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Old 05-17-2018, 08:20 PM   #51
Patriotic American
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Trust me, get your hormones tested. I had to do 5 hour STIM test. My MRI with DTI was fine but I just found out I have hypopituarism from the STIM test. My Testosterone levels are fine so even a basic hormonal panel would have missed that Im deficient in growth hormone.

There are maybe a few endocrinologist in the U.S. that are aware of the hormone/TBI relationship. Id do whatever you can to find one.
I had the same problem. I have hypopituitarism the result of a whiplash injury sustained in a rear-end accident (someone ran in to me). My growth hormone levels were at 0.03, or somewhere around there. I almost was not producing growth hormone. For two years after my concussion, it hardly healed because the hypopituitarism issue was not diagnosed. I'm much better now, but I still suffer from some of the symptoms.

They've had me on growth hormone injections, and my insurance has covered it. Unfortunately, due to me making a comment, the result of the effects of the brain injury, I have lost my job and will be losing my insurance soon. Growth hormone is insanely expensive. Genotropin is $1600 per month without insurance. I don't know what I'm going to do.
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Old 05-17-2018, 08:27 PM   #52
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Mark, you are wrong on this. To say PCS is a small part of his problems seems ludicrous to someone that knows firsthand the nightmare this can impact on one's lifes.

I've been told ever since my accident that i was worrying too much and just depressed. All my test came back normal. After going to hundreds of Doctors appt and family thought I was nuts for doing research every day for 3 years; I found an endocronologist to run a STIM test that showed Growth Hormone deficiency.

The professionals are garbage when it comes to TBI and what the latest research shows as viable treatments.
There is research showing the effects of a tbi on growth hormone function. It's just that few doctors even know about it. After going to so many doctors, you realize that many of them haven't the foggiest clue about complex neurological symptoms.

I improved a lot after being on growth hormone therapy.
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Old 07-10-2018, 01:26 PM   #53
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Today I had the neuropshicological test, like I suspected it was a very superficial test not adequate to show my cognitive problems.
The test was 20-30 minutes long and it consisted in some basic questions such as "what day is today?" "what season is it?" "what year is it?" "how does it make 100-7?", to draw some images like trangles and circles and to fill in some puzzles by chosing the right alternatives between some images.
Basically it was a test to show if someone is full retarded or not, not to perceive the decrease in intellectual ability and thinking struggles due to concussion or other forms of mild impairment.
I asked the neurologist who gave me te test if there are some other test to better evaluate my cognitive ability and to see the limits of what I can actually do, and she said that they do not exist, which seems strange to me because I read on internet that a neuropshycological evalutation usually is composed of many test to analize each cognitive skill in detail and that they usually last several hours and are very challenging.
Can someone please shed some light on this to me? I'm very confused.
Do test more accurate to show thininkg dysfunction that the one I did exist?


The neurologist also said, like every other doctor that I have seen, that is impossible to suffer a concussion wihtout losing consciousness...I'm very frustrated by the general incompetence and lack of taking my situation seriously that I have faced since now.
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Old 07-10-2018, 10:31 PM   #54
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You had a MMSE, Mini Mental Status Exam. That was not a neuro psychological assessment.

If the neuro said 'no loss of consciousness, no concussion,' she is ignorant to the point of negligence. But, if you have no way to see a neuro psychologist, there is not much that can be done.
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Old 07-11-2018, 01:37 AM   #55
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You had a MMSE, Mini Mental Status Exam. That was not a neuro psychological assessment.

If the neuro said 'no loss of consciousness, no concussion,' she is ignorant to the point of negligence. But, if you have no way to see a neuro psychologist, there is not much that can be done.
What are the name of the tests usually done in a proper neuro psychological assesment?
I can try to ask the psychiatrist (the same who ordered the psychological assesment that I did following my request and insistence) to order me that specific tests without possibility of error and misunderastanding like this time, what do you think about that?
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Old 07-11-2018, 09:12 AM   #56
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What are the name of the tests usually done in a proper neuro psychological assesment?
I can try to ask the psychiatrist (the same who ordered the psychological assesment that I did following my request and insistence) to order me that specific tests without possibility of error and misunderastanding like this time, what do you think about that?
I remember one was the Wisconsin test?

A good test should take 6 to 8 hours to take...
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Old 07-11-2018, 11:34 AM   #57
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In the US, Wechsler is a popular test, WAIS and Memory versions. MMPI-II, Minnesota Multiphasic Personality Inventory-II is also part of the battery. The Halstead Reitan brain injury battery is common. There are newer computerized test batteries, too.

btw, A battery is a set of various tests oriented toward a specific condition. There are more than 100 different tests to choose from to fit into a battery.

Here is a wiki about the Halstead-Reitan Battery
Halstead-Reitan Neuropsychological Battery - Wikipedia

If I remember, you are in Italy. There may be specific tests that are common to Italy.
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Old 07-17-2018, 05:33 PM   #58
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In the US, Wechsler is a popular test, WAIS and Memory versions. MMPI-II, Minnesota Multiphasic Personality Inventory-II is also part of the battery. The Halstead Reitan brain injury battery is common. There are newer computerized test batteries, too.

btw, A battery is a set of various tests oriented toward a specific condition. There are more than 100 different tests to choose from to fit into a battery.

Here is a wiki about the Halstead-Reitan Battery
Halstead-Reitan Neuropsychological Battery - Wikipedia

If I remember, you are in Italy. There may be specific tests that are common to Italy.
Do you think that the Halstead-Retain Battery would be adequate to diagnosis my kind of cognitive issues?
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Old 07-17-2018, 07:56 PM   #59
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It sure would be heading in the right direction. One of the newer computerized batteries with just a few directly administered tests could also help.

The point is that is does not sound like you had a Neuro Psychological Assessment of any value. Getting properly assessed with any appropriate battery will be worthwhile.
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