Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-26-2018, 04:35 PM #31
todayistomorrow todayistomorrow is offline
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Quote:
Originally Posted by Mark in Idaho View Post
A clean DTI MRI does not rule out an injury. A positive DTI MRI is very accurate but false negatives are not uncommon. A healed injury can still cause symptoms without showing the DTI abnormalities.

Maybe the language issue is a problem but the way you explain your symptoms leaves issues to consider. You come across as far more anxious than objectively aware. It is very difficult to self-diagnose most of the symptoms you have stated other than headaches. Reading about concussions can trigger an over concern for such symptoms such that every time one forgets, they attribute it to the concussion.

A professionally administered Neuro Psychological Assessment is considered the gold standard for diagnosing neurological deficits.
I think the NP test is only good for those with more moderate to severe TBI’s. So called mild TBI’s fly under the radar and get labeled as depressed or anxious.
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Old 04-26-2018, 07:39 PM #32
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Danielson complains of memory and cognitive issues. If he has them, they would show on an NP. If he is just overly attentive to normal memory or thought struggles, his scores will be in the normal ranges.

NPs don't diagnose TBI intensity. They just indicate brain dysfunction. Even the experts do not understand why a person can be out cold for hours and have no NPA diagnosed dysfunction and another can have a minor ding and have serious NPA diagnosed dysfunctions.
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Old 05-14-2018, 01:05 PM #33
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Hi, I'm asking for your help because there is something that I don't understand and that seems suspicious to me, altough I'm not able to explain it well.
Basically today my mother take the appointment for the neuropshycological tests, but my appointment is at 16.00 PM, which seems odd to me since I have read that the test should take a whole day.
I have fear that they are going to have some brief and very superficial test not accurate enough to show my symptoms and dysfunctions.
What should I expect? and what can I do to make sure that they are going to perform tests useful for my situation?
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Old 05-14-2018, 04:07 PM #34
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Some doctors do a pre test to determine what sub tests to use. There are many sub tests in a neuro psychological assessment. Some will break the test up over different days.

I had a short version that only took 90 minutes plus three that took 4 hours or more.

It does not sound like you have much control over what they are going to do. Relax and just do as they ask.
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Old 05-14-2018, 05:04 PM #35
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Quote:
Originally Posted by Mark in Idaho View Post
Some doctors do a pre test to determine what sub tests to use. There are many sub tests in a neuro psychological assessment. Some will break the test up over different days.

I had a short version that only took 90 minutes plus three that took 4 hours or more.

It does not sound like you have much control over what they are going to do. Relax and just do as they ask.
It's difficult to relax and trust them since it seems that nobody is interested in my situation or in my health.
I wanna be sure that they are going to do something that can detect my mild cognitive impairment, I don't want to spend money to do some superficial test that will only tell me if I'm at dementia level (which I already know I am not) or not.
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Old 05-14-2018, 07:27 PM #36
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From what I understand all the NP tests are administered a little bit differently depending on the person administering it. For example, my testing was one 50 min appointment followed by a 3 hour and then another 2 hour. After those several were done, then it is an 8 hour followed by a 4 hour and then the review of results six weeks later. It seems to me that perhaps your is just an intake appointment.
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Old 05-14-2018, 08:36 PM #37
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Stop trying to self diagnose.

MCI vs dementia???? What is that?

I have some severe cognitive impairments. I've had problems for 50 years. Life goes on. I lived a full life until the last 10 years when I had to slow down in some areas.

I think you are your own worst enemy. Your PCS is just a small part of your problems. You over analyze yourself and create bigger problems.

Let the professionals assess you. If you try to force the tests, they will show you are not responding naturally and the results will be in doubt.
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Old 05-15-2018, 07:20 PM #38
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Quote:
Originally Posted by Mark in Idaho View Post
Abilify is not one of the scarier anti-psychotics. Nobody can say how you will respond to it.

My doctor put me on Zyprexa for a short term to get past a high level of symptoms. No big deal.
My understanding is that the atypical antipsychotics doubled the rate of death due to having more of certain side effects like type II diabetes.

In any case, my uncle had a stroke and was given abilify for depression. Long story short he started gambling away all his and his wife's money and it almost destroyed their marriage. Come to find out the FDA knew about the risk of compulsive gambling, sexual behaviors etc. due to the drug for years but didn't go public until they were forced to do so. Meanwhile the Canadian health authorities had already been warning about it for years.

Abilify may be somewhat less neurotoxic, but at the end of the day you are causing brain damage even for a person without an injured brain by taking this drug, it just might take a little longer. A person with a brain already damaged by kinetic forces will tend to fare much worse.

Antipsychotics actually worsen psychosis over the long run. They work by simply disabling the frontal lobe in a general way. They are not specific treatments for root biological problems. The drugs were originally developed to kill parasites. Someone with a damaged frontal lobe who then takes what is already a disabling agent is going to have lots of really bad effects.

Sadly, as I expected, all of his cognitive symptoms have now worsened, and he now notes anhedonia, something already problematic for TBI victims and a hallmark effect of these drugs.

It is interesting to note that many of the things said to help TBI symptoms positively affect the mitochondria of neurons (HBOT, NIRLT), whereas antipsychotics prevent them from working properly and subsequently cause increased cell death because presumably the cell processes can not be sustained.

Forced drugging is truly a crime.
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Old 05-15-2018, 07:52 PM #39
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There is a wide range of atypical antipsychotics. Some are worse than others. They do not understand how most work. It's scary how little they know about many drugs that are prescribed.
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Old 05-16-2018, 09:53 AM #40
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Quote:
Originally Posted by Mark in Idaho View Post
Stop trying to self diagnose.

MCI vs dementia???? What is that?

I have some severe cognitive impairments. I've had problems for 50 years. Life goes on. I lived a full life until the last 10 years when I had to slow down in some areas.

I think you are your own worst enemy. Your PCS is just a small part of your problems. You over analyze yourself and create bigger problems.

Let the professionals assess you. If you try to force the tests, they will show you are not responding naturally and the results will be in doubt.
Mark, you are wrong on this. To say PCS is a small part of his problems seems ludicrous to someone that knows firsthand the nightmare this can impact on one's lifes.

I've been told ever since my accident that i was worrying too much and just depressed. All my test came back normal. After going to hundreds of Doctors appt and family thought I was nuts for doing research every day for 3 years; I found an endocronologist to run a STIM test that showed Growth Hormone deficiency.

The professionals are garbage when it comes to TBI and what the latest research shows as viable treatments.
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