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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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03-06-2018, 01:34 PM
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| "Thanks for this!" says: | Hom3mad3 (03-06-2018) |
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03-06-2018, 03:36 PM
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Ben I think that Marks point was more just to make sure that I knew what I was getting into. I am by no means an expert but from what I can gleam from my readings is that nothing is a guarantee, no 2 injuries are the same and will all come with it's own set of challenges.
Kurtis Lowe |
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03-06-2018, 04:45 PM
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I was just commenting about long term prospects and Kurtis having his heart prepared for the future possibilities. There are no guarantees either way but some who have a history of TBI with prolonged symptoms see a deterioration as they get to the middle 40s. Some never see any deterioration after their recovery.
Ben, You would be anxious about any negative comment. "She is currently in her late 50's. She's currently highly functional, has a PhD from a top 5 university in the world(on a full academic scholarship), pretty successful in her field but you've scared me with this 'deterioration' that you speak of." There is no meaning to these comments. Her educational accomplishments have no bearing on her future. She could develop Alzheimer's. She could cure cancer. She could have a heart attack. She could live to 100. It does not sound like she has had any prolonged struggles from her concussions so her future is full of possibilities. You need to stop looking for things to be anxious about. Other people's struggles are theirs and specific to their injury. If I told you about all of the struggles I have had over the last 53 years, you'd probably collapse from the anxiety. I raised a family as the sole income in one of the most expensive areas in the US (Silicon Valley, Calif). I've had 6 successful businesses. I've self-built a mountain cabin. But, my doctor is amazed that I did all that with the brain damage he can see when he examines my brain function. You have all of your possibilities ahead of you. Instead of tackling the challenges of moving ahead with your life, you are paralyzed in fear of things that may never happen and things that defy logic. My father died from early onset dementia that started in his 40s. It took 30 years to take his life at 78. He was a rocket engineer and had to retire at 58 because of his dementia. But, he lived a full life until the last year. He snow skied, biked, fished, hunted, read, and went to the gym an hour a day. He developed work-arounds so his struggles did not get in the way of enjoying his life. He researched how to get the most out of his failing brain. I've lived for 35 years without part of a thumb and ten years without part of a finger. I learned to do things differently. I have learned to adapt just as I have with my brain injury. We adapt and life goes on. You would do well to focus on going on with your life.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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| "Thanks for this!" says: | Hom3mad3 (03-06-2018) |
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03-06-2018, 06:25 PM
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She has had 2 Neuro Psychological Assessments she said they were not fun mostly because of the length. She had 1 right after her accident and one a year later. She said she would like to take another just to compare, but says neuro feedback is more helpful she said it actually maps out the pathways. It helps her with anxiety and let's her know how to better deal with certain stressors. Then she giggled and asked if I had been reading again.
Kurtis Lowe |
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03-06-2018, 06:35 PM
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Wow Mark I totally had you pegged for a physician. That's an impressive resume my friend. You are a truly impressive human being! That's more than most people without challenges hope to accomplish in lifetime! Many thanks for your input.
Kurtis Lowe |
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03-06-2018, 07:53 PM
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Legendary
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I assume she is doing volitional neuro feedback where they wire up her brain and she practices techniques to settle or control the brain wave forms. With a good therapist, this can be a great system. It gives her a sense of control when her brain wants to misfire. Plus, it helps to realize you are not going crazy. It is just the brain misfiring. Use the techniques and you will get past this moment.
Has she told you or have you observed what some of us call brain farts? The wrong word or some other strange misspoken expression? "What just happened? It stinks. I can't believe it came out of me?" Then we learn to smile or laugh/giggle or just shake our head gently and roll our eyes at the situation. Being able to laugh when our brains mess up is a valuable skill. I have a saying that I came up with by being funny about keeping track of the score playing ping pong. "I can't pay attention because my brain is broke." Think that one over. You could even use it when she is struggling. "Of course you can't pay attention. Your brain is broke." then giggle with her. If the two of you can learn your pet responses to such events, that shows her willingness to establish a deeper connection. Just for fun, I have a few others. When I get tongue tied, I will say, "I got my tongue caught on my eye tooth and I can't see what I am saying." Or "I just washed my tongue and can't do a thing with it." Women understand this one. Sometimes, we just gotta laugh. My wife tends to just roll her eyes. Your lady sounds like a giggler. The stress relief of laughing at struggles has an important part. It releases brain chemicals that enhance function and reduce stress chemicals. I think you two sound like you will do well. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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03-06-2018, 11:24 PM
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She says they wire up her brain and talk about things and sometimes she watches pictures on a screen. It sounds interesting though I have not been invited to one of those.... yet. She says it has helped her more than anything else has. All I say is if it makes you happy do it and twice on Sundays.
She has learned to embrace her weaknesses and yes very often will giggle at her self she has a very light personality. I was on the phone with her today talking about Neuro Psychological Assessment shehad a brain fart she got all of a sudden very serious and said she couldn't find the word. I told her it's OK I can't think what I am talking about either. So it's funny that you say that. We both get a chuckle out of that kinda thing. As for random words in a sentence, I saw her do it once but she was very tired even though she won't admit it her eyes don't hide it. I very quickly made it look like she had said the correct words I could see her trying to figure out what happened as I got a hug and left for the night. Thanks Mark I am glad I got your seal of approval. In a world where most women are narcissistic and superficial. This girl is special and if what was on the inside was somehow visible. She would easily be the most beautiful woman on the planet. She's not hard to look at the way she is either if you know what I am saying. I don't know what took me so long to see how wonderful she is. Lol my mom always told me to "look under your nose son." probably should have listened to her more. Kurtis Lowe |
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