Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-26-2017, 02:10 PM #21
Mark in Idaho Mark in Idaho is offline
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It is more important to get up at the same time than it is go to bed at the same time. This is information I learned from a Neuro Rehabilitation sleep specialist. Wake up sets your go to sleep time. She told us to focus on get up time and let go to sleep time (sleepiness) come more naturally. You should be getting up at the same time every day of the week. No sleeping in on days off unless that staying in bed in the morning is due to bedroom activities. Those bedroom activities would be better before going to bed. But, you should wake up at the same time.

I have horrible tinnitus, louder than my laptops cooling fan and most ambient noise. I do better with the tinnitus that my wife's occasional snoring so I keep ear plugs handy. It takes work to learn to ignore tinnitus.

There are two issues, sleepiness and tiredness. Sleepiness is a brain issue. Tiredness is a body issue. Exercise can help with tiredness but not sleepiness.

Mild physical activity will temporarily reduce or overcome tiredness but it will not affect sleepiness. Intense activity can release adrenaline that can disrupt sleepiness.

I never realized sleeping was so complex but for an injured brain, it becomes a critical issue.
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Old 10-27-2017, 07:18 AM #22
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Alright i will discipline myself to wake up at the same time everyday. I didn't know that it was more inportant than sleep time.

What you said about sleepiness and being tired is very interessting. I was very sleepy for 2 months. Now I'm very tired, but not sleepy anymore. Actually I'm way more tired then in the beginning. I think lack of phsysical excersise and of course lack of sleep is the main culprit. My osteopath also thinks my brain must have healed well by now (can't tell for sure) but my biggest problem is physical (neck and muscle tension).

I got my c2 adjusted today so I'm excited to see progress.

Yeah getting over tinnitus is not easy. I'm at a point where i can tolerate it. I don't even mask it anymore. And sometimes i even forget it's there. Despite i can hear it over tv and stuff. But wearing earplugs is still something i can't do. But i will in time. It's not my biggest worry
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Old 10-27-2017, 12:48 PM #23
Mark in Idaho Mark in Idaho is offline
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Sleepiness is a part of the daily circadian rhythm. One would not feeling sleepy all day or for a week.

One can feel tired without being sleepy. The purpose of getting up at the same time is it helps the body set that sleep clock for sleepiness to set in 14 to 16 hours later. Sleepiness is triggered by awake time.

The mental fatigue of PCS is an entirely different issue. But, it can be managed so it does not interfere with the sleep cycle. A very short nap or doze can reduce mental fatigue without messing up the sleep cycle by much. 5 to 10 minutes should be the max.

Mental fatigue is often the result of lack of qualify of sleep. For me, it was a result of sleep apnea that also left me tired during the day. I would struggle to think because my brain was still full of the toxins from previous days.

A common problem with sleep is having food energy to use during sleep. Some people have a blood sugar drop 7 hours or so after a meal. This can interrupt sleep. I have to have 150 to 200 calories before bed. A slice of cheese with some crackers, some raisins and nuts, a piece of toast with peanut butter on it. I have a snack and 30 to 45 minutes later, I am ready for sleep and I will sleep soundly for 6 to 7 hours.
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Old 10-28-2017, 11:05 AM #24
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Ok thanks for the many tips on sleep. I will definitly follow them, since sleep is so important. I also felt that eating a snack in the evenening helps sleep.

Its only been 2 days but i don't feel any pain anymore since the neck adjustment. It feels like I'm in the last stage of recovery. If i can get my sleep right, then the fatigue would get better and break the vicious cycle.

Btw, do you sleep completely natural? I mean with not sleeping pills what so ever. My doctor gave me benzos, but i know that is a bad idea when you have a concussion.
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Old 10-28-2017, 11:56 AM #25
Mark in Idaho Mark in Idaho is offline
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I was put on benzos in the beginning because my undiagnosed sleep apnea was causing me to have seizure like movements. I was switched to gabapentin at 1200 mgs. I am down to 300 mgs. It helps my body let go of sensations so it does not twitch from them. I had a occasional restless leg issue. I also was sleeping with tensed muscles. With the gabapentin, those muscles relax.

Yes, benzos are not good. Gabapentin should also be limited to small doses.
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Last edited by Mark in Idaho; 10-28-2017 at 12:54 PM.
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Old 11-01-2017, 05:15 AM #26
todayistomorrow todayistomorrow is offline
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Now that I’m off pain pills which was horrible idea, I can’t sleep. Ambien and Benzos make me too foggy the next day but I at least sleep. Without them very hard to get to sleep and I wake up at 3am.

How is gaba in regards to fatigue/fog next day. I was on 200mg a few years ago but forget what it was like. Now that I have 2 little ones I can’t function.
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Old 11-01-2017, 11:43 AM #27
Mark in Idaho Mark in Idaho is offline
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I have no side-effects from gabapentin. Never have even at the higher doses. I take it an hour or two before going to bed. I also need a small snack to get my blood sugar in a sleep mode. Crackers and cheese do me well.

If I forget to take my gabapentin, a few hours later, I am wondering why I am not sleepy yet. My mind wants to pay attention to too many things. Then, I take it and slowly my world settles down and all of the things my mind wants to pay attention to have faded away. Now, I can choose to let go and go to sleep without any effort.

The gabapentin does not make me sleepy. It lets me become sleepy if I choose to let go of the day. If something comes up that needs my attention, I can still be on top of my game.
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