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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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11-15-2017, 04:14 PM | #1 | ||
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Newly Joined
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Hello again everyone,
I've only posted here once, and I was overwhelmed with the knowledgeable love and support I received. Not to recount my entire life story, but some information about me that might be helpful: Diagnoses:
Symptoms:
Brief History:
Things we've tried:
My most recent adventure has been going to the LA Children's Hospital Pain Management Clinic, it was certainly interesting... Suggested acupuncture, yoga, change in meds, and physical therapy (which has never been suggested before, even though I've been injured a million times). Some random questions:
Thank you all in advance, sorry if I'm repetitive or put too much or too little information. Again, thank you in advance. |
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11-15-2017, 05:14 PM | #2 | ||
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Legendary
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CowboysKat,
Welcome back. You should add B-12 and the other Bs to your regimen. A good dose of curcumin extract a couple times a day would be worthwhile to see if it reduces your inflammation. Finding a position that does not strain your neck is a challenge. It takes effort to learn to sleep without support lifting the head. I roll the sides of my pillow up so it supports my head from moving to the side. It takes good discipline to get each chiro treatment to last. Icing after an adjustment can help. Find a good chiro out of 3 is amazing. I have found maybe 1 in 6 is any good. Most are too mechanical in their treatment. The word finding without memory problems is not a big deal. I would trade my memory problems for more word finding problems any day. Pushing too hard to find a word usually just makes it worse. There are a variety of word fining problems. Considering the severity of brain injuries you have had, you should be grateful these are your only problems. I and many of my mTBI friends are much worse from less severe injuries. Other than your pain, the rest of your problems can be managed. Try to learn to accept them and find ways to minimize the impact they have on your life. Understanding the word finding so you do not feel like a failure each time will be important. The frustration of trying to find the simple words can be a struggle. I have lived with that for 17 years. There is a part of the brain that is damaged. It may never recover. A speech therapist may be able to help you with some strategies. Sometimes, I can look around the room and as I see different images, my brain unlocks and the word pops up. I hope you have put your riding helmet away. It sounds like riding has been a big part of your injuries. Ouch. Dimming computer screens can help. F-lux.com can help if the computer does not have a dimming function on the key board. Tinted glasses can help. Getting a full assessment by a behavioral optometrist can be helpful. Check https://nora.cc/healthcare-locator.html You should feel fortunate that you can pursue college. I had to drop out. I did not have any help or understand my struggles. I just knew my brain was messing up. I finished high school with honors despite having one bad year due to a head injury. I mostly recovered from that bad year but my cognitive struggles came roaring back in college. Take college slow if you have to. Ask the Disabilities Office if they can help you. Lecture notes or recordings, more time for exams, and other accommodations can make a difference.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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11-22-2017, 06:51 PM | #3 | ||
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Junior Member
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Hi Cowboys Kat,
I'm really sorry to hear about your accidents, - I too have had quite a lot of trouble finding the right sleeping arrangements, lately I have been trying to sleep with no pillow, as I find it to help me stay asleep on my back for most of the night (usually I end up on my side and that causes my neck to stiffen up) - In terms of word finding, yes! Every day there is moments when I have a conversation, and a word will just get stuck, I believe that it occurs to me when my mouth starts talking faster than my brain can keep up with, as I usually am out of breath and it seems as my brains processing power gets maxed out for just a second or two. The fact that your memory is working well is a great sign, as it shows that the capacity is still there but sometimes your brain just needs to slow down a little. - Earlier this month I did a lot of research into the Vitamin and Supplements sticky's and would be happy to share with you the list I put together, I believe it has helped me a lot. - Definitely download F.lux for your computers and phones, I don't know if you have done much research but there is theories about the blue light that our screens emit, and about the strain they cause on our eyes. Whether much of this is true I have found it a lot easier to use screens with the blue light filters turned on, and the Neruo-Chiropractor I was seeing gave me a pair of glasses with a red filter which is essentially the same thing and has helped also. I have looked into company's such as Gunnar optiks who make gaming glasses to filter out blue light, and hopefully will be able to try them out soon. |
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11-22-2017, 07:32 PM | #4 | ||
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Legendary
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Nate, What changes or improvements do you have to the Vitamin regimen?
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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11-22-2017, 10:40 PM | #5 | ||
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Hi Mark,
Not so much changes, but the list I put together after reading the vitamin sticky and discussing with you. Have been taking for the past couple of weeks now: Fish Oil: 2x3 1000mg Curcumin: 600mg Citrus bioflavonoids: 500 mg Vitamin C: 500mg Vitamin D: 3000iu Vitamin E: 500mg B12: 1000mcg Mega B: Vitamin B1 (Thiamine Nitrate) 50mg Vitamin B2 (Riboflavine) 25mg Vitamin B3 (Nicotinamide) 50mg Vitamin B5 (Calcium Pantothenate) 50mg Vitamin B6 (Pyridoxine Hydrochloride) 50mg Vitamin B12 (Cyanocobalamin) 50mcg Vitamin C (Ascorbic Acid) 100mg Biotin 50mcg Folic Acid 200mcg Inositol 50mcg Choline Bitartrate 50mcg |
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