NeuroTalk Support Groups - Persistent Dizziness

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)

- - Persistent Dizziness (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/250653-persistent-dizziness.html)

Quote:

Originally Posted by Lebber (Post 1257849)

I'm sorry to hear that you are trying so much with little improvement. But i wiuld say keep doing what you do. Its your best chance for it to get better.

I have seen brain dizziness in patients with brain hemmorage and severe tbi. It doesnt completely go away but it does get better over the years. I'm always skeptical about timelines. Its true that after some time there is theoratically less chance for it to go away but i have seen people get better. after years. So dont give up.

Thank you! I know every injury is highly individual. Hearing actual success stories helps maintain hope though.

I've been dealing with dizziness ever since my last concussion. It seems to come and go now.

I think that most of my dizziness has to do with my vision issues (but it's just a guess). For example if I go for a walk in the woods I feel dizzy or unsteady, but if I go for a hike in the mountains where there are no trees around me, I feel fine.
I do get dizzy and feel worse in busy places, like Costco for example.

Driving makes me dizzy, I feel fine while driving (although my eyes do struggle at times, but I don't feel dizzy) but after I get home and sit down I feel dizzy and need to take an hour sitting still for it to go away.

I've had various therapies with no improvement so far.

Quote:

Originally Posted by russiarulez (Post 1257931)

I've been dealing with dizziness ever since my last concussion. It seems to come and go now.

I think that most of my dizziness has to do with my vision issues (but it's just a guess). For example if I go for a walk in the woods I feel dizzy or unsteady, but if I go for a hike in the mountains where there are no trees around me, I feel fine.
I do get dizzy and feel worse in busy places, like Costco for example.

Driving makes me dizzy, I feel fine while driving (although my eye do struggle at times, but I don't feel dizzy) but after I get home and sit down I feel dizzy and need to take an hour sitting still for it to go away.

I've had various therapies with no improvement so far.

I’m sorry you are going through this. I feel fine driving too! I do feel dizzy afterwards though. I also feel my best outside and my worst inside a busy store with fluorescent lights.

Anyone have experience reducing visual triggers of dizziness?

Hi TomAce994

The dizziness scares me because I drive and don't want to loose that although the dizziness isn't that frequent. When it happens I focus on breathing and being calm, keeping my head down also really helps (obviously not when driving :) I'll eat something and have a glass of water and that helps. Just doing something different immediately makes a difference.

In crowds I keep my head down or in a room with many people I will focus on one person only when I talk. I find that meditation has really helped me with focus and I can partially block out peripheral sounds when I focus in, hard but makes a difference. Other than that....just "getting out of Dodge" really helps to do a restart with interference. Realize these are not permanent solutions but short term coping skills but I think that these help me to navigate the long term.

Best wishes,

Susie

Quote:

Originally Posted by Susie1 (Post 1257963)

Thanks for your reply.

I’m tired of feeling bad. I’m not scared of my dizziness. I know I’m not dying and it’s not getting worse. But I just want it to go away. It comes on even when I’m not thinking about it. It’s hard to explain to people without them assuming it’s psychological.