breathing properly even when I am awake.

I have had many different seizure like symptoms since my bad concussion at 10 years old in 1965. Every neuro told me these were not epilepsy. At most, they were a trauma related intermittent seizure disorder.

A hypnagogic jerk is an involuntary muscle spasm that occurs as a person is drifting off to sleep. The phenomenon is so named in reference to the hypnagogic state — the transitional period between wakefulness and sleep. Hypnagogic jerks, are also commonly known as hypnic jerks or sleep starts.

Hypnic Jerks - The Reason Why We Twitch Before Falling Asleep
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Old 02-18-2018, 05:25 PM #39
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Quote:
Originally Posted by Mark in Idaho View Post
The twitching is not epilepsy. I had it bad in the beginning. My doctor first treated it with clonazepam (a benzo) before bed. It made me sleepy the next day. He switched me to gabapentin and it worked great.

I never got a full explanation from my neuro but the gist is that it is just a benign event that is sort of a nerve restlessness as the motor nerves and proprioception nerves let go as one transitions from awake to sleep.

For me, there appeared to be a neck inflammation component. Once I learned how to mitigate my upper neck inflammation, the twitching all but ended. I get it on rare occasions now but they are few and far between. I still take 300 mgs of gabapentin before bed because my nervous system seems to want to stay on alert status if I don't.

Some of my sleep disturbance issues are due to sleep apnea. I can stop breathing properly even when I am awake.

I have had many different seizure like symptoms since my bad concussion at 10 years old in 1965. Every neuro told me these were not epilepsy. At most, they were a trauma related intermittent seizure disorder.

A hypnagogic jerk is an involuntary muscle spasm that occurs as a person is drifting off to sleep. The phenomenon is so named in reference to the hypnagogic state — the transitional period between wakefulness and sleep. Hypnagogic jerks, are also commonly known as hypnic jerks or sleep starts.

Hypnic Jerks - The Reason Why We Twitch Before Falling Asleep
Alright. Thanks for the answer Mark. I'm sorry about your accident, and that/if the damage went permanent.
Well, for my symptoms you might be right. But i don't twitch one time, my head can shake from side to side, etc. And press on the pillow with one side. But still, it can be the nerves...
I have also been under ALLOT of STRESS since this accident. My first weekend where i can drink like 5 beers since 8 months. puh. Some release actually.
I have also made a mistake on how i lay at the computer on my side and hold up my head with my neck muscle. And many many hours a day. So my right side of the neck probably have knots or is very stiff. I should try and loosen that up for blood flow, and going to get a computer chair like "normal people" sit at the computer later on.
Got the keyboard on my bed. It's lazy, but not good for my neck. Need that to be massaged out some day. Probably good to have loose neck muscles for blood circulation to the brain in the best way..

Anyways. I have had normal twitches when falling asleep when younger, but these are more violent sometimes. But i bet it's stress and the nerves.. Or when i rest sometimes. Maybe hypnagogic jerks, etc. You might be right.

Anyways. I appreciate your answer mark. Thank you. Will look up the link. Also, try looking into lions mane if you have not heard of it. Seems very good, and maybe it can make some things better for you, i don't know. Keep on keeping on. Peace
Lion's Mane, Supportive to Brain and Nerve Functions - YouTube

edit: Also sounds good that your twitching went better, and has almost stopped. Lions mane should help against twitching to i think. Or CBD hemp oil. (Or cannabis CBD oil.)

One month i tried meditating every morning, and that made me feel better also. Learning to meditate, but now it's been a while. A month maybe..
Feels like meditation helps also, if one can get the time to do so. I will try and continue learning that, i got side tracked and almost forgot about it. Trying sometimes.

Last edited by temporary; 02-18-2018 at 05:46 PM.
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Old 02-18-2018, 06:29 PM #40
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There are two very important concepts to remember after a concussion.

1. Stay away from alcohol. One serving per day/evening is considered an acceptable risk as a stress reliever. No more than that. No getting buzzed, much less drunk.

2. Take disciplined control over your posture. The blood flow interruptions can make any and every symptom worse.

You prolonged struggles could be of your own making.

Stress increases the hypnogogic jerks.

btw, Mine would not be a single jerk but prolonged jerking (sometimes intermittent) as and after I fell asleep. My wife could not sleep be cause they triggered her to be waiting for the next jerk.

CBD oil requires up to 40 grams a day for a therapeutic effect. $$$$$

Lion's mane is not proven and hard to get and $$$$ at therapeutic amounts.

Why go after CBD or Lion's Mane when there are a lot of simple changes you can make to improve your recovery?

What have you done to reduce your stress levels?

If you use the Post Reply at the bottom left, it does not quote the previous post. It makes scrolling easier.
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