Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 05-16-2018, 05:40 PM #41
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

todayistomorrow,
There is a difference between continuing to seek diagnosis and treatment and self-diagnosing and letting that influence how others treat you.

Yes, Danielson has struggles that deserve diagnosis and treatment. His questioning every move plays into their ideas against him. There is a lot to his story we do not know. It appears he is left out of the information loop.

I have first hand experience with doctors who tried to claim I am faking or have hypochondria or am embellishing my condition. At first impression, they were justified in their response. But, I used extensive understanding to show them I had a sound factual basic for my concerns. Most accepted my concerns. If I did not have the knowledge I have, I would not have been able to overcome the malingering/hypochondria label.

We fight an uphill battle to get good care. Getting sidetracked with self-diagnosis and paranoia of the diagnostic process only makes the uphill battle harder.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote

advertisement
Old 05-17-2018, 01:58 AM #42
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
It appears he is left out of the information loop.
Sorry, what do you mean by that?

Quote:
I have first hand experience with doctors who tried to claim I am faking or have hypochondria or am embellishing my condition. At first impression, they were justified in their response. But, I used extensive understanding to show them I had a sound factual basic for my concerns.
I'm not able to do so, I'm too cognitive impaired.

Also you have to consider that doctors are biased towards not admitting and recognizing my problems since they are the ones that put me in this condition by forcing me to take antipsychotics, so I cannnot trust them a lot.
Danielson is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 12:45 PM #43
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

Danielson,

It appears the doctors are not telling you why they are doing what they are doing. They are just doing it, with or without your informed consent.

I don't understand how they can force you to take drugs you do not want to take. What leverage do they use? What symptoms are they seeing in you that cause them to force these drugs on you?

Are you a minor so you have no final say in your care?

I don't understand your comment about MCI vs dementia. Is there a diagnostic difference between the two?
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 02:43 PM #44
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
Danielson,

It appears the doctors are not telling you why they are doing what they are doing. They are just doing it, with or without your informed consent.

I don't understand how they can force you to take drugs you do not want to take. What leverage do they use? What symptoms are they seeing in you that cause them to force these drugs on you?
Bottom line is that they say that I'm crazy for believing that is possible to get a concussion/brain damage without losing consciousness.
They forced me to take them because I was not leaving home awaiting for my PCS symtpoms to resolve, which they labelled as a sign of psychosis.

Quote:
Are you a minor so you have no final say in your care?

I don't understand your comment about MCI vs dementia. Is there a diagnostic difference between the two?
-No, I'm 22 years old.

-I'm not able to express myself clearly unfortunately.
It was a way to say that I'm worried that they will do a superficial test that is not adequate for diagnosing my kind of cognitive problem, and then to use the inaccurate test as a "proof" to reinforce their notion that I'm fine.
Danielson is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 05:20 PM #45
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

First, There is plenty of internationally recognized concussion information that proves that a concussion can happen without a loss of consciousness. Look at 4.4. Concussion results in a graded set of clinical symptoms that may or may not involve loss of consciousness.

http://www.natajournals.org/doi/full...2-6050-48.4.05

Are you refusing to leave the house or are you refusing to move out and live on your own? It sounds like you are refusing to leave the house. There is no justification for this. Even with severe symptoms, most can take short trips outside the home.

What prevents you from leaving the house?

You are quite adequate at expressing yourself clearly in some areas. In other areas, it appears more that you do not want to respond to simple questions.

What can't you do cognitively?

What is the difference between MCI and dementia? How does it change anything?
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 06:12 PM #46
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Default

[QUOTE=Mark in Idaho;1262676]First, There is plenty of internationally recognized concussion information that proves that a concussion can happen without a loss of consciousness. Look at 4.4. Concussion results in a graded set of clinical symptoms that may or may not involve loss of consciousness.

http://www.natajournals.org/doi/full...2-6050-48.4.05


/QUOTE]

I know it, you should tell it to the doctors that says the opposite.

Quote:
Are you refusing to leave the house or are you refusing to move out and live on your own? It sounds like you are refusing to leave the house. There is no justification for this. Even with severe symptoms, most can take short trips outside the home.

What prevents you from leaving the house?
I'm leaving the house now.
I was not leaving my house back in december when they forced me to take antipsychotics.
The reason was that I was succesfully recovering from my PCS and did not want to risk to have a setback until full recovery, I was fearful of having to go back to square one.

Quote:
You are quite adequate at expressing yourself clearly in some areas. In other areas, it appears more that you do not want to respond to simple questions.
Why do you say that?
I have asnwered to every question at the best of my possibilities.

