Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-06-2018, 03:13 AM #11
BenW BenW is offline
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Thanks so much for the valuable information, it is definitely something I will bring up with my gp at our next visit. If I understand correctly, your son was dealing with an anxiety disorder which you originally thought to be pcs related but was actually due to abnormal hormone levels?

Also I fear it may take a while for me to be able to see a specialist since referrals take a long time to come to fruition where I live so I guess I have to learn to manage symptoms in the meantime. Is there anything your son found that was helpful? My current symptoms are anxiety, head sensitivity (sensitivity to hard steps, bumpy cars, things like the heel drop this morning, etc), brain fog and some physical symptoms like headaches and nausea. I'm also a student who goes to college every day. Was your son also a student or did he take a lot of time off for his recovery?

I think this is definitely very promising as something that may finally give me answers as many doctors are questioning the diagnosis of pcs and seem more keen to point to anxiety as being the primary cause of everything but not one has mentioned hormone levels.
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Old 03-06-2018, 08:57 AM #12
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Yes we were on the waiting list months before we were able to see the specialist. We're in Canada also.

Yes they will say its all anxiety and all in your head. thats the struggle the majority of PCS people have with the medical community. if you go to a PCS illiterate psychiatrist,psychologist or even sometimes a Family Doctor, you will very likely be told its due to you anxiety and you will likely be pushed to take anti-anxiety and anti depressants. I totally disagree with the anxiety causing the PCS symptoms. What I see clearly as fact now from my sons experience is that the PCS disrupts the hormones and the hormone disruption cause the anxiety and a host of other "mental" disorders illnesses. This site even has stickies pointing to the research studies identifying neuro-endocrine disfunction , hypo-pituitarism etc after concussion!! And as an example of how hormones can cause apparent mental illness/disorder symptoms research low testosterone in medical literature you will see depression, anxiety etc as symptoms! see an example below. Dr AWAD Associate Professor of Psychiatry, University of Toronto
Director, Psychobiological Medicine Unit, Department of Psychiatry, Toronto Western Hospital states in this article:

"The psychiatric disturbances which accompany hyperthyroidism and hypothyroidism, the two commonest thyroid disorders, mimic mental illness. "
Thyroid Foundation of Canada

My point is that therefore you must treat the hormone imbalance to resolve the anxiety - not just treat the symptom of anxiety. I hate to say this but I would steer clear of any pshycs at all costs.

He also found cbd oil to be helpful. it helped to some degree with his anxiety and sleep. i am a strong believer in going the legal prescription route for this as he did as you know exactly what you are getting. its not difficult in Canada to get approved as you have anxiety which is on the list of ailments approved. This may just help you alleviate some of your symptoms It will not fix the problem. My son stopped using the CBD in his hrt treatment as he didnt need it. The good thing is that CBD is not addictive! like some of the psychiatric drugs can be. They can be extremely difficult to stop. there;s evidence of that all over the web.

While you are waiting you can also start by taking what the dr prescribed my son and what I also see mentioned in this forum. The dr has him on 4,000 gm fish oil/day, 5,000 gm vit D3 per day and b complex. I would start that right away. From my own research I think the fish oil should have a ratio of 2 epa to 1 dha for inflammation control. buy quality brand vitamins and fish oil. Note as told to me by the specialist "vitamin D is a mislabeled hormone" and is an important.

I would also go to someone to check your neck as mentioned in this forum . We ended up using a NUCCA Chiropractor (National Upper Cervical Chiropractic Association). My sons neck was out of alignment and the NUCCA Chiro resolved it. I could see the misalignment in the xray so I know it was there.

As I mentioned in my posts the sensitivity went away when he was taking his hrt pills. also thank god his anxiety and panic attacks did also.

The fog has partially lifted so he functions much better and is in school again. I think that will be one of the last things to fully resolve.

