Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-13-2018, 11:11 AM #1
BlueSkye1962 BlueSkye1962 is offline
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BlueSkye1962 BlueSkye1962 is offline
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Default Botox for headaches?

I have had a headache 24/7 with migraines at least once a day. Sometimes the migraines last part of a day/night and sometimes they last for days.

I saw a different Neurologist and he wants to try Botox injections - I'm leary !

Anyone with experience with Botox for PCS ?

Finding a neuro & seeing them within a reasonable amount of time is difficult at best!

I saw 2 neuros while inpatient - they referred me to another neuro - I waited 2 months for that appointment (some I called there was anywhere from 6 months to a year wait list! - some told me I was not supposed to call - I was supposed to get a referral and they would call me - since when can't I control my own health care?) anyway, I go to neuro #3, walk in and she is confused as to why I was referred to her when she is an epileptic neuro specialist. So back to the hunt for a neuro that can see me within a reasonable time frame - meaning within 2-3 months. Went to see neuro #4 and he wants to do Botox injections. This neuro was really nice - very empathic and considerate (unlike neuro #1 who was a class a know it all jerk) - surprisingly all the others have been stellar in the compassion department & treated me as a fellow human being.

With botox injections you can only get them every 12-14 weeks - it often takes up to the 3rd treatment to see results and you have to keep doing it or the migraines come back - if they go away to begin with.

Thoughts?
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Old 02-13-2018, 12:22 PM #2
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Default

In the past, some have tried Botox for headaches. The results were mixed but that is not uncommon when dealing with headaches. It appears the important part is finding a doctor who is good at finding the right muscles to inject. Yours sounds confident.
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