Quote:
What can't you do cognitively?
I cannot explain it well, but I have thinking problems, i cannot think properly, i have a very lowered IQ and struggle to form coehrent sentences or reasoning properly, i have no inner monologue inside my head at all.
I also cannot use imagination to picture images in my mind.

Quote:
What is the difference between MCI and dementia? How does it change anything?
Like I said you should not take that terms literally, I don't know the exact medical definition and diagnosing criteria of that terms, I was just trying to explain the concept that I have fear that they are going to do a superficial test which is not adequate to diagnose the kind of cognitive problems that I have.
Probably I have done a poor job in my explanation tough, arising confusion
Danielson is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 06:18 PM #47
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Danielson Danielson is offline
Junior Member
 
Join Date: Aug 2017
Posts: 64
5 yr Member
Default

Quote:
Are you refusing to leave the house or are you refusing to move out and live on your own? It sounds like you are refusing to leave the house. There is no justification for this
I think that everyone should be free to decide how to take care of their health and of their life (be it leaving or not leaving home as you please) without being forced to suffer severe brain damage from drugs.
Danielson is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 07:50 PM #48
Patriotic American Patriotic American is offline
Junior Member
 
Join Date: May 2018
Posts: 18
5 yr Member
Patriotic American Patriotic American is offline
Junior Member
 
Join Date: May 2018
Posts: 18
5 yr Member
Default

I can't stand know-nothings who have never walked a mile in one's shoes with a brain injury. They do not truly understand. I've found that very few understand, and most people don't even want you to discuss your hardships with them. If anything, people will treat you like you're whining, and they'll not be compassionate in the least. Then, when you make a mistake because of the impact of your brain injury, they want to hold you to the same level of accountability as someone who has no disorientation, no lightheadedness, no dizziness, no extreme headaches, etc., etc., etc.

A brain injury SUCKS. It just does. It's a hidden disability, and people treat you like you're not that injured. They expect you to have the same outlook as someone in perfect health.
Patriotic American is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 08:00 PM #49
Patriotic American Patriotic American is offline
Junior Member
 
Join Date: May 2018
Posts: 18
5 yr Member
Patriotic American Patriotic American is offline
Junior Member
 
Join Date: May 2018
Posts: 18
5 yr Member
Default

Quote:
Originally Posted by Danielson View Post
Antipsychotics did a lot of damage to my brain.
After taking them I started to experience very severe cognitive problems, much worse than before, I'm basically unable to do any thinking and I cannot string a coerhent sentence together while trying to speak.
I also started to have total anedhonia, basically I cannot feel pleasure in any way, not even with sexual activities.

The psychiatrist tell me that is impossibile to suffer a concussion without losing consciousness so my cognitive struggles (both the actual ones and the ones before taking antipsychotics but after the car crash) must be imaginary.

At the same time, I have found a neurologist who is not knowledgeable about antipsychotics but believes that my cognitive impairmente may be due the car crash and he ordered an MRI with tensor diffusion, I will do it in a couple of weeks.
It is reliable to see if I suffered a concussion in the car crash?
Or it is possible that damage will not show up on it?
Your psychiatrist doesn't know what he's talking about. A person can have a concussion without losing consciousness. It is not uncommon. Whiplash from a rear-end collision can easily do it.

I think that these drugs do more harm than good. My brain felt even worse on drugs that were supposed to make my symptoms better. Oh, they made some symptoms better, but I felt even loopier.
Patriotic American is offline   Reply With QuoteReply With Quote
Old 05-17-2018, 08:04 PM #50
Patriotic American Patriotic American is offline
Junior Member
 
Join Date: May 2018
Posts: 18
5 yr Member
Patriotic American Patriotic American is offline
Junior Member
 
Join Date: May 2018
Posts: 18
5 yr Member
Default

Quote:
Originally Posted by Danielson View Post
I live in Italy.

What can I do in order to prove to my psychiatrist that a concussion can happen without losing consciousness? Currently he says that I'm deluded and mentally ill for believing that it is possible.

Also, the neurologist (who is actually a neurosurgeon now that I think about it) said to me that if the DTI MRI will not show anything, than it means that I have not suffered any brain trauma, so i guess that he is ignorant too.
That sadden me a lot because I was hoping to have found a competente doctor finally.
Sounds like a bunch of quack doctors in Italy.

If this so called "professional" was actually knowledgeable, he'd likely know that being hit at only twelve miles per hour from behind can do significant brain damage under certain conditions. These injuries often do not show up on MRIs because the damage is at the microscopic level.
Patriotic American is offline   Reply With QuoteReply With Quote
Reply

Tags
antipsychotics, cognitive, drugs, possibile, situation


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Why antipsychotics cause weight gain Mari Bipolar Disorder 1 03-01-2007 10:22 AM


All times are GMT -5. The time now is 05:32 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.