Also be sure to read the link of the hockey player and his recovery that I posted in the other thread you created. He has a similar story to my sons.
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Old 03-06-2018, 12:32 PM #13
BenW BenW is offline
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Thanks again. Like I said it's definitely something very promising that I will bring up with a doctor. I'm not gonna go ahead an immediately assume all my issues are hormone related but it's definitely something to look into.

I agree with most doctors having poor understanding of concussions but I have consulted and am being followed by one of the top concussion clinics in the country(they treat pro hockey and football players) and even they said my symptoms are being continued by anxiety more than actual pcs so I feel inclined to trust them given there reputability in the field but like I said I'll bring it up with them.

I don't necessarily agree with your reservations regarding psychiatrist. Sure some will be bad and be quick to chalk everything up to anxiety, give you a quick prescription and send you on your way but the good ones actually do listen and care and will help you figure out the underlying causes as well as recommended alternative options and therapies other than just medication(even medication can be very helpful and necessary for some people).

Thank you for linking thsy article, I am a former high level hockey player myself so it's definitely relatable and gives me some hope.

Also I think I should definitely get an xray done of my neck and back, I've been having persistent issues with it for some time now and I really believe it contributes heavily to my symptoms. Osteopathy adjustments help but the problems are still persistent.

In the meantime do you think it's fine for me to stay in school and keep doing my regular activities while still investigating and waiting on treatments? I don't do anything too crazy but I take the subway or drive to school every day, do quite a lot of walking, twice a week do mild exercise and occasionally go out with friends/gf.

Also how did your sons concussion(s) happen and how bad was it?
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Old 03-06-2018, 07:21 PM #14
MrPCS MrPCS is offline
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Quote:
Originally Posted by BenW View Post
Thanks again. Like I said it's definitely something very promising that I will bring up with a doctor. I'm not gonna go ahead an immediately assume all my issues are hormone related but it's definitely something to look into.

I agree with most doctors having poor understanding of concussions but I have consulted and am being followed by one of the top concussion clinics in the country(they treat pro hockey and football players) and even they said my symptoms are being continued by anxiety more than actual pcs so I feel inclined to trust them given there reputability in the field but like I said I'll bring it up with them.

I don't necessarily agree with your reservations regarding psychiatrist. Sure some will be bad and be quick to chalk everything up to anxiety, give you a quick prescription and send you on your way but the good ones actually do listen and care and will help you figure out the underlying causes as well as recommended alternative options and therapies other than just medication(even medication can be very helpful and necessary for some people).

Thank you for linking thsy article, I am a former high level hockey player myself so it's definitely relatable and gives me some hope.

Also I think I should definitely get an xray done of my neck and back, I've been having persistent issues with it for some time now and I really believe it contributes heavily to my symptoms. Osteopathy adjustments help but the problems are still persistent.

In the meantime do you think it's fine for me to stay in school and keep doing my regular activities while still investigating and waiting on treatments? I don't do anything too crazy but I take the subway or drive to school every day, do quite a lot of walking, twice a week do mild exercise and occasionally go out with friends/gf.

Also how did your sons concussion(s) happen and how bad was it?

I think you should definitely keep doing your activities and school. You're not causing any harm if thats what you're thinking.

About the hormones, I'm just saying get them tested and see where you land. If there's an issue get it treated.

here's an excellent talk about concussions and neuro-endocrine disruption by a Dr who i think is the top of the field!

Dr. Komer Brain Health Seminar - YouTube
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Old 03-06-2018, 08:01 PM #15
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By the way he's the one who treated my son and the other guy in the writeup earlier.

if you have longstanding pcs listen to what he has to say.
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Old 03-06-2018, 09:10 PM #16
BenW BenW is offline
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Quote:
Originally Posted by MrPCS View Post
By the way he's the one who treated my son and the other guy in the writeup earlier.

if you have longstanding pcs listen to what he has to say.
Thanks a lot! I'm seeing my doctor this week so I'll bring this up and let you know what they say.
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