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Old 05-28-2018, 08:03 PM #1
truewoman truewoman is offline
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Join Date: May 2018
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5 yr Member
truewoman truewoman is offline
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Join Date: May 2018
Posts: 1
5 yr Member
Default Feeling blamed for PCS by UK specialist

Hi, I was knocked off my bike 2 yrs ago, and since then had all the classic PCS symptoms , especially fatigue, brain fog, speech issues, memory issues. I have been gradually recovering, but my resilience is still low if I don't pace myself and rest. My old symptoms return if I overdo it.
I have been waiting patiently to see the neuropyschologist in the UK on NHS... only to find out that as the whole concept of how to treat PCS is a split camp medically, and my specialist is on the side that "if you cant see it with an MRI and you didnt lose consciousness, theres nothing really wrong with you" they want to treat me with CBT!

They also found in the neuro pysch tests that I am intelligent; the curse of that is you cant just accept what they tell you, you read around and realise that there are people in the States and Europe who dont agree with the fact that "its your coping mechanisms that are at fault" and are looking at more sensitive measures and ways of helping. I have my first CBT session with a student studying under this consultant tomorrow, and I am going to find it hard not to get angry at her, because I feel their whole approach is flawed.

It would really help me to speak to others in the same position. Really, I have done everything in my power to recover, I am not hanging onto the illness but now feel like I am being blamed for creating persistant PCS.